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“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care Cover

“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care

Open Access
|Dec 2020

Figures & Tables

While advances in treatment mean that young people with haemophilia can now expect to lead a much more ‘normal’ life than previous generations, it is essential that the discourse around ‘normality’ in haemophilia does not obscure the remaining and new challenges they experience in their everyday lives.
While advances in treatment mean that young people with haemophilia can now expect to lead a much more ‘normal’ life than previous generations, it is essential that the discourse around ‘normality’ in haemophilia does not obscure the remaining and new challenges they experience in their everyday lives.
Engaging in physical activity is one way in which PwH are living more ‘normal’ lives, and is important for joint health and wellness. Paradoxically, advances in in haemophilia care mean that younger PwH may be less aware of their condition, lacking embodied awareness and intuitive understanding of their limitations.
Engaging in physical activity is one way in which PwH are living more ‘normal’ lives, and is important for joint health and wellness. Paradoxically, advances in in haemophilia care mean that younger PwH may be less aware of their condition, lacking embodied awareness and intuitive understanding of their limitations.
DOI: https://doi.org/10.17225/jhp00167 | Journal eISSN: 2055-3390
Language: English
Page range: 150 - 157
Published on: Dec 17, 2020
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2020 Thomas Hughes, Mikkel Brok-Kristensen, Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen, Ana Torres-Ortuño, Nicki Mackett, John Stevens, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.