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Patient Empowerment in Rare Diseases Slovak Rare Disease Alliance − Contribution to the Creation of the National Plan of Rare Diseases in Slovakia Eurordis – Benefits of Membership / Pacientske organizácie v oblasti zriedkavých chorôb – ich činnosť aj pri príprave národného plánu v SR slovenská aliancia zriedkavých chorôb Eurordis - európska aliancia zriedkavých chorôb – výhody členstva Cover

Patient Empowerment in Rare Diseases Slovak Rare Disease Alliance − Contribution to the Creation of the National Plan of Rare Diseases in Slovakia Eurordis – Benefits of Membership / Pacientske organizácie v oblasti zriedkavých chorôb – ich činnosť aj pri príprave národného plánu v SR slovenská aliancia zriedkavých chorôb Eurordis - európska aliancia zriedkavých chorôb – výhody členstva

By: B. Ramljaková  
Open Access
|Apr 2013

References

  1. EURORDIS. The voice of 12,000 patients: Experiences and Expectations of Rare Disease Patients on Diagnosis and Care in Europe : a report based on the EurordisCare3 surveys [online]. Eurordis, 2009 ISBN 29-530-3181-2. (www.eurordis.org/IMG/pdf/voice_12000_patients/EURORDISCARE_FULLBOOKr.pdf). Accessed April 20 2013.
  2. EURORDIS. EUROPLAN - Guidance for National Plans and Conferences: EUROPLAN National Conference Final Reports [online]. EURORDIS, 2010, 21/09/2012. (http://www.eurordis.org/content/europlan-guidance-national-plans-andconferences). Accessed April 20 2013.
  3. EURORDIS. EURORDIS Rare Diseases Europe: The voice of of Rare Disease Patients in Europe [online]. European Union's Health Programme, 2009, 10/01/2013. (http://www.eurordis.org/). Accessed April 20 2013.
Language: English
Page range: 41 - 45
Published on: Apr 20, 2013
In partnership with: Paradigm Publishing Services
Publication frequency: 2 issues per year
Related subjects:

© 2013 B. Ramljaková, published by Comenius University in Bratislava, Faculty of Pharmacy
This work is licensed under the Creative Commons License.