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The potential impact of gene therapy on health-related quality of life (HRQoL) domains in haemophilia Cover

The potential impact of gene therapy on health-related quality of life (HRQoL) domains in haemophilia

The Journal of Haemophilia Practice
Volume 8 (2021): Issue 1 (January 2021)
By: Monika Bullinger,  Diandra Latibeaudiere Gardner,  Hannah B Lewis,  Wolfgang Miesbach,  Sandra Nolte,  Jamie O’Hara,  Brian O’Mahony,  Debra Pollard,  Mark Skinner and  Jennifer Quinn  
Open Access
|May 2021

Authors

Monika Bullinger

Diandra Latibeaudiere Gardner

ICON Clinical Research Limited, London, UK

Hannah B Lewis

ICON Clinical Research Limited, London, UK

Wolfgang Miesbach

Medical Clinic 2, Institute of Transfusion Medicine, University Hospital Frankfurt, Germany

Sandra Nolte

ICON Clinical Research Limited, Charité–Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin Institute of Health, Medical Department, Division of Psychosomatic Medicine, Munich

Jamie O’Hara

HCD Economics, University of Chester, UK

Brian O’Mahony

Irish Haemophilia Society, Trinity College, Dublin

Debra Pollard

Royal Free Hospital, Trustee of Haemnet, MASAG, European Haemophilia Consortium, London

Mark Skinner

Institute for Policy Advancement Ltd, McMaster University, Washington

Jennifer Quinn

Jennifer.Quinn@bmrn.com

BioMarin UK Ltd, London, UK
DOI: https://doi.org/10.17225/jhp00176 | Journal eISSN: 2055-3390
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Language: English
Page range: 56 - 68
Published on: May 30, 2021
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
Haemophilia,
gene therapy,
patient-reported outcomes,
health-related quality of life
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2021 Monika Bullinger, Diandra Latibeaudiere Gardner, Hannah B Lewis, Wolfgang Miesbach, Sandra Nolte, Jamie O’Hara, Brian O’Mahony, Debra Pollard, Mark Skinner, Jennifer Quinn, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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