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The Creation Of The National Registry Of Rare Diseases In The Slovak Republic Cover

The Creation Of The National Registry Of Rare Diseases In The Slovak Republic

By: F. Cisárik and  A. Baráková  
Open Access
|Aug 2014

References

  1. [1] Aymé S. and Rodwell Ch. The European Union Committee of Experts on Rare Diseases: Three Productive Years at the Service of the Rare Disease Community. Orphanet Journal of Rare Diseases 2014 9:30 10.1186/1750-1172-9-30394251924580800
  2. [2] Gliklich RE, Dreyer NA, et al. Registries for Evaluating Patient Outcomes: A User’s Guide. 2nd ed. (AHRQ, September 2010)).
  3. [3] Registries under NCHI. [online] Bratislava, National Centre of Health Information [last access verified 20/2/2013]. Accessible at: http://www.nczisk.sk/Registre/Narodne-zdravotne-registre/Registre_v_sprave_NCZI/Pages/default.aspx
  4. [[4] Regulation (EC) No 141/2000 of the European parliament and of the council. Off J Eur Commun, 43, 2000, L18, p. 1-5;
  5. [5] Regulation (EC) No 847/2000, Off J Eur Commun, 43, 2000, L103, p. 5-8
  6. [6] SR. Act no.153/2013 on the National Health Information System and on Amendments and Additions to Certain Laws. In: 2013, 37. Accessible at: http://www.nczisk.sk/Documents/statisticke_zistovania/zakon_153_2013.pdf
  7. [7] European Union Committee of Experts on Rare Diseases: Recommendations on Rare Disease Patient Registration and Data Collection. 2013 Accessible at http://www.eucerd.eu/wp-content/uploads/2013/06/EUCERD_Recommendations_RDRegistryDataCollection_adopted.pdf
  8. [8] SR. The Decree of the Ministry of Health Care of the Slovak Republic of 11th March 2014, which defines a list of reports to National Health Registries, their characteristics, details on the content of national health registries, procedures, methods, coverage of reporting units and time limits of reporting to national health registries. In: 74/2014. 2014, 29. Accessible at: https://lt.justice.gov.sk/Attachment/vlastn%C3%BD%20mat%20v_r_doc.pdf?instEID=1&attEID=63556&docEID=347801&matEID=6960&langEID=1&tStamp=20140317105451933
Language: English
Published on: Aug 30, 2014
In partnership with: Paradigm Publishing Services
Publication frequency: 2 issues per year
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© 2014 F. Cisárik, A. Baráková, published by Comenius University in Bratislava, Faculty of Pharmacy
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.