
Young Adults with Disabilities and their Transitions to Adult Life and Services: A Sociocultural Analysis of Parents’ Perspectives on their Involvement
References
- Aldiss, Susie, Hilary Cass, Judith Ellis, and Faith Gibson. 2016. “‘We Sometimes Hold on to Ours’—Professionals’ Views on Factors that both Delay and Facilitate Transition to Adult Care.” Frontiers in Pediatrics. DOI: 10.3389/fped.2016.00125
- Almasri, Nihad A., Mihee An, and Robert J. Palisano. 2018. “Parents’ Perception of Receiving Family-Centered Care for Their Children with Physical Disabilities: A Meta-Analysis.” Physical & Occupational Therapy in Pediatrics 38(4): 427–443. DOI: 10.1080/01942638.2017.1337664
- Barne- og familiedepartementet (Ministry of Children and Families). 2021.
Lov om barn og foreldre (Act relating to Children and Parents) . Oslo: Lovdata. 2021. Retrieved from:https://lovdata.no/dokument/NL/lov/1981-04-08-7?q=barneloven . - Bekken, Wenche. 2020. “Negotiating Embodied Knowledge in the Transition to Adulthood: A Social Model of Human Rights.” Disability & Society. DOI: 10.1080/09687599.2020.1816902
- Braun, Virginia, and Victoria Clarke. 2013. Succesful Qualitative Research: A Practical Guide for Beginners. Los Angeles: Sage.
- Braun, Virginia, and Victoria Clarke. 2019. “Reflecting on Reflexive Thematic Analysis.” Qualitative Research in Sport, Exercise and Health 11(4): 589–597. DOI: 10.1080/2159676X.2019.1628806
- Braun, Virginia, and Victoria Clarke. 2021. “To Saturate or Not to Saturate? Questioning Data Saturation as a Useful Concept for Thematic Analysis and Sample-Size Rationales.” Qualitative Research in Sport, Exercise and Health 13(2): 201–216, DOI: 10.1080/2159676X.2019.1704846
- Cepa, Kennan, and Frank F. Furstenberg. 2021. “Reaching Adulthood: Persistent Beliefs about the Importance and Timing of Adult Milestones.” Journal of family issues 42(1): 27–57. DOI: 10.1177/0192513X20918612
- Daly, Kerry. 2013. “Prolonged Parenting: Extending the Limits of Active Parenting.” Transition 43(2): 5–9. Retrieved from:
https://vanierinstitute.ca/wp-content/uploads/2015/10/Transition_43-2_EN.pdf . - Faircloth, Charlotte. 2014.
“Intensive Parenting and the Expansion of Parenting.” In Parenting Culture Studies, edited by Ellie Lee, Jennie Bristow, Charlotte Faircloth, and Jan Macvarish, 25–50. London: Palgrave Macmillan. DOI: 10.1057/9781137304612_2 - Goodley, Dan. 2017. Disability Studies. An Interdisciplinary Introduction. London: Sage.
- Gray, Caroline. 2009. “Narratives of Disability and the Movement from Deficiency to Difference.” Cultural Sociology 3(2): 317–332. DOI: 10.1177/1749975509105537
- Halvorsen, Rune, and Bjørn Hvinden. 2018.
“Youth, Diversity and Employment in Times of Crisis and Economic Restructuring—an Introduction.” In Youth, Diversity and Employment: Comparative Perspectives on Labour Market Policies, edited by Rune Halvorsen and Bjørn Hvinden, 1–32. Cheltenham: Edward Elgar Publishing. DOI: 10.4337/9781783476008 - Hamdani, Yani, Bhavnita Mistry, and Barbara E. Gibson. 2015. “Transitioning to Adulthood with a Progressive Condition: Best Practice Assumptions and Individual Experiences of Young Men with Duchenne Muscular Dystrophy.” Disability and Rehabilitation 37(13): 1144–1151. DOI: 10.3109/09638288.2014.956187
- Helse- og omsorgsdepartementet (Ministry of Health and Caring Services). 2022.
Lov om pasient- og brukerrettigheter (The Norwegian Patients and User Rights Act) . Oslo: Lovdata. 2022. Retrieved from:https://lovdata.no/dokument/NL/lov/1999-07-02-63?q=pasient-%20og%20brukerrett . - Helse- og omsorgsdepartementet. 2001.
Fra Bruker til Borger: En Strategi for Nedbygging av Funksjonshemmende Barrierer [From User to Citizen: On Dismantling Disabling Barriers] . Norwegian Official Report NOU 2001: 22. Oslo. - Højholt, Charlotte. 2020. “Conflictuality and Situated Inequality in Children’s School Life.” Children’s Geographics 20(3): 297–310. DOI: 10.1080/14733285.2020.1817335
- James, Allison. 2009.
