Skip to main content
Have a personal or library account? Click to login
Taking Power, Telling Stories: Using Collaborative Autoethnography to Explore Transitions to Adulthood with and without Disability Identities Cover

Taking Power, Telling Stories: Using Collaborative Autoethnography to Explore Transitions to Adulthood with and without Disability Identities

Open Access
|Mar 2023

References

  1. Abbott, David, and John Carpenter. 2014. “‘Wasting Precious Time’: Young Men with Duchenne Muscular Dystrophy Negotiate the Transition to Adulthood.” Disability & Society 29(8): 11921205. DOI: 10.1080/09687599.2014.916607
  2. Adams, Tony E., Stacy Holman Jones, and Carolyn Ellis. 2015. Autoethnography. Oxford: Oxford University Press.
  3. Anastasiou, Dimitris, and James M. Kauffman. 2013. “The Social Model of Disability: Dichotomy Between Impairment and Disability.” The Journal of Medicine and Philosophy 39(4): 441459. DOI: 10.1093/jmp/jht026
  4. Australian Institute of Health and Welfare. 2020. People with Disability in Australia. Australian Government.
  5. Beals, Fiona, Joanna Kidman, and Hine Funaki. 2020. “Insider and Outsider Research: Negotiating Self at the Edge of the Emic/Etic Divide.” Qualitative Inquiry 26(6): 593601. DOI: 10.1177/1077800419843950
  6. Berger, Roni. 2015. “Now I See it, Now I Don’t: Researcher’s Position and Reflexivity in Qualitative Research.” Qualitative Research 15(2): 219234. DOI: 10.1177/1468794112468475
  7. Berghs, Maria, Karl Atkin, Chris Hatton, and Carol Thomas. 2019. “Do Disabled People Need a Stronger Social Model: A Social Model of Human Rights?” Disability & Society 34(7–8): 10341039. DOI: 10.1080/09687599.2019.1619239
  8. Braun, Victoria, and Virginia Clarke. 2019. “Reflecting on Reflexive Thematic Analysis.” Qualitative Research in Sport, Exercise and Health 11(4): 589597. DOI: 10.1080/2159676X.2019.1628806
  9. Brown, Lindsey, and Felicity K. Boardman. 2011. “Accessing the Field: Disability and the Research Process.” Social Science & Medicine 72(1): 2330. DOI: 10.1016/j.socscimed.2010.09.050
  10. Carter, Erik W., Kathleen Lynne Lane, Mollye Cooney, Katherine Weir, Colleen K. Moss, and Wendy Machalicek. 2013. “Self-Determination mong Transition-Age Youth with Autism or Intellectual Disability: Parent Perspectives.” Research & Practise for Persons with Severe Disabilities 38(3): 129138. DOI: 10.1177/154079691303800301
  11. Chang, Heewon. 2016. “Autoethnography in Health Research: Growing Pains?” Qualitative Health Research 26(4): 443451. DOI: 10.1177/1049732315627432
  12. Chang, Heewon, Faith Ngunjiri, and Kathy-Ann C. Hernandez. 2016. Collaborative Autoethnography. New York: Routledge. DOI: 10.4324/9781315432137
  13. Davies, Kate, and Katie Butler. 2022. “(Under)Valuing Lived Experience in the Disability Workforce: A Snapshot of Australian Job Recruitment.” Australian Journal of Social Issues, 116. DOI: 10.1002/ajs4.238
  14. Denshire, Sally. 2010. “The Art of ‘Writing in’ the Hospital Under-Life: Auto-Ethnographic Reflections on Subjugated Knowledges in Everyday Practise.” Reflective Practise 11(4): 529544. DOI: 10.1080/14623943.2010.505721
  15. Denshire, Sally. 2014. “On Auto-Ethnography.” Current Sociology 62(6): 831850. DOI: 10.1177/0011392114533339
  16. Enosh, Guy, and Adital Ben-Ari. 2016. “Reflexivity: The Creation of Liminal Spaces—Researchers, Participants, and Research Encounters.” Qualitative Health Research 26(4): 578584. DOI: 10.1177/1049732315587878
