Young Disabled People’s Fluctuating Activism: Challenging the Perfect Standard of Activist
By: Pekka Koskinen
References
- Alapuro, Risto. 2010.
‘Associations and Representation in Finland and France.’ In Nordic Associations in a European Perspective, edited by Risto Alapuro and Henrik Stenius, 269–280. Baden-Baden: Nomos. DOI: 10.5771/9783845225944-269 - Alapuro, Risto, and Henrik Stenius, eds. 2010. Nordic Associations in a European Perspective. Baden-Baden: Nomos. DOI: 10.5771/9783845225944
- Atkinson, Paul, and Sara Delamont. 2006. ‘Rescuing Narrative from Qualitative Research.’ Narrative Inquiry 16(1): 164–172. DOI: 10.1075/ni.16.1.21atk
- Bäckgren, Noora. 2015. ʽVammaisjärjestöt loistivat poissaolollaan Helsinki Pride -kulkueessa—“Vammaisten seksuaalisuutta ei myönnetä”’ [Disability organisations were conspicuously absent in the Helsinki Pride March—Disabled people’s sexuality is a taboo]. Helsingin Sanomat, June 27, 2015. Accessed October 7, 2022.
https://www.hs.fi/kaupunki/art-2000002834605.html - Bamberg, Michael. 2004.
‘Considering Counter Narratives.’ In Considering Counter-Narratives: Narrating, Resisting, Making Sense, edited by Michael Bamberg and Molly Andrews, 351–371. Amsterdam and Philadelphia: John Benjamins Publishing Company. DOI: 10.1075/sin.4.43bam - Bamberg, Michael. 2007.
‘Stories: Big or Small. Why Do We Care?’ In Narrative: State of the Art, edited by Michael Bamberg, 165–174. Amsterdam and Philadelphia: John Benjamins Publishing Company. DOI: 10.1075/bct.6.17bam - Berghs, Maria, Tsitsi Chataika, Yayha El-Lahib, and Kudakwashe Bube. 2019.
‘Introducing Disability Activism.’ In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yayha El-Lahib, and Kudakwashe Bube, 3–20. London: Routledge. DOI: 10.4324/9781351165082-1 - Blackmore, Theo, and & Stephen Lee Hodgkins. 2012.
‘Discourses of Disabled Peoples’ Organisations: Foucault, Bourdieu and Future Perspectives.’ In Disability and Social Theory: New Developments and Directions, edited by Dan Goodley, Bill Hughes, and Lennard Davis, 70–90. New York: Palgrave Macmillan. DOI: 10.1057/9781137023001_5 - Bobel, Chris. 2007. ‘“I’m Not an Activist, Though I’ve Done a Lot of It”: Doing Activism, Being Activist and the “Perfect Standard” in a Contemporary Movement.’ Social Movement Studies 6(2): 147–159. DOI: 10.1080/14742830701497277
- Chataika, Tsitsi, Samantha Sibanda, Abraham Mateta, and Bahadur Krishna Sunar. 2019.
‘A Virtual Roundtable: Re/defining Disability Activism with Emerging Global South Disability Activists.’ In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yayha El-Lahib, and Kudakwashe Bube, 21–37. London: Routledge. DOI: 10.4324/9781351165082-2 - Christensen-Strynø, Maria Bee. 2020. ‘Writing Letters to the Dead: Cripping Networked Temporalities on Social Media.’ Scandinavian Journal of Disability Research 22(1): 88–96. DOI: 10.16993/sjdr.627
- Davies, Bronwyn. 2004. ‘Introduction: Poststructuralist Lines of Flight in Australia.’ International Journal of Qualitative Studies in Education 17(1): 1–9. DOI: 10.1080/0951839032000150194
- Davies, Bronwyn, and Rom Harré. 1990. ‘Positioning: The Discursive Production of Selves.’ Journal for the Theory of Social Behaviour 20(1): 43–63. DOI: 10.1111/j.1468-5914.1990.tb00174.x
- Garland-Thomson, Rosemarie. 2002. ‘Integrating Disability, Transforming Feminist Theory.’ NWSA Journal 14(3): 1–32. DOI:
https://www.jstor.org/stable/4316922 - Griffiths, Miro. 2019. These Days Are Ours: Exploring Young Disabled People’s Experiences and Views of the Disabled People’s Movement. Liverpool: John Moores University.
