
‘I Dare to Be Myself.’ The Value of Peer Communities in Adapted Physical Activity Interventions for Young People and Adults with Cerebral Palsy
By: Mie Maar Andersen and Helle Winther
References
- Aggerholm, Kenneth and Kristian Moltke Martiny 2017. “Yes We Can! A Phenomenological Study of a Sports Camp for Young People with Cerebral Palsy.” Adapted Physical Activity Quarterly. 34(4): 362–381. DOI: 10.1123/apaq.2015-0135
- Andersen, Mie Maar. 2016. Camp-håndbog: Praksis-teoretisk håndbog for fagpersoner – En aktivitetsintervention for målgrupper med udfordringer. Elsass Fonden.
- Aisen, Mindy Lipson, Danielle Kerkovich, Joelle Mast, Sara Mulroy, Tishya Wren, Robert M. Kay and Susan A. Rethlefsen. 2011. “Cerebral Palsy: Clinical Care and Neurological Rehabilitation.” Lancet Neurology, 10: 844–852. DOI: 10.1016/S1474-4422(11)70176-4
- Ashton-Shaeffer, Candace, Heather Gibson, Cari Autry and Carolyn Hanson. 2001. “Meaning of Sport to Adults with Physical Disabilities: A Disability Sport Camp Experience.” Sociology of Sport Journal, 18: 95–114. DOI: 10.1123/ssj.18.1.95
- Bandura, Albert. 1977. Self-efficacy: Toward a unifying theory of behavioral change. Psychological review, 84(2): 191–215. DOI: 10.1037/0033-295X.84.2.191
- Bandura, Albert. 1982. “Self-Efficacy Mechanism in Human Agency.” American Psychologist, 37(2): 122–147. DOI: 10.1037/0003-066X.37.2.122
- Bandura, Albert. 1994.
Self-efficacy . Ramachaudran, Vilayanur S. (Ed.), Encyclopedia of human behavior. Vol. 4, pp. 71–81. New York: Academic Press. - Bandura, Albert. 1997. Self-Efficacy, the Exercise of Control, W. H. Freeman and Company New York.
- Barnes, Michael P. 2001.
An overview of the clinical management of spasticity . In Barnes, M. P. & Johnson, G. R. (eds.), Upper Motor Neuron Syndrome and Spasticity: Clinical Management and Neurophysiology. Cambridge: Cambridge University Press, 1–11. DOI: 10.1017/CBO9780511544866.002 - Borge, Anne Inge Helmen. 2010. Resiliens: Risiko og sunn utvikling. (2) Gyldendal Norsk Forlag.
- Braun, Virginia and Victoria Clarke. 2006. “Using thematic analysis in psychology.” Qualitative Research in Psychology, 3: 77–101. DOI: 10.1191/1478088706qp063oa
- Colver, Allan, Ute Thyen, Catherine Arnaud, Eva Beckung, Jerome Fauconnier, Marco Marcelli, Vicki McManus, Susan I Michelsen, Jackie Parkes, Kathryn Parkinson and Heather O Dickinson. 2012. “Association Between Participation in Life Situations of Children with Cerebral Palsy and Their Physical, Social, and Attitudinal Environment: A Cross-Sectional Multicenter European Study.” Archives of Physical Medicine and Rehabilitation, 93: 2154–64. DOI: 10.1016/j.apmr.2012.07.011
- Dawson, Shay and Kendra Liddicoat. 2009. “‘Camp Gives Me Hope’: Exploring the Therapeutic Use of Community for Adults with Cerebral Palsy.” Therapeutic Recreation Journal, 43(4): 9–24
- Devine, Mary Ann and Shay Dawson. 2010. “The Effect of a Residential Camp Experience on Self Esteem and Social Acceptance of Youth with Craniofacial Differences.” Therapeutic Recreation Journal, 44(2): 105–120
- Goffman, Erving. 2009. Stigma: Om afvigerens sociale identitet. København: Gyldendal.
- Goodwin, Donna and Kerri Staples. 2005. “The Meaning of Summer Camp Experiences to Youths with Disabilities.” Adapted Physical Activity Quarterly, 22(2): 160–178. DOI: 10.1123/apaq.22.2.160
- Goodwin, Donna, Lauren Lieberman, Keith Johnston and Jennifer Leo. 2011. “Connecting Through Summer Camp: Youth with Visual Impairments Find a Sense of Community.” Adapted Physical Activity Quarterly, 28(1): 40–55. DOI: 10.1123/apaq.28.1.40
- ICF (The International Classification of Functioning). 2001. Disability and Health. Geneva: World Health Organization.