  17. Gibson, Barbara E., Bhavnita Mistry, Brett Smith, Karen K. Yoshida, David Abbott, Sally Lindsay, and Yani Hamdani. 2014. “Becoming Men: Gender, Disability, and Transitioning to Adulthood.” Health 18(1): 95114. DOI: 10.1177/1363459313476967
  18. Grue, Jan. 2013. “Rhetorics of Difference: Julia Kristeva and Disability.” Scandinavian Journal of Disability Research 15(1): 4557. DOI: 10.1080/15017419.2012.660705
  19. Hodge, Nick. 2008. “Evaluating Lifeworld as an Emancipatory Methodology.” Disability & Society 23(1): 2940. DOI: 10.1080/09687590701725575
  20. Hudson, Bob. 2006. “Making and Missing Connections: Learning Disability Services and the Transition from Adolescence to Adulthood.” Disability & Society 21(1): 4760. DOI: 10.1080/09687590500375366
  21. Hughes, Sherick A., and Julie L. Pennington. 2017. Autoethnography: Process, Product, and Possibility for Critical Social Research. SAGE Publications. DOI: 10.4135/9781483398594
  22. Janus, Alexander L. 2009. “Disability and the Transition to Adulthood.” Social Forces 88(1): 99120. DOI: 10.1353/sof.0.0248
  23. Jenks, Andrew. 2019. “Crip Theory and the Disabled Identity: Why Disability Politics Needs Impairment.” Disability & Society 34(3): 449469. DOI: 10.1080/09687599.2018.1545116
  24. Kasnitz, Devva. 2020. “The Politics of Disability Performativity: An Autoethnography.” Current Anthropology 61(S21): S16S25. DOI: 10.1086/705782
  25. Koopman, Wilma J., Christopher J. Watling, and Kori A. LaDonna. 2020. “Autoethnography as a Strategy for Engaging in Reflexivity.” Global Qualitative Nursing Research 7: 19. DOI: 10.1177/2333393620970508
  26. Kumar, Smita, and Liz Cavallaro. 2018. “Researcher Self-Care in Emotionally Demanding Research: A Proposed Conceptual Framework.” Qualitative Health Research 28(4): 648658. DOI: 10.1177/1049732317746377
  27. Lapadat, Judith C. 2017. “Ethics in Autoethnography and Collaborative Autoethnography.” Qualitative Inquiry, 23(8): 589603. DOI: 10.1177/1077800417704462
  28. Lee, Joann S. 2014. “An Institutional Framework for the Study of the Transition to Adulthood.” Youth & Society 46(5): 706730. DOI: 10.1177/0044118X12450643
  29. Leonard, Helen, Kitty-Rose Foley, Terri Pikora, Jenny Bourke, Kingsley Wong, Lyn McPherson, Nick Lennox, and Jenny Downs. 2016. “Transition to Adulthood for Young People with Intellectual Disability: The Experiences of Their Families.” European Child & Adolescent Psychiatry 25(12): 13691381. DOI: 10.1007/s00787-016-0853-2
  30. Lourens, Heidi. 2021. “Supercripping the Academy: The Difference Narrative of a Disabled Academic.” Disability & Society, 36(8): 12051220. DOI: 10.1080/09687599.2020.1794798
  31. McDermott, Ray, and Hervé Varenne. 1995. “Culture as Disability.” Anthropology & Education Quarterly 26(3): 324348. DOI: 10.1525/aeq.1995.26.3.05x0936z
  32. Oliver, Mike. 1992. “Changing the Social Relations of Research Production?” Disability, Handicap & Society 7(2): 101114. DOI: 10.1080/02674649266780141
  33. O’Toole, Corbett Joan. 2013. “Disclosing our Relationships to Disabilities: An Invitation for Disability Studies Scholars.” Disability Studies Quarterly 33(2). https://dsq-sds.org/article/view/3708/3226. DOI: 10.18061/dsq.v33i2.3708
  34. Owens, Janine. 2015. “Exploring the Critiques of the Social Model of Disability: The Transformative Possibility of Arendt’s Notion of Power.” Sociology of Health & Illness 37(3): 385403. DOI: 10.1111/1467-9566.12199
  35. Pearson, Charlotte, Nick Watson, Justine Gangneux, and Ida Norberg. 2020. “Transition to Where and to What? Exploring the Experiences of Transitions to Adulthood for Young Disabled People.” Journal of Youth Studies 24(10): 12911307. DOI: 10.1080/13676261.2020.1820972
