Patient demographics and summary responses from discussions
| P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | |
|---|---|---|---|---|---|---|---|---|---|---|
| Age | 23 | 24 | 20 | 19 | 17 | 25 | 21 | 24 | 18 | 22 |
| Haemophilia | Severe A | Severe A | Severe A | Severe A | Severe B | Severe B | Mild A (inhibitor) | Moderate B | Severe A | Severe A |
| Prophylaxis | Yes | Yes | Yes | Yes | Yes | Yes | No | No | Yes | Yes |
| Target joints / longstanding injuries? | Hyperextension injury from cricket | Target joints | Ankle bleeds | Target joints / bleeds | Ankle bleeds | No sport injuries, just bleeds | Frequent muscle bleeds (football-related) | Serious knee injury from football at 14 | Trampoline injury 1 year ago | Track injuries, over-training, poor knee stability |
| Level of motivation to exercise | High | High | High | Moderate | Low | Low | High | Moderate | Low | High |
| Gym confident? | Yes | Yes | Fair | No | No | No | Yes | Fair | No | Fair–High |
| Frequency of gym or sport activity (days per week) | 7/7 | 7/7 | 3–4/7 | 1/7 | 0/7 | Tries daily in-home gym | 5/7 | 1/7 | 0/7 | 3–4/7 |
| Preferred activities | Cricket, gym | Martial arts, running, hiking, gym | Gym classes | Low-impact workouts; cross trainer and cycling | Cricket (rarely) | Stationary bike | Football | Walking, tennis, gym | Longboard | Athletics, track and gym |
| Considered a personal trainer? | Once, (to develop a programme) | Introductory sessions | No (too expensive) | No (too expensive) | Would like to (but feels shy and awkward) | No (Finds the concept unnerving) | Has done but no longer feels it is necessary | No (too expensive) | No (too expensive) | No (but likes to work out with others) |
Interview schedule
| QUESTIONS | |
|---|---|
| 1. | General information:
|
| 2. | How active are you? What sort of sports or activities do you take part in? |
| 3. | Have you suffered any sports/activity-related injuries in the past? |
| 4. | Do these injuries still have an effect on your activity level today/currently? |
| 5. | Do you or have you been a member of a gym? How frequently did/do you attend? |
| 6. | Is your haemophilia a consideration when you plan to exercise at the gym or engage in a sport? |
| 7. | Do you feel comfortable and confident using a gym? |
| 8. | Do you think attending a gym regularly would be of particular benefit to people with haemophilia? |
| 9. | Have you ever considered working out with a personal trainer? |
| 10. | Would a personal training programme tailored specifically to individuals with haemophilia, focused on gym-based activities, be of interest to you? |