- Kvale, Steiner and Svend Brinkmann. 2009. InterView. Introduktion til et håndværk. 2. udgave. Hans Reitzels Forlag.
- Martiny, Kristian Moltke. 2015.
“Embodying Investigations of Cerebral Palsy: A Case of Open Cognitive Science.” Doctoral Dissertation. University of Copenhagen, Copenhagen. - McAvoy, Leo, Tom Holman, Marni Goldenberg and David Klenosky. 2006. “Wilderness and Persons with Disabilities Transferring the Benefits to Everyday Life.” International Journal of Wilderness, 12(2): 23–35.
- Mortari, Luigina and Massimiliano Tarozzi. 2010.
“Phenomenology as Philosophy of Research: An Introductory Essay.” In Mortari, L., Tarozzi, M. (eds.) Phenomenology and Human Science Research Today, Zeta Books. - Novak, Iona, Sarah McIntyre, Catherine Morgan, Lanie Campbell, Leigha Dark, Natalie Morton, Elise Stumbles, Salli-Ann Wilson and Shona Goldsmith. 2013. “A Systematic Review of Interventions for Children with Cerebral Palsy: State of the Evidence.” Developmental Medicine and Child Neurology, 55: 885–910. DOI: 10.1111/dmcn.12246
- Nyquist, Astrid, Reidun Birgitta Jahnsen, Thomas Moser and Anna Ullenhag. 2019. “The Coolest I Know – A Qualitative Study Exploring the Participation Experiences of Children with Disabilities in an Adapted Physical Activities Program.” Disability Rehabilitation, 1–9. DOI: 10.1080/09638288.2019.1573937
- Palisano, Robert, Peter Rosenbaum, Doreen Bartlett and Michael Livingston. 2008. “Content Validity of the Expanded and Revised Gross Motor Function Classification System.” Developmental Medicine and Child Neurology, 50: 744–750. DOI: 10.1111/j.1469-8749.2008.03089.x
- Powrie, Benita, Niina Kolehmainen, Merrill Turpin, Jenny Ziviani and Jodie Copley. 2015. “The Meaning of Leisure for Children and Young People with Physical Disabilities: A Systematic Evidence Synthesis.” Developmental Medicine & Child Neurology, 57: 993–1010. DOI: 10.1111/dmcn.12788
- Rosenbaum, Peter, Nigel Paneth, Alan Leviton, Murray Goldstein, Martin Bax, Diane Damiano, Bernard Dan and Bo Jacobsson. 2007. “A Report: The Definition and Classification of Cerebral Palsy April 2006.” Developmental Medicine and Child Neurology, 109(suppl 109): 8–14.
- Smith, Brett and Andrew Sparkes. 2018.
“Interviews: Qualitative Interviewing in the Sport and Exerci se Sciences.” In Routledge Handbook of Qualitative Research in Sport and Exercise, edited by B. Smith and A.C. Sparkes. London and New York: Routledge, 103–123. - Steinhardt, Friedolin, Anna Ullenhag, Reidun Jahnsen and Anne-Stine Dolva, A-S. 2019. “Perceived Facilitators and Barriers for Participation in Leisure Activities in Children with Disabilities: Perspectives of Children, Parents and Professionals.” Scandinavian Journal of Occupational Therapy, 28(2): 121–135. DOI: 10.1080/11038128.2019.1703037
- Stelter, Reinhard. 2012. Tredje generations coaching – en guide til narrativ-samskabende teori og praksis. Dansk Psykologisk Forlag.
- van Manen, Max. 2016. Phenomenology of Practise. Meaning- Giving Methods in Phenomenological Research and Writing. London and New York: Routledge. DOI: 10.4324/9781315422657
- Wang, Hai-Jing and Qian Yan. 2018. “A Review of the Treatment of Cerebral Palsy in Children.” TMR Non-Drug Therapy. 1(4): 151–158.
DOI: https://doi.org/10.16993/sjdr.806 | Journal eISSN: 1745-3011
Language: English
Page range: 1 - 14
Submitted on: Mar 2, 2021
Accepted on: Dec 9, 2022
Published on: Jan 11, 2023
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2023 Mie Maar Andersen, Helle Winther, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.