- Griffiths, Miro. 2020.
‘“These Days Are Ours”: Young Disabled People’s Experiences of Activism and Participation in Social Movements.’ In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yayha El-Lahib, and Kudakwashe Bube, 57–70. London: Routledge. - Grue, Jan. 2011. Disability and Discourse Analysis. Farnham: Ashgate.
- Jones, Charlotte, Jen Slater, Sam Cleasby, Gill Kemp, Eleanor Lisney, and Sarah Rennie. 2019.
‘Pissed Off! Disability Activists Fighting for Toilet Access in the UK.’ In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yayha El-Lahib, and Kudakwashe Bube, 219–231. London: Routledge. DOI: 10.4324/9781351165082-18 - Kasnitz, Devva. 2001.
‘Life Event Histories and the US Independent Living Movement.’ In Disability and Life Course: Global Perspectives, edited by Mark Priestley, 67–78. Cambridge: Cambridge University Press. DOI: 10.1017/CBO9780511520914.008 - Kelly, Christine. 2010. ‘Wrestling with Group Identity: Disability Activism and Direct Funding.’ Disability Studies Quarterly 30(3/4). DOI: 10.18061/dsq.v30i3/4.1279
- Kelly, Christine, and Erica Carson. 2012. ‘The Youth Activist Forum: Forging a Rare, Disability-Positive Space That Empowers Youth.’ Journal of Youth Studies 15(8): 1089–1106. DOI: 10.1080/13676261.2012.693595
- Kelly, Christine, and Michael Orsini. 2016. Mobilizing Metaphor: Art, Culture, and Disability Activism in Canada. Vancouver: University of British Columbia Press.
- Laitinen, Hanna. 2018. ‘Empowering New Agents of Civil Society or Fostering Good Citizens? Framing Youth Participation in Finnish Youth Organisations.’ Journal of Civil Society 14(4): 328–345. DOI: 10.1080/17448689.2018.1518770
- Li, Hanlin, Disha Bora, Sagar Salvi, and Erin Brady. 2018.
‘Slacktivists or Activists? Identity Work in the Virtual Disability March.’ CHI 2018, Paper no. 225, 1–13. DOI: 10.1145/3173574.3173799 - Loja, Ema, Emília Maria Costa, Bill Hughes, and Isabel Menezes. 2013. ‘Disability, Embodiment and Ableism: Stories of Resistance.’ Disability & Society 28(2): 190–203. DOI: 10.1080/09687599.2012.705057
- Luhtakallio, Eeva. 2012. Practicing Democracy. Local Activism and Politics in France and Finland. Basingstoke: Palgrave Macmillan.
- McRuer, Robert. 2006. Crip Theory: Cultural Signs of Queerness and Disability. New York and London: New York University Press.
- McRuer, Robert. 2018. Crip Times: Disability, Globalization, and Resistance. New York: New York University Press. DOI: 10.2307/j.ctt1pwt9nj
- Niemi, Anna-Maija, and Reetta Mietola. 2017. ‘Between Hopes and Possibilities. (Special) Educational Paths, Agency and Subjectivities.’ Scandinavian Journal of Disability Research 19(3): 218–229. DOI: 10.1080/15017419.2016.1239588
- Pearson, Charlotte, and Filippo Trevisan. 2015. ‘Disability Activism in the New Media Ecology: Campaigning Strategies in the Digital Era.’ Disability & Society 30(6): 924–940. DOI: 10.1080/09687599.2015.1051516
- Pekkarinen, Elina, and Sami Myllyniemi, eds. 2019. Youth Barometer 2018: Influence on the Edge of Europe. Publications by the Finnish Youth Research Society/Finnish Youth Research Network 216. Accessed March 1, 2022.
https://tietoanuorista.fi/wp-content/uploads/2019/06/Youth-Barometer-2018_Verkkojulkaisu_070619.pdf - Petri, Gabor, Julie Beadle-Brown, and Jill Bradshaw. 2021. ‘“Even a Self-Advocate Needs to Buy Milk”—Economic Barriers to Self-Advocacy in the Autism and Intellectual Disability Movement.’ Scandinavian Journal of Disability Research 23(1): 180–191. DOI: 10.16993/sjdr.738
- Santinele Martino, Alan, and Margaret Campbell. 2019.
