Figure 1
Participant demographics (N=209)
| CLINICAL DATA | N | % | |
|---|---|---|---|
| Haemophilia type | A | 181 | 86.6% |
| B | 25 | 11.9% | |
| Unknown | 3 | 1.5% | |
| Haemophilia severity | Severe | 148 | 70.8% |
| Moderate | 28 | 13.4% | |
| Mild | 31 | 14.8% | |
| Unknown | 2 | 1.0% | |
| Inhibitor status | Current | 28 | 13.4% |
| Past | 19 | 9.1% | |
| Never | 162 | 77.5% | |
| Patient age (years) | 8–15 | 28 | 13.4% |
| 16–25 | 30 | 14.4% | |
| 26–35 | 45 | 21.5% | |
| 36–55 | 70 | 33.5% | |
| >56 | 36 | 17.2% | |
| Treatment regimen | On-demand | 61 | 29.2% |
| Prophylaxis | 121 | 57.9% | |
| On-demand and prophylaxis | 20 | 9.6% | |
| Unknown | 7 | 3.3% | |
| Reason for visit | Medical review | 115 | 55.2% |
| Physio/nurse review | 53 | 25.3% | |
| Bleed | 29 | 13.8% | |
| Previous bleed/surgery | 12 | 5.7% | |
EQ-5D VAS scores by age group
| AGE GROUP (YEARS) | MEAN VAS SCORE ±SD | MEDIAN (RANGE) |
|---|---|---|
| 8–15 | 0.88±0.19 | 1 (0.42–1.00) |
| 16–25 | 0.74±0.21 | 0.78 (0.38–1.00) |
| 26–35 | 0.81±0.18 | 0.77 (0.50–1.00) |
| 36–55 | 0.56±0.31 | 0.60 (−0.07–1.00) |
| >56 | 0.57±0.26 | 0.58 (0.13–1.00) |
| Overall | 0.66±0.28 | 0.7 (−0.07–1.00) |