Skip to main content
Have a personal or library account? Click to login
Young Adults with Disabilities and their Transitions to Adult Life and Services: A Sociocultural Analysis of Parents’ Perspectives on their Involvement Cover

Young Adults with Disabilities and their Transitions to Adult Life and Services: A Sociocultural Analysis of Parents’ Perspectives on their Involvement

Open Access
|Mar 2023

References

  1. Aldiss, Susie, Hilary Cass, Judith Ellis, and Faith Gibson. 2016. “‘We Sometimes Hold on to Ours’—Professionals’ Views on Factors that both Delay and Facilitate Transition to Adult Care.” Frontiers in Pediatrics. DOI: 10.3389/fped.2016.00125
  2. Almasri, Nihad A., Mihee An, and Robert J. Palisano. 2018. “Parents’ Perception of Receiving Family-Centered Care for Their Children with Physical Disabilities: A Meta-Analysis.” Physical & Occupational Therapy in Pediatrics 38(4): 427443. DOI: 10.1080/01942638.2017.1337664
  3. Barne- og familiedepartementet (Ministry of Children and Families). 2021. Lov om barn og foreldre (Act relating to Children and Parents). Oslo: Lovdata. 2021. Retrieved from: https://lovdata.no/dokument/NL/lov/1981-04-08-7?q=barneloven.
  4. Bekken, Wenche. 2020. “Negotiating Embodied Knowledge in the Transition to Adulthood: A Social Model of Human Rights.” Disability & Society. DOI: 10.1080/09687599.2020.1816902
  5. Braun, Virginia, and Victoria Clarke. 2013. Succesful Qualitative Research: A Practical Guide for Beginners. Los Angeles: Sage.
  6. Braun, Virginia, and Victoria Clarke. 2019. “Reflecting on Reflexive Thematic Analysis.” Qualitative Research in Sport, Exercise and Health 11(4): 589597. DOI: 10.1080/2159676X.2019.1628806
  7. Braun, Virginia, and Victoria Clarke. 2021. “To Saturate or Not to Saturate? Questioning Data Saturation as a Useful Concept for Thematic Analysis and Sample-Size Rationales.” Qualitative Research in Sport, Exercise and Health 13(2): 201216, DOI: 10.1080/2159676X.2019.1704846
  8. Cepa, Kennan, and Frank F. Furstenberg. 2021. “Reaching Adulthood: Persistent Beliefs about the Importance and Timing of Adult Milestones.” Journal of family issues 42(1): 2757. DOI: 10.1177/0192513X20918612
  9. Daly, Kerry. 2013. “Prolonged Parenting: Extending the Limits of Active Parenting.” Transition 43(2): 59. Retrieved from: https://vanierinstitute.ca/wp-content/uploads/2015/10/Transition_43-2_EN.pdf.
  10. Faircloth, Charlotte. 2014. “Intensive Parenting and the Expansion of Parenting.” In Parenting Culture Studies, edited by Ellie Lee, Jennie Bristow, Charlotte Faircloth, and Jan Macvarish, 2550. London: Palgrave Macmillan. DOI: 10.1057/9781137304612_2
  11. Goodley, Dan. 2017. Disability Studies. An Interdisciplinary Introduction. London: Sage.
  12. Gray, Caroline. 2009. “Narratives of Disability and the Movement from Deficiency to Difference.” Cultural Sociology 3(2): 317332. DOI: 10.1177/1749975509105537
  13. Halvorsen, Rune, and Bjørn Hvinden. 2018. “Youth, Diversity and Employment in Times of Crisis and Economic Restructuring—an Introduction.” In Youth, Diversity and Employment: Comparative Perspectives on Labour Market Policies, edited by Rune Halvorsen and Bjørn Hvinden, 132. Cheltenham: Edward Elgar Publishing. DOI: 10.4337/9781783476008
  14. Hamdani, Yani, Bhavnita Mistry, and Barbara E. Gibson. 2015. “Transitioning to Adulthood with a Progressive Condition: Best Practice Assumptions and Individual Experiences of Young Men with Duchenne Muscular Dystrophy.” Disability and Rehabilitation 37(13): 11441151. DOI: 10.3109/09638288.2014.956187
  15. Helse- og omsorgsdepartementet (Ministry of Health and Caring Services). 2022. Lov om pasient- og brukerrettigheter (The Norwegian Patients and User Rights Act). Oslo: Lovdata. 2022. Retrieved from: https://lovdata.no/dokument/NL/lov/1999-07-02-63?q=pasient-%20og%20brukerrett.
  16. Helse- og omsorgsdepartementet. 2001. Fra Bruker til Borger: En Strategi for Nedbygging av Funksjonshemmende Barrierer [From User to Citizen: On Dismantling Disabling Barriers]. Norwegian Official Report NOU 2001: 22. Oslo.
  17. Højholt, Charlotte. 2020. “Conflictuality and Situated Inequality in Children’s School Life.” Children’s Geographics 20(3): 297310. DOI: 10.1080/14733285.2020.1817335
