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The impact of heavy periods on women with a bleeding disorder Cover

The impact of heavy periods on women with a bleeding disorder

The Journal of Haemophilia Practice
Volume 8 (2021): Issue 1 (January 2021)
By: Nicola Sugg and  Debra Morgan  
Open Access
|May 2021

Figures & Tables

Heavy periods have been recognised as a significant challenge for women with a bleeding disorder. The results of a survey conducted by The Haemophilia Society as part of its Talking Red campaign reveal their impact on daily life.
Heavy periods have been recognised as a significant challenge for women with a bleeding disorder. The results of a survey conducted by The Haemophilia Society as part of its Talking Red campaign reveal their impact on daily life.

Figure 1

Distribution of respondentshttps://www.doogal.co.uk/BatchGeocoding.php
Distribution of respondentshttps://www.doogal.co.uk/BatchGeocoding.php

Figure 2

Age distribution of respondents
Age distribution of respondents

Figure 3

Distribution of reported bleeding disorders
Distribution of reported bleeding disorders

Figure 4

Reported signs and symptoms associated with bleeding disorder*Other symptoms reported by respondents were random soft tissue bleeding after exercise and minor joint bleeding; gastrointestinal bleeds, including due to angiodysplasia; the unpredictable nature of bleeding and pain when bleeding after a knock or injury; gastrointestinal bleeds; easy bruising and long-lasting bruises; prolonged bleeding after childbirth; large clots during period; blood transfusions after surgery; and subarachnoid haemorrhage (spontaneous bleed).
Reported signs and symptoms associated with bleeding disorder*Other symptoms reported by respondents were random soft tissue bleeding after exercise and minor joint bleeding; gastrointestinal bleeds, including due to angiodysplasia; the unpredictable nature of bleeding and pain when bleeding after a knock or injury; gastrointestinal bleeds; easy bruising and long-lasting bruises; prolonged bleeding after childbirth; large clots during period; blood transfusions after surgery; and subarachnoid haemorrhage (spontaneous bleed).

Figure 5

Symptoms and impact by diagnosis (%)Excludes diagnoses stated as ‘don’t know’, ‘menorrhagia’, and activated protein C resistance
Symptoms and impact by diagnosis (%)Excludes diagnoses stated as ‘don’t know’, ‘menorrhagia’, and activated protein C resistance

Sanitary protection used by respondents (n)

PRODUCTNUMBER OF RESPONDENTSPRICE RANGE FOR PRODUCT* (£ PER UNIT)
Menstrual cup514–30
Night sanitary towel250.07–0.23
Sanitary towel280.05–0.14
Tampon360.05–0.13
Other
  Combination of two products14–
  Combination of three products4–

Current treatments for period symptoms (n)

TREATMENTNUMBER OF RESPONDENTS
Hormone therapies (oral)*37
Mirena intrauterine device22
Desmopressin8
Tranexamic acid60
Other
  Factor replacement4
  NSAIDs3
  Simple analgesics2
  Other intrauterine device1
DOI: https://doi.org/10.17225/jhp00173 | Journal eISSN: 2055-3390
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Language: English
Page range: 15 - 31
Published on: May 2, 2021
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
women with bleeding disorders,
menstrual bleeding,
menorrhagia,
haemophilia,
von Willebrand disease
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2021 Nicola Sugg, Debra Morgan, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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