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Living with an inhibitor: Results from the Study of Haemophilia Experiences, Results and Opportunities in Children and young adults with long-standing inhibitors (the SO-HEROIC study)
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Van Os SB, Troop NA, Sullivan KR, Hart DP. Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a quantitative study with patients. PLoS One 2017 Jan 19; 12(1): e0169880. doi: 10.1371/journal.pone.0169880.
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Khair K, Holland M, Bladen M, et al; SO-FIT Study Group. Study of physical function in adolescents with haemophilia: the SO-FIT study. Haemophilia 2017 Nov; 23(6): 918-25. doi: 10.1111/ hae.13323.
Poti S, Palareti L, Emiliani F, Rodorigo G, Valdre L. The subjective experience of living with haemophilia in the transition from early adolescence to young adulthood: the effect of age and the therapeutic regimen. International Journal of Adolescence and Youth 2017. doi: 10.1080/02673843.2017.1299017.
Palareti L, Poti S, Cassis F, Emiliani F, Mayino D, Iorio A. Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: results from the HERO qualitative study. Int J Qual Stud Health Well-being 2015; 10:28915. doi: 10.3402/qhw.v10.28915.
Khair K, Gibson F, Meerabeau L. ‘I can always rely on them’: the importance of social support for boys with haemophilia. J Haem Pract 2014; 1(1): 10-16. doi: 10.17225/jhp00005.
Limperg P, Peters M, Gibbons E, et al. Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study. Haemophilia 2016; 22(4): e330-3. doi: 10.1111/hae.12961.
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