FIGURE 1.

Characteristics of respondents of the questionnaire
| N | % | |
|---|---|---|
| Total | 521 | |
| Respondent | ||
| Biological mother | 421 | 81 |
| Biological father | 87 | 17 |
| Grandparent | 5 | 0.96 |
| Foster parent | 4 | 0.77 |
| Step parent | 1 | 0.2 |
| Other | 1 | 0.2 |
| Child | ||
| Age [mean (SD)] (years) | 9.92 (4.17) | |
| Male | 431 | 83 |
| Female | 90 | 17 |
| Diagnosis | ||
| Autism | 272 | 52.60 |
| High functioning autism | 128 | 24.70 |
| PDD-NOS | 76 | 14.70 |
| Asperger syndrome | 36 | 7 |
| Other | 7 | 1.40 |
| CDD | 2 | 0.40 |
Frequency responses for Likert scale components of questions
| Frequency | % † Based on valid responses only. | |
|---|---|---|
| Intervention has improved family life | ||
| Not at all | 43 | 10 |
| Neutral | 81 | 18.8 |
| Yes somewhat | 159 | 36.8 |
| Yes definitely | 149 | 34.5 |
| Total ‡ Total excluding missing responses | 432 | 100 |
| Would earlier access to intervention have led to more improvement in child’s QoL | ||
| Not at all | 39 | 8.5 |
| Neutral | 60 | 13 |
| Yes somewhat | 94 | 20.4 |
| Yes definitely | 267 | 58 |
| Total ‡ Total excluding missing responses | 460 | 100 |