‘Exercising Intimate Citizenship Rights and (Re)constructing Sexualities.’ In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yayha El-Lahib, and Kudakwashe Bube, 97–109. London: Routledge. DOI: 10.4324/9781351165082-8 - Sépulchre, Marie. 2019. This Is Not Citizenship: Analysing the Claims of Disability Activists in Sweden. Doctoral thesis. Uppsala: Uppsala Universitet. DOI: 10.4324/9781003030676-4
- Sépulchre, Marie. 2020. ‘Ensuring Equal Citizenship for Disabled People: A Matter of Rights or a Matter of Costs?’ Alter 14(2): 114–127. DOI: 10.1016/j.alter.2020.03.001
- Shah, Sonali, and Mark Priestley. 2011. Disability and social Change: Private Lives and Public Policies. Bristol: Policy Press. DOI: 10.46692/9781847427885
- Shakespeare, Tom. 1996.
‘Disability, Identity and Difference.’ In Exploring the Divide, edited by Colin Barnes and Geof Mercer, 94–113. Leeds: The Disability Press. - Shakespeare, Tom. 2006. Disability Rights and Wrongs. London: Routledge. DOI: 10.4324/9780203640098
- Slater, Jen. 2012. ‘Stepping Outside Normative Neoliberal Discourse: Youth and Disability Meet—The Case of Jody McIntyre.’ Disability & Society 27(5): 723–727. DOI: 10.1080/09687599.2012.686879
- Slater, Jen. 2013.
‘Research with Dis/abled Youth: Taking a Critical Disability, “Critically Young” Positionality.’ In Disabled Children’s Childhood Studies: Critical Approaches in a Global Context, edited by Tillie Curan and Katherine Runswick-Cole, 180–195. New York: Palgrave Macmillan. DOI: 10.1057/9781137008220_14 - Slater, Jen 2015. Youth and Disability: A Challenge to Mr. Reasonable. London and New York: Routledge.
- Slater, Jen, Embla Ágústsdóttir, and Freyja Haraldsdóttir. 2018. ‘Becoming Intelligible Woman: Gender, Disability and Resistance at the Border Zone of Youth.’ Feminism & Psychology 28(3): 409–426. DOI: 10.1177/0959353518769947
- Soldatic, Karen, and Kelley Johnson. 2019.
‘Introduction: Doing It Our Way: Disability, Activism and Advocacy.’ In Global Perspectives on Disability Activism and Advocacy: Our Way, edited by Karen Soldatic and Kelley Johnson, 1–11. London: Routledge. DOI: 10.4324/9781351237499-1 - Tarvainen, Merja. 2019. ‘Ableism and the Life Stories of People with Disabilities.’ Scandinavian Journal of Disability Research 21(1): 291–299. DOI: 10.16993/sjdr.632
- Thomas, Carol. 1999. Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
- Trevisan, Filippo. 2017. ‘Crowd-Sourced Advocacy: Promoting Disability Rights through Online Storytelling.’ Public Relations Inquiry 6(2): 191–208. DOI: 10.1177/2046147X17697785
- Waldschmidt, Anne, Anemari Karačić, Andreas Sturm, and Timo Dins. 2015. ‘“Nothing about Us without Us” Disability Rights Activism in European Countries—A Comparative Analysis.’? Moving the Social: Journal of Social History and the History of Social Movements 53: 103–138. DOI: 10.13154/mts.53.2015.103-138
- Wendell, Susan. 2001. ‘Unhealthy Disabled: Treating Chronic Illnesses as Disabilities.’ Hypatia 16(4): 17–33. DOI: 10.1111/j.1527-2001.2001.tb00751.x
- Wendell, Susan. 2008.
‘Notes from Bed: Learning from Chronic Illness.’ In Dissonant Disabilities: Women with Chronic Illnesses Explore Their Lives, edited by Diane Driedger and Michelle Owens, 209–217. Toronto: Canadian Scholars’ Press Inc/Women’s Press.
DOI: https://doi.org/10.16993/sjdr.937 | Journal eISSN: 1745-3011
Language: English
Page range: 302 - 314
Submitted on: May 18, 2022
Accepted on: Dec 2, 2022
Published on: Dec 28, 2022
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2022 Pekka Koskinen, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.