Skip to main content
Have a personal or library account? Click to login
Whose Voices Matter? Use, Misuse and Non-Use of Augmentative and Alternative Communication (AAC) Among Severely Disabled Children in Small Group Homes Cover

Whose Voices Matter? Use, Misuse and Non-Use of Augmentative and Alternative Communication (AAC) Among Severely Disabled Children in Small Group Homes

Open Access
|Apr 2021

References

  1. ASHA. 2020, Accessed May 5. https://www.asha.org/Practice-Portal/Professional-Issues/Augmentative-and-Alternative-Communication/.
  2. Bigby, Christine, Marie Knox, Julie Beadle-Brown & Emma Bould. 2014. “Identifying Good Group Homes: Qualitative Indicators Using a Quality of Life Framework.” Intellectual and Developmental Disabilities. 52(5), 348366. DOI: 10.1352/1934-9556-52.5.348
  3. Buscatto, Marie. 2016. “Practicing reflexivity in ethnography.” Qualitative research, ed. by David Silverman, 137151. London: SAGE Publications Ltd.
  4. Cocks, Allison J. 2006. “The Ethical Maze: Finding an inclusive path towards gaining children’s agreement to research participation.” Childhood 13(2), 247266. DOI: 10.1177/0907568206062942
  5. Cocks, Allison J. 2008. “Researching the Lives of Disabled Children. The Process of Participant Observation in Seeking Inclusivity.” Qualitative social work 7(2): 163180. DOI: 10.1177/1473325008089628
  6. Doak, Lauran. 2019. “‘But I’d rather have raisins!’: Exploring a hybridized approach to multimodal interaction in the case of a minimally verbal child with autism.” Qualitative Research 19(1) 3054. DOI: 10.1177/1468794117752115
  7. Evensen, Kristin W., Standal, Øyvind F. & Ytterhus, Borgunn. 2017. Golden Paper, a Chain and a Bag: A Phenomenology of Queer Things in a Special Needs Education Unit. Phenomenology & Practice 11(2), 6069. DOI: 10.29173/pandpr29351
  8. Franklin, Anita & Sarah Goff. 2019. “Listening and facilitating all forms of communication: Disabled children and young people in residential care in England.” Child Care in Practice, 25(1), 99111. DOI: 10.1080/13575279.2018.1521383
  9. Fylkesnes, Ingunn. 2020. Communicative work: Establishing communication by severely disabled children in small group homes. Child Care in Practice. DOI: 10.1080/13575279.2020.1812532
  10. Goffman, Erving. 1957. “The characteristics of total institutions,” at the Symposium of Preventive and Social Psychiatry 15–17 April 1957 at the Walter Reed Army Medical Centre, Washington DC. 21 November 21, 2020. https://books.google.no/books?hl=no&lr=&id=INt6PRIhH8wC&oi=fnd&pg=PA43&dq=total+institutions+sociology&ots=iLRcFuh2Iv&sig=tRK_z27eXEM8gkUZ4elM2rlGNqM&redir_esc=y#v=onepage&q=total%20institutions%20sociology&f=false.
  11. Goode, David. 1994. “A world without words: The social construction of children born deaf and blind.” Philadelphia: Temple University Press.
  12. Health and Care Department. 2011. “Health and Care Act” (Lov om helse- og omsorgstjenester i kommunene). Oslo: Helse og omsorgsdepartementet.
  13. Iacono, Teresa. 2019. “The role of AAC for children with intellectual disability.” Intellectual Disability Australasia, 40(1) 58.
  14. ISAAC, https://www.isaac-online.org/english/what-is-aac/ Accessed May 6, 2020.
  15. Jessen, Jorunn T. 2014. “Kommunale avlastningstilbud. Fra tradisjonelle tjenester til fleksible løsninger”. [Municipal respite care. From traditional services to flexible solutions.] Oslo: NOVA Rapport 12/14. DOI: 10.7577/nova/rapporter/2014/12
  16. Maxwell, Gregory, Ines Alves & Mads Granlund. 2012. “Participation and environmental aspects in education and the ICF and the ICF-CY: Findings from a systematic literature review.” Developmental Neurorehabilitation. 15(1), 6378. DOI: 10.3109/17518423.2011.633108
  17. McEvoy, Olivia & Martine Smith. 2011. Listen to our voices: Hearing children and young people living in the care of the state. Dublin: Department for Children and Youth Affairs. http://hdl.handle.net/10147/139489. DOI: 10.1037/e530822013-001
  18. Merleau-Ponty, Maurice. 2002. Phenomenology of Perception. London: Routledge. DOI: 10.4324/9780203994610