  36. Pike, Kenneth L. 1967. Language in Relation to a Unified Theory of the Structure of Human Behaviour. Paris: Mouton & Co. DOI: 10.1515/9783111657158
  37. Polczyk, Patrycja. 2012. Autoethnography as an Accessible Method of Research. Forum Oswiatowe, 2(47): 175182.
  38. Price, Margaret. 2013. “Defining Mental Disability.” In The Disability Studies Reader, edited by Lennard J. Davis, 298307. New York: Routledge.
  39. Richards, Rose. 2008. “Writing the Othered Self: Autoethnography and the Problem of Objectification in Writing About Illness and Disability.” Qualitative Health Research 18(12): 17171728. DOI: 10.1177/1049732308325866
  40. Riddell, Sheila. 2009. “Disability, Exclusion and Transition to Adulthood.” In Handbook of Youth and Young Adulthood, edited by Andy Furlong, 97104. New York: Routledge. DOI: 10.4324/9780203881965-17
  41. Rinaldi, Jen. 2013. “Reflexivity in Research: Disability Between the Lines.” Disability Studies Quarterly 33(2): 66. DOI: 10.18061/dsq.v33i2.3711
  42. Roy, Rituparna, and Shinya, Uekusa S. 2020. “Collaborative Autoethnography: ‘Self-Reflection’ as a Timely Alternative Research Approach During the Global Pandemic.” Qualitative Research Journal 20(4): 383392. DOI: 10.1108/QRJ-06-2020-0054
  43. Scott, Anne, and Carolyn Doughty. 2012. “Care, Empowerment and Self-Determination in the Practise of Peer Support.” Disability & Society 27(7): 10111024. DOI: 10.1080/09687599.2012.695578
  44. Sherry, Emma. 2013. “The Vulnerable Researcher: Facing the Challenges of Sensitive Research.” Qualitative Research Journal 13(3): 278288. DOI: 10.1108/QRJ-10-2012-0007
  45. Smith-Chandler, Natalie, and Estelle Swart. 2014. “In Their Own Voices: Methodological Considerations in Narrative Disability Research.” Qualitative Health Research 24(3): 420430. DOI: 10.1177/1049732314523841
  46. Spies, Rebecca, Priscilla Ennals, Rebecca Egan, Philippa Hemus, Regine Gonzales, Kathryn Droppert, Michael Tidhar, et al. 2021. “Introducing the Youth Residential Rehabilitation Service: An Operational and Experiential Overview of a Psychosocial Residential Support Option for Young People Experiencing Mental Health Challenges.” Early Intervention in Psychiatry, August 2021. DOI: 10.1111/eip.13217
  47. Thomas, Carol. 2004. “Rescuing a Social Relational Understanding of Disability.” Scandinavian Journal of Disability Research 6(1): 2236. DOI: 10.1080/15017410409512637
  48. Titchkosky, Tanya. 2020. Disability, Self, and Society. Toronto: University of Toronto Press.
  49. Valentine, Gill. 2003. “Boundary Crossings: Transitions from Childhood to Adulthood.” Children’s Geographies 1(1): 3752. DOI: 10.1080/14733280302186
  50. Wilkinson, Sue, and Celia Kitzinger. 2013. “Representing Our Own Experience: Issues in ‘Insider’ Research.” Psychology of Women Quarterly 37(2): 251255. DOI: 10.1177/0361684313483111
  51. Wood, Bronwyn Elisabeth. 2017. “Youth Studies, Citizenship and Transitions: Towards a New Research Agenda.” Journal of Youth Studies 20(9): 11761190. DOI: 10.1080/13676261.2017.1316363
  52. Wyn, Johanna. 2020. “Introduction.” In Youth and the New Adulthood, edited by Johanna Wyn, Helen Cahill, Dan Woodman, Hernan Cuervo, Carmen Leccardi and Jenny Chesters, 112. Springer. DOI: 10.1007/978-981-15-3365-5
DOI: https://doi.org/10.16993/sjdr.915 | Journal eISSN: 1745-3011
Language: English
Page range: 78 - 91
Submitted on: Mar 3, 2022
Accepted on: Feb 9, 2023
Published on: Mar 23, 2023
In partnership with: Paradigm Publishing Services

© 2023 Lauren Hislop, Kate Davies, Shaylie Pryer, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.