  18. James, Allison. 2009. “Agency.” In The Palgrave Handbook of Childhood Studies, edited by Jens Qvortrup, William A. Corsaro, and Michael-Sebastian Honig, 3445. London: Palgrave-Macmillan.
  19. Link, Bruce, and Jo Phelan. 2001. “Conceptualizing Stigma.” Annual Review of Sociology 27(1): 363385. DOI: 10.1146/annurev.soc.27.1.363
  20. McDowell, Linda. 2002. “Transitions to Work: Masculine Identities, Youth Inequality and Labour Market Change.” Gender, Place and Culture: A Journal of Feminist Geography 9(1): 3959. DOI: 10.1080/09663690120115038
  21. Ramstad, Kjersti, Reidun Jahnsen, and Trond H. Diseth. 2015. “Ungdom med Cerebral Parese og Deres Kontakt med Fastlege og Habiliteringstjeneste.” Tidsskrift for den Norske Legeforening 135(5): 42933. DOI: 10.4045/tidsskr.14.0434
  22. Rogoff, Barbara. 2003. The Cultural Nature of Human Development. Oxford: Oxford University Press.
  23. Rogoff, Barbara. 1995. “Observing Sociocultural Activity on Three Planes: Participatory Appropriation, Guided Participation, and Apprenticeship.” In Sociocultural studies of mind, edited by James V. Wertsch, Pablo Del Rio, and Amelia Alvarez, 139164. Cambridge: Cambridge University Press. DOI: 10.1017/CBO9781139174299.008
  24. Ryan, Christian, and Elizabeth Quinlan. 2018. “Whoever Shouts the Loudest: Listening to Parents of Children with Disabilities.” Journal of Applied Research in Intellectual Disabilities 31(S2): 203214. DOI: 10.1111/jar.12354
  25. Shakespeare, Tom. 1994. “Cultural Representation of Disabled People: Dustbins for Disavowal?” Disability & Society 9(3): 283299. DOI: 10.1080/09687599466780341
  26. Skagestad, Linn Julie, Sigrid Østensjø, and Oddbjørg Skjær Ulvik. 2021. “Collaborations between Young People Living with Bodily Impairments and their Multiprofessional Teams: The Relational Dynamics of Participation and Power.” Children & Society 35(5): 633647. DOI: 10.1111/chso.12419
  27. Traustadóttir, Rannveig, James Rice, and Kristjana Jokumsen. 2018. “Social Networks, Recruitment Strategies and the Ambiguities of Employment Activation Programmes: Perspectives of Employers and Vulnerable Youth.” In Youth, Diversity and Employment: Comparative Perspectives on Labour Market Policies, edited by Rune Halvorsen and Bjørn Hvinden, 178198. Cheltenham: Edward Elgar Publishing. DOI: 10.4337/9781783476008.00013
  28. Ungdata. 2022. Nasjonale Resultater [National survey results]. NOVA [Norwegian Social Research] report 5/22.
  29. United Nations. 2006. Convention on the Rights of Persons with Disabilities. Retrieved from: http://www.un.org/esa/socdev/enable/rights/convtexte.htm.
  30. Valentine, Gill. 2003. “Boundary Crossings: Transitions from Childhood to Adulthood.” Children’s Geographies 1(1): 3752. DOI: 10.1080/14733280302186
  31. Van der Kaap-Deeder, Jolene, Maarten Vansteenkiste, Bart Soenens, Tom Loeys, Elien Mabbe, and Rafael Gargurevich. 2015. “Autonomy-Supportive Parenting and Autonomy-Supportive Sibling Interactions: The Role of Mothers’ and Siblings’ Psychological Need Satisfaction.” Personality and Social Psychology Bulletin 41(11): 15901604. DOI: 10.1177/0146167215602225
  32. Wright, Alice E., James Robb, and Morven C. Shearer. 2016. “Transition from Paediatric to Adult Health Services in Scotland for Young People with Cerebral Palsy.” Journal of Child Health Care 20(2): 205213. DOI: 10.1177/1367493514564632
  33. Ytterhus, Borgunn, Snæfrídur Egilson, Rannveig Traustadóttir, and Berit Berg. 2015. “Perspectives on Childhood and Disability.” In Childhood and disability in the Nordic countries: Being, Becoming, Belonging, Studies in Childhood and Youth, edited by Rannveig Traustadóttir, Borgunn Ytterhus, Snæfrídur Egilson, and Berit Berg, 2745. Basingstoke: Palgrave Macmillan. DOI: 10.1057/9781137032645_2
DOI: https://doi.org/10.16993/sjdr.890 | Journal eISSN: 1745-3011
Language: English
Page range: 106 - 118
Submitted on: Dec 12, 2021
Accepted on: Feb 8, 2023
Published on: Mar 28, 2023
In partnership with: Paradigm Publishing Services

© 2023 Linn Julie Skagestad, Sigrid Østensjø, Oddbjørg Skjær Ulvik, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.