“Agency.” In The Palgrave Handbook of Childhood Studies, edited by Jens Qvortrup, William A. Corsaro, and Michael-Sebastian Honig, 34–45. London: Palgrave-Macmillan. - Link, Bruce, and Jo Phelan. 2001. “Conceptualizing Stigma.” Annual Review of Sociology 27(1): 363–385. DOI: 10.1146/annurev.soc.27.1.363
- McDowell, Linda. 2002. “Transitions to Work: Masculine Identities, Youth Inequality and Labour Market Change.” Gender, Place and Culture: A Journal of Feminist Geography 9(1): 39–59. DOI: 10.1080/09663690120115038
- Ramstad, Kjersti, Reidun Jahnsen, and Trond H. Diseth. 2015. “Ungdom med Cerebral Parese og Deres Kontakt med Fastlege og Habiliteringstjeneste.” Tidsskrift for den Norske Legeforening 135(5): 429–33. DOI: 10.4045/tidsskr.14.0434
- Rogoff, Barbara. 2003. The Cultural Nature of Human Development. Oxford: Oxford University Press.
- Rogoff, Barbara. 1995.
“Observing Sociocultural Activity on Three Planes: Participatory Appropriation, Guided Participation, and Apprenticeship.” In Sociocultural studies of mind, edited by James V. Wertsch, Pablo Del Rio, and Amelia Alvarez, 139–164. Cambridge: Cambridge University Press. DOI: 10.1017/CBO9781139174299.008 - Ryan, Christian, and Elizabeth Quinlan. 2018. “Whoever Shouts the Loudest: Listening to Parents of Children with Disabilities.” Journal of Applied Research in Intellectual Disabilities 31(S2): 203–214. DOI: 10.1111/jar.12354
- Shakespeare, Tom. 1994. “Cultural Representation of Disabled People: Dustbins for Disavowal?” Disability & Society 9(3): 283–299. DOI: 10.1080/09687599466780341
- Skagestad, Linn Julie, Sigrid Østensjø, and Oddbjørg Skjær Ulvik. 2021. “Collaborations between Young People Living with Bodily Impairments and their Multiprofessional Teams: The Relational Dynamics of Participation and Power.” Children & Society 35(5): 633–647. DOI: 10.1111/chso.12419
- Traustadóttir, Rannveig, James Rice, and Kristjana Jokumsen. 2018.
“Social Networks, Recruitment Strategies and the Ambiguities of Employment Activation Programmes: Perspectives of Employers and Vulnerable Youth.” In Youth, Diversity and Employment: Comparative Perspectives on Labour Market Policies, edited by Rune Halvorsen and Bjørn Hvinden, 178–198. Cheltenham: Edward Elgar Publishing. DOI: 10.4337/9781783476008.00013 - Ungdata. 2022.
Nasjonale Resultater [National survey results] . NOVA [Norwegian Social Research] report 5/22. - United Nations. 2006. Convention on the Rights of Persons with Disabilities. Retrieved from:
http://www.un.org/esa/socdev/enable/rights/convtexte.htm . - Valentine, Gill. 2003. “Boundary Crossings: Transitions from Childhood to Adulthood.” Children’s Geographies 1(1): 37–52. DOI: 10.1080/14733280302186
- Van der Kaap-Deeder, Jolene, Maarten Vansteenkiste, Bart Soenens, Tom Loeys, Elien Mabbe, and Rafael Gargurevich. 2015. “Autonomy-Supportive Parenting and Autonomy-Supportive Sibling Interactions: The Role of Mothers’ and Siblings’ Psychological Need Satisfaction.” Personality and Social Psychology Bulletin 41(11): 1590–1604. DOI: 10.1177/0146167215602225
- Wright, Alice E., James Robb, and Morven C. Shearer. 2016. “Transition from Paediatric to Adult Health Services in Scotland for Young People with Cerebral Palsy.” Journal of Child Health Care 20(2): 205–213. DOI: 10.1177/1367493514564632
- Ytterhus, Borgunn, Snæfrídur Egilson, Rannveig Traustadóttir, and Berit Berg. 2015.
“Perspectives on Childhood and Disability.” In Childhood and disability in the Nordic countries: Being, Becoming, Belonging, Studies in Childhood and Youth, edited by Rannveig Traustadóttir, Borgunn Ytterhus, Snæfrídur Egilson, and Berit Berg, 27–45. Basingstoke: Palgrave Macmillan. DOI: 10.1057/9781137032645_2
DOI: https://doi.org/10.16993/sjdr.890 | Journal eISSN: 1745-3011
Language: English
Page range: 106 - 118
Submitted on: Dec 12, 2021
Accepted on: Feb 8, 2023
Published on: Mar 28, 2023
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2023 Linn Julie Skagestad, Sigrid Østensjø, Oddbjørg Skjær Ulvik, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.