Figure 1
![Proportions of women receiving treatment for their bleeding disorder [1]](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/647217bf215d2f6c89dbbb0a/j_jhp00138_fig_001.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKC3522UWU%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T111634Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEDkaDGV1LWNlbnRyYWwtMSJHMEUCIQC%2BQfKW5N5JBG%2FGTUK1Ddg%2BFHMy7CCph8HJvJRHrnwxLQIgOanKEyn9%2Bo1M2Ux%2FTqFXNo9GIguZfSvTxkZ4ODONHxwqvQUIAhACGgw5NjMxMzQyODk5NDAiDNmcz7mmWd%2ByHyWFXSqaBca2WeDmL0ylQGyAwWbHkxwYhnn9qCr3dXNfeV1UIGFwVVXFTW9J0x8l%2FobHjabimJrNoiuSio73%2BzbZwW7rlyRJpDeiY62uzWn7Tmm2A%2FAy2ChDr%2F%2B0u3rkWr3S9CD2%2Fh0cVlBCMPZCpxTK%2BJbHZoB%2F6TREBwts2XG%2BYOs7rW4fuPBfTFW22LKpXf1SxdA2BCkpcI4mat9907otV0ZLop9qCyCiF%2Belg7JccCC4fiHUITG9%2B4EXhCxvU9qYIDmgXFJaGkjfuwLJSxOPZ72u8vIXlpigJlR%2BDsPEy7VaJc3hoLumUK0wfKkKK9GSrx4tjtDEEa3m%2B2rgq9CISYMqLl2JR9DhBdoXf%2Fw%2F88rw%2FkFmW0ZDaff8WZpKafbCny5KHm4VD8uQvc6GMxULMI319N33AtRNeHv68PkBHXtiaCr9CHT30Pu4TL%2BYuEF%2BJHiBUQm3dSXnZ0MUoBA6F3fMcpeYUjXIuObf%2B2FKiY4rdKxDA%2BQ%2BpL6P2vgyhH7Pfmjn7S1H0yO%2B8bHWSHXSObzpezY1aPFowyWgn9QKjiYKfqZvCltLTUko1QQCj2zsNwVJnyL3RCME0E906K5n4fTgMz0hXegLW69MrNNg0dn4jPNN8cL5mS0D9Ge0qw4rVmZxgDRxWeRr0lzCUC3QXGN3rFchBIKCcUAL7P7UEGam5E2xOvgrDRJChfS6EODwMtnGY06xvELPC0KqQSZnXbpkMIKt1JIv1U5do%2BYE0uqEtU2Y%2Fgifb2a7MmdHpD%2BOZt4t8%2FjtryZCOXrayOsc7KoeBucESjdSsIWpBbOuSFJyIII4ck9TM2jnxmdjYlNtxWBOlLmmDka4y0stOlQz192O3eaipUWYvBLMtZnOnfMEF741RWEGFOQ2b0TwqDCer%2B%2FJBjqxAW4NnZodJUXY96PxpqFzqL6n1pL8JT2lQ4LVr8c4pftcXMAU7ouVfyQPSgVc2lwaSxkXUBj21zT50VxNK4fHtlyFFz4Lz3DTQCYNH%2BCq3PGxqXLTIN170tnl0CApuctAJHBWAwXJya3ZyxeI170LibMcV5TVp4DEYWKlKW7Ltn0zkR3ZFEL58x4ngXcc0qizg9%2FuxM3%2F1uhkmatbLC2l3IA6Io3jpmtXzXmvB%2FDe4Ls77w%3D%3D&X-Amz-Signature=e8256241c3cfc237db8cd4b02e744950d8d55d443d7eff48a7c1feb4ef09eb89&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)
Figure 2
![Menorrhagia bleeding scores in women with low von Willebrand factor [4]The bar charts compare the ISTH-BAT and Condensed MCMDM-1 VWD menorrhagia-domain scores among women in the Low von Willebrand in Ireland Cohort (LoVIC) study, based on identical clinical information[4]](https://sciendo-parsed.s3.eu-central-1.amazonaws.com/647217bf215d2f6c89dbbb0a/j_jhp00138_fig_002.jpg?X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Content-Sha256=UNSIGNED-PAYLOAD&X-Amz-Credential=ASIA6AP2G7AKC3522UWU%2F20251212%2Feu-central-1%2Fs3%2Faws4_request&X-Amz-Date=20251212T111634Z&X-Amz-Expires=3600&X-Amz-Security-Token=IQoJb3JpZ2luX2VjEDkaDGV1LWNlbnRyYWwtMSJHMEUCIQC%2BQfKW5N5JBG%2FGTUK1Ddg%2BFHMy7CCph8HJvJRHrnwxLQIgOanKEyn9%2Bo1M2Ux%2FTqFXNo9GIguZfSvTxkZ4ODONHxwqvQUIAhACGgw5NjMxMzQyODk5NDAiDNmcz7mmWd%2ByHyWFXSqaBca2WeDmL0ylQGyAwWbHkxwYhnn9qCr3dXNfeV1UIGFwVVXFTW9J0x8l%2FobHjabimJrNoiuSio73%2BzbZwW7rlyRJpDeiY62uzWn7Tmm2A%2FAy2ChDr%2F%2B0u3rkWr3S9CD2%2Fh0cVlBCMPZCpxTK%2BJbHZoB%2F6TREBwts2XG%2BYOs7rW4fuPBfTFW22LKpXf1SxdA2BCkpcI4mat9907otV0ZLop9qCyCiF%2Belg7JccCC4fiHUITG9%2B4EXhCxvU9qYIDmgXFJaGkjfuwLJSxOPZ72u8vIXlpigJlR%2BDsPEy7VaJc3hoLumUK0wfKkKK9GSrx4tjtDEEa3m%2B2rgq9CISYMqLl2JR9DhBdoXf%2Fw%2F88rw%2FkFmW0ZDaff8WZpKafbCny5KHm4VD8uQvc6GMxULMI319N33AtRNeHv68PkBHXtiaCr9CHT30Pu4TL%2BYuEF%2BJHiBUQm3dSXnZ0MUoBA6F3fMcpeYUjXIuObf%2B2FKiY4rdKxDA%2BQ%2BpL6P2vgyhH7Pfmjn7S1H0yO%2B8bHWSHXSObzpezY1aPFowyWgn9QKjiYKfqZvCltLTUko1QQCj2zsNwVJnyL3RCME0E906K5n4fTgMz0hXegLW69MrNNg0dn4jPNN8cL5mS0D9Ge0qw4rVmZxgDRxWeRr0lzCUC3QXGN3rFchBIKCcUAL7P7UEGam5E2xOvgrDRJChfS6EODwMtnGY06xvELPC0KqQSZnXbpkMIKt1JIv1U5do%2BYE0uqEtU2Y%2Fgifb2a7MmdHpD%2BOZt4t8%2FjtryZCOXrayOsc7KoeBucESjdSsIWpBbOuSFJyIII4ck9TM2jnxmdjYlNtxWBOlLmmDka4y0stOlQz192O3eaipUWYvBLMtZnOnfMEF741RWEGFOQ2b0TwqDCer%2B%2FJBjqxAW4NnZodJUXY96PxpqFzqL6n1pL8JT2lQ4LVr8c4pftcXMAU7ouVfyQPSgVc2lwaSxkXUBj21zT50VxNK4fHtlyFFz4Lz3DTQCYNH%2BCq3PGxqXLTIN170tnl0CApuctAJHBWAwXJya3ZyxeI170LibMcV5TVp4DEYWKlKW7Ltn0zkR3ZFEL58x4ngXcc0qizg9%2FuxM3%2F1uhkmatbLC2l3IA6Io3jpmtXzXmvB%2FDe4Ls77w%3D%3D&X-Amz-Signature=4fca92921ec214d6b2852999d28d9832dd5107808ddcec064d5be59e391fa8b7&X-Amz-SignedHeaders=host&x-amz-checksum-mode=ENABLED&x-id=GetObject)
VWD type among survey respondents (N=198) [1]
| VWD | PERCENTAGE |
|---|---|
| Type 1 | 40% |
| Type 2 | 40% |
| Type 3 | 19% |
| Type 1/2 | 1% |
Platelet disorders among survey respondents (N=63) [1]
| PLATELET DISORDER | PERCENTAGE |
|---|---|
| Immune thrombocytopenic purpura (ITP) | 40% |
| Glanzmann thrombasthenia | 8% |
| Storage pool deficiency | 6% |
| Thrombocytopathy | 3% |
| Bernard-Soulier syndrome | 2% |
| Unknown | 41% |
Types of bleeding disorders among survey respondents [1]
| BLEEDING DISORDER | NUMBER | PERCENTAGE |
|---|---|---|
| Von Willebrand disease | 198 | 27.93% |
| Carrier <40% 74% Haemophilia A; 26% Haemophilia B | 193 | 27.22% |
| Carrier >40% 74% Haemophilia A; 26% Haemophilia B | 169 | 23.84% |
| Platelet disorders | 63 | 8.89% |
| Other factor deficiencies | 37 | 5.22% |
| Combined deficiencies | 31 | 4.37% |
| Unknown | 18 | 2.54% |
Personal statements about the impact of menstruation
| • | “Needed blood transfusion of two units - as a result missed out on a new career” |
| • | “Have to plan bathroom times between appointments. Up to 40 changes a day” |
| • | Had “a bandage and tampon at the same time” and “had a change of clothes at work” |
| • | Severe bleeding for “over ten years resulting hysterectomy at 38” |
| • | “I would regularly change sanitary protection and 20 minutes later have blood flowing down my legs“ |
| • | “I would have to stay in bed for three to four days a month because I was so exhausted” |