  19. Morris, Jenny. 1997. “Gone missing? Disabled children living away from their families.” Disability and Society, 12(2), 241258. DOI: 10.1080/09687599727353
  20. Morris, Jenny. 1998. “Still Missing”. London: Who Cares?Trust.
  21. Østvik, Jørn, Balandin, Susan & Ytterhus, Borgunn. 2018. Interactional facilitators and barriers to social relationships between students who use AAC and fellow students. Society, Health and Vulnerability 9(1), 214. DOI: 10.1080/20021518.2018.1438692
  22. Rapley, Tim. 2016. “Some pragmatics of qualitative data research.” Qualitative Research, etd. by David Silverman, 331347. London: SAGE Publications Ltd.
  23. Reed, Isaac A. 2011. Interpretation and social knowledge: On the use of theory in the human sciences. Chicago: University of Chicago Press.
  24. Rombouts, Ellen, Bea Maes & Inge Zink. 2017. “Beliefs and habits: Staff experiences with KWS in special schools and group residential homes.” Augmentative and Alternative Communication. 33(2) 8796. DOI: 10.1080/07434618.2017.1301550
  25. Schütz, Alfred. 1999. Den sociala världens phenomenology. [The social world’s phenomenology]. Gøteborg: Daidalos AB
  26. Sigurdsen, Randi. 2011. “Plassering av barn i barnebolig – krenkelse av barns menneskerettigheter?” [Placement of children in children’s homes – a violation of children’s human rights?] Tidsskrift for familierett, arverett og barnevernsrettslige spørsmål, 9(3) 198220.
  27. Simmons, Ben & Debbie Watson. 2015. “From individualism to co-construction and back again: Rethinking research methodology for children with profound and multiple learning disabilities.” Child Care in Practice, 21(1), 5066. DOI: 10.1080/13575279.2014.976179
  28. Smith, Martine. 2018. “Accessing voice of children using AAC“. In Seen and Heard: Exploring Participation, Engagement and Voice for Children with Disabilities, ed. by Miriam Twomey, Claire Carroll, 171190. Oxford: Peter Lang AG.
  29. Söderström, Sylvia. 2016. ”Socio-material practices in classrooms that lead to the social participation or social isolation of disabled pupils.” Scandinavian Journal of Disability Research 18(2) 95105. DOI: 10.1080/15017419.2014.972449
  30. Stalker, Kirsten. 2008. “Residential child care”. In Residential child care: Prospect and challenges, ed. by Andrew Kendrick, 107119. London: Jessica Kingsley Publishers.
  31. UNICEF. 2019. https://www.unicef.org/media/62371/file/Convention-rights-child-at-crossroads-2019.pdf.
  32. United Nations. 1989. “The convention on the rights of the child.” http://www.unhcr.org/uk/4aa76b319.pdf.
  33. United Nations. 2006. “Convention on the Rights of Persons with Disabilities.” https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html#Fulltext.
  34. United Nations Committee on the Rights of Persons with Disability. 2019. “Concluding observations on the initial report from Norway.” file:///C:/Users/06022217/Downloads/G1913256%20(4).pdf.
  35. Viper Project. 2013. “A literature review on the participation of disabled children and young people in decision making.” https://councilfordisabledchildren.org.uk/sites/default/files/field/attachemnt/literature_review.pdf.
  36. Wilson, Charlotte. 2013. “A different language: Implementing the total communication approach.” Scottish Journal of Residential Child Care. 12(1), 3445. https://www.celcis.org/files/3414/3817/9596/2013-vol12-no1-wilson-adifferentlanguage.pdf.
  37. Ytterhus, Borgunn & Åmot, Ingvild. 2019. Barn med og uten funksjonsnedsettelser og deltagelse i forskergrupper – når og hvordan kan ulike kvalitative forskningsmetoder få alle barn til å delta i forskning? [ Children with and without impairments and participation in research groups – when and how can different qualitative research methods get all children to participate in research?] Nordisk barnehageforskning 18(1), 115. DOI: 10.7577/nbf.3286
DOI: https://doi.org/10.16993/sjdr.748 | Journal eISSN: 1745-3011
Language: English
Page range: 94 - 103
Submitted on: Jun 23, 2020
Accepted on: Mar 18, 2021
Published on: Apr 9, 2021
In partnership with: Paradigm Publishing Services

© 2021 Ingunn Fylkesnes, Borgunn Ytterhus, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.