“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia Cover

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“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia

The Journal of Haemophilia Practice

Volume 7 (2020): Issue 1 (January 2020)

By: Thomas Hughes , Mikkel Brok-Kristensen , Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen , Ana Torres-Ortuño , Nicki Mackett and John Stevens

Open Access

|Jun 2020

Authors

Thomas Hughes

ReD Associates, Copehagen, Denmark

Mikkel Brok-Kristensen

ReD Associates, Copenhagen, Denmark

Yosha Gargeya

ReD Associates, Copenhagen, Denmark

Anne Mette Worsøe Lottrup

ReD Associates, Copenhagen, Denmark

Ask Bo Larsen

ReD Associates, Copenhagen, Denmark

Ana Torres-Ortuño

Department of Psychiatry and Social Psychology, University of Murcia, Spain

Nicki Mackett

Liverpool Paediatric Haemophilia Centre, Alder Hey Children's NHS Foundation Trust

John Stevens

Swedish Orphan Biovitrum AB (Sobi), Stockholm, Sweden

DOI: https://doi.org/10.17225/jhp00151 | Journal eISSN: 2055-3390

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Language: English

Page range: 25 - 36

Published on: Jun 8, 2020

Published by: Haemnet Ltd

In partnership with: Paradigm Publishing Services

Publication frequency: 1 issue per year

Keywords:

quality of life,

Related subjects:

Basic medical science,

Basic medical science, other,

Clinical medicine,

Clinical medicine, other,

© 2020 Thomas Hughes, Mikkel Brok-Kristensen, Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen, Ana Torres-Ortuño, Nicki Mackett, John Stevens, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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