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Figure 3
Infusion education while at camp
| WHO IS INFUSION EDUCATION OFFERED TO AT CAMP? (CHECK ALL THAT ARE APPROPRIATE) | CAMP ADMINISTRATORS (N=20) | HCPS (N=54 WHO TEACH INFUSION CLASSES) | ||
|---|---|---|---|---|
| N | % | N | % | |
| Those diagnosed with hemophilia | 9 | 45.0% | 44 | 81.5% |
| Anyone on infusion therapy | 9 | 45.0% | 46 | 85.2% |
| Anyone interested in learning | 8 | 40.0% | 29 | 53.7% |
| Those diagnosed with von Willebrand's Disease | 7 | 35.0% | 34 | 63.0% |
| Those on prophylaxis | 7 | 35.0% | 40 | 74.1% |
| Carriers | 6 | 30.0% | 19 | 35.2% |
Guidelines/policy on storage and dispensing of medications at camp
| CAS (N=20) | HCPS (N=75) | |||
|---|---|---|---|---|
| N | % | N | % | |
| Does your Camp Health Center have guidelines or policy on the storage of controlled substances (ADHD medications/opioids/benzodiazepines/etc.)? | ||||
| Yes | 18 | 90.0 | 45 | 60.0 |
| Don't know | 2 | 10.0 | 26 | 34.7 |
| No | 0 | 0.0 | 4 | 5.3 |
| Does your Camp Health Center have guidelines or policy on who can dispense medications? | ||||
| Yes | 19 | 95.0 | 49 | 65.3 |
| Don't know | 1 | 5.0 | 23 | 30.7 |
| No | 0 | 0.0 | 3 | 4.0 |
| Does your Camp Health Center have guidelines or policy on who can dispense controlled substances (opioids/benzodiazepines/etc.)? | ||||
| Yes | 18 | 90.0 | 38 | 50.7 |
| Don't know | 2 | 10.0 | 31 | 41.3 |
| No | 0 | 0.0 | 6 | 8.0 |
CHC staffing (n=101 HCPs)Survey respondents were able to select more than one option_
| N | % | |
|---|---|---|
| Medical HCPs from HTCs | 86 | 85.1 |
| Volunteers from HTCs and chapters | 48 | 47.5 |
| No affiliation with bleeding disorders community but PWBD are invited | 9 | 8.9 |
| Chapter personnel only | 2 | 2.0 |
| Other: | 15 | 14.9 |
| Other health care professionals | 5 | |
| Unknown/not sure | 4 | |
| Industry staff* | 3 | |
| Home care staff** | 2 | |
| Medical or nursing students/residents | 2 | |
| Specialty pharmacy staff*** | 1 | |
Provision of factor, supplies, and medications during camp (n=20 CAs)Survey respondents were able to select more than one option_
| CAMP | CAMPER | HTC | DONATION | CHAPTER | ||||||
|---|---|---|---|---|---|---|---|---|---|---|
| N | % | N | % | N | % | N | % | N | % | |
| Over-the-counter medication | 13 | 65 | 8 | 40 | 6 | 30 | 6 | 30 | 1 | 5 |
| Supplies | 9 | 45 | 9 | 45 | 7 | 35 | 9 | 45 | 1 | 5 |
| Prescribed medication | 2 | 10 | 19 | 95 | 2 | 10 | 2 | 10 | 0 | 0 |
| Factor | 0 | 0 | 19 | 95 | 0 | 0 | 1 | 5 | 1 | 5 |
HCP barriers to attending camp (n=24)*
| BARRIER | N | % |
|---|---|---|
| My HTC required I use personal/vacation time and I was not willing to do so | 7 | 29.2 |
| I did not have time to participate | 4 | 16.7 |
| The timing just hasn’t been right | 4 | 16.7 |
| I am not licensed in the state in which camp is held | 4 | 16.7 |
| I can’t leave my family for that length of time | 3 | 12.5 |
| My HTC would not allow for time off to participate | 3 | 12.5 |
| I don’t like going to camp | 2 | 8.3 |
| I don’t work with children, so I don’t go to camp | 1 | 4.2 |
| It is too far to travel | 1 | 4.2 |
| I can’t bring my family | 1 | 4.2 |
| Other | 6 | 25.0 |
HCP employment outside of camp and compensation (n=75)
| N | % | |
|---|---|---|
| Employment outside of camp | ||
| HTC | 65 | 86.7 |
| Hospital (not HTC) | 5 | 6.7 |
| Neither hospital nor HTC | 5 | 6.7 |
| Employment status | ||
| Full-time | 66 | 88.0 |
| Salaried | 47 | 63.0 |
| Hourly | 28 | 37.0 |
| 20–35 hours/week | 8 | 10.7 |
| Less than 20 hours/week | 1 | 1.3 |
| Compensation while at camp | ||
| Camp counted as work time | 61 | 81.3 |
| Compensation time given | 8 | 10.6 |
| Used vacation time | 4 | 5.3 |
| Combination of work time and compensation time | 1 | 1.3 |
| Breakdown of those who used work time to participate at camp (n=62) | ||
| Allowed 8 hours/day | 55 | 88.7 |
| Allowed 12 hours/day | 5 | 8.1 |
| Allowed 24 hours/day | 2 | 3.2 |
| Breakdown of those who used compensation time to participate at camp (n=9) | ||
| Allowed 8 hours/day | 8 | 88.9 |
| Allowed 24 hours/day | 1 | 11.1 |
| Breakdown of those who used vacation time to participate at camp (n=5) | ||
| Allowed 8 hours/day | 2 | 40.0 |
| Allowed 24 hours/day | 2 | 40.0 |
| Allowed 12 hours/day | 1 | 20.0 |