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Raising awareness globally for women with inherited bleeding disorders: World Federation of Hemophilia Symposium Cover

Raising awareness globally for women with inherited bleeding disorders: World Federation of Hemophilia Symposium

The Journal of Haemophilia Practice
Volume 6 (2019): Issue 2 (January 2019)
By: Luisa Durante,  Martin Sedmina,  Alexandra Vaskova,  Baiba Ziemele and  Anna Tollwé  
Open Access
|Dec 2019

Figures & Tables

Figure 1

Distribution of National Member Organisations (NMOs) of the World Federation of Hemophilia (WFH) at country level. The WFH has implemented initiatives aimed at improving diagnosis and care for women with bleeding disorders around the world, working with NMOs and haemophilia treatment centres. Present in 140 countries, many NMOs are working to increase awareness at a national level – working together is key.
Distribution of National Member Organisations (NMOs) of the World Federation of Hemophilia (WFH) at country level. The WFH has implemented initiatives aimed at improving diagnosis and care for women with bleeding disorders around the world, working with NMOs and haemophilia treatment centres. Present in 140 countries, many NMOs are working to increase awareness at a national level – working together is key.
While global maternal mortality is continuing to fall, issues around pregnancy and childbirth still account for over 300,000 deaths a year globally. Postpartum haemorrhage accounts for around 27% of cases, and it is estimated that bleeding disorders are a factor in around 1% of these (around 830 cases annually)© Shutterstock
While global maternal mortality is continuing to fall, issues around pregnancy and childbirth still account for over 300,000 deaths a year globally. Postpartum haemorrhage accounts for around 27% of cases, and it is estimated that bleeding disorders are a factor in around 1% of these (around 830 cases annually)© Shutterstock
‘Mini Mary’ (left) was used by the Swedish Hemophilia Society’s Women’s Project to convey the impact of living with a bleeding disorder in meetings with school health professionals, while the ‘Menstrual Cycle’ (right), decorated with lingonberry and menstrual cups, stimulated interest at Sweden’s most important political forum
‘Mini Mary’ (left) was used by the Swedish Hemophilia Society’s Women’s Project to convey the impact of living with a bleeding disorder in meetings with school health professionals, while the ‘Menstrual Cycle’ (right), decorated with lingonberry and menstrual cups, stimulated interest at Sweden’s most important political forum
DOI: https://doi.org/10.17225/jhp00140 | Journal eISSN: 2055-3390
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Language: English
Page range: 18 - 23
Published on: Dec 17, 2019
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
Women with bleeding disorders,
von Willebrand disease,
awareness,
haemophilia societies,
Slovakia,
Latvia,
Sweden
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2019 Luisa Durante, Martin Sedmina, Alexandra Vaskova, Baiba Ziemele, Anna Tollwé, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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