Methodologically Thinking: Doing Disability Research in Ghanaian Cultural Communities
References
- Amerson, Roxanne and Cecily Strang. 2015. “Addressing the Challenges of Conducting Research in Developing Countries.” Journal of Nursing Scholarship 47(6): 584–591. DOI: 10.1111/jnu.12171
- Avoke, Mawutor. 2010. “Models of Disability in the Labelling and Attitudinal Discourse in Ghana.” Disability and Society 17(7): 769–777. DOI: 10.1080/0968759022000039064
- Awusabo-Asare, Kofi. 1988. “Interpretation of Demographic concepts: The Case of Ghana.” Population and Development Review 14(4): 675–687. DOI: 10.2307/1973628
- Ballantyne, Angela. 2008. “Benefits to Research Subjects in International Trials: Do They Reduce Exploitation or Increase Undue Inducement?” Developing World Bioethics 8(3): 178–91. DOI: 10.1111/j.1471-8847.2006.00175.x
- Bannink Mbazzini, Femke, Ruth Nalugya, Elizabeth Kawesa, Harriet Nambejja, Pamela Nizeyimana, Patrick Ojok, Geert Van Hove, and Janet Seeley. 2020. “‘Obuntu Bulamu’ – Development and Testing of an Indigenous Intervention for Disability Inclusion in Uganda.” Scandinavian Journal of Disability Research 22(1): 403–416. DOI: 10.16993/sjdr.697
- Berghs, Maria. 2017a. “Practices and Discourses of Ubuntu: Implications for an African Model of Disability?” African Journal of Disability 6: a292. DOI: 10.4102/ajod.v6.292
- Berghs, Maria. 2017b. “Ubuntu and Ways of Being in the World: Listening to My Colleagues Describe Southern African Disability History and Theory.”
https://www.public-disabilityhistory.org/2017/02/ubuntu-and-ways-of-being-in-world.html . - Braun, Virginia, and Victoria Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology. 3(2):77–101. DOI: 10.1191/1478088706qp063oa
- Braun, Virginia, and Victoria Clarke. 2014. “What Can ‘Thematic Analysis’ Offer Health and Wellbeing Researchers?” International Journal of Qualitative Studies on Health and Well-being 9: 26152. DOI: 10.3402/qhw.v9.26152
- Brislin, Richard. 1980.
“Cross-Cultural Research Methods.” In Environment and Culture. Human Behavior and Environment (Advances in Theory and Research), Vol. 4., edited by Irwin Altman, Amos Rapoport, and Joachim Wohlwill. Boston, MA: Springer. DOI: 10.1007/978-1-4899-0451-5_3 - Chataika, Tsitsi, and Judith Anne McKenzie. 2013.
“Considerations of an African Childhood Disability Studies.” In Disabled Children’s Childhood Studies: Critical Approaches in a Global Context, edited by T. and K. Runswick-Cole Curran, 152–163. Basingstoke: Palgrave. DOI: 10.1057/9781137008220_12 - Chataika, Tsitsi, and Peter Mutswanga. 2016. “Personal Experiences of Hearing-impaired People in Higher Education in Zimbabwe.” Zimbabwe Journal of Educational Research 28(2): 124–144. ISSN: 1013-3445
- Fisher, Karen, Xiaoyuan Shang, and Jiawen Xie. 2016.
“Global South–North Partnerships: Intercultural Methodologies in Disability Research.” In Disability and Social Theory: New Developments and Directions, edited by Dan Goodley, Bill Hughes, and Leonard Davis, 567–582. London: Palgrave Macmillan. DOI: 10.1007/978-3-319-42488-0_36 - Ghai, Anita. 2012.
“Engaging with Disability with Postcolonial Theory.” In Disability and Social Theory: New Developments and Directions, edited by Dan Goodley, Bill Hughes, and Leonard Davis, 270–286. London: Palgrave Macmillan. DOI: 10.1057/9781137023001_16 - Goodley, Dan. 2013. “Dis/entangling Critical Disability Studies.” Disability & Society 28(5): 631–644. DOI: 10.1080/09687599.2012.717884
- Goodley, Dan, and Leslie Swartz. 2016.
“The Place of Disability.” In Disability in the Global South, edited by Shaun Grech and Karen Soldatic, 69–84. Switzerland: Springer International Publishing. DOI: 10.1007/978-3-319-42488-0_5 - Grech, Shaun. 2009. “Disability, Poverty and Development: Critical Reflections on the Majority World Debate.” Disability & Society 24(6): 771–84. DOI: 10.1080/09687590903160266
- Grech, Shaun. 2011. “Recolonising Debates or Perpetuated Coloniality? Decentring the Spaces of Disability, Development and Community in the Global South.” International Journal of Inclusive Education 15(1): 87–100. DOI: 10.1080/13603116.2010.496198
- Grech, Shaun. 2016.
“Disability and Development: Critical Connections, Gaps and Contradictions.” In Disability in the Global South, edited by Shaun Grech and Karen Soldatic, 3–19. Switzerland: Springer International Publishing. DOI: 10.1007/978-3-319-42488-0_1 - Groce, Nora. 1999. “Guest Editorial: Framing Disability Issues in Local Concepts and Beliefs.” Asia Pacific Disability Rehabilitation Journal 10(1): 1–2.
https://www.dinf.ne.jp/doc/english/asia/resource/apdrj/z13jo0300/z13jo0303.html . - Hastings Centre. 2004. “Moral Standards for Research in Developing Countries from ‘Reasonable Availability’ to ‘Fair Benefits.’” Hastings Centre Report, May-June. PMID: 15281723.
- Igoumenidis, Michael, and Sophia Zyga. 2011. “Healthcare Research in Developing Countries: Ethical Issues.” Health Science Journal. 5(4): 243–250. E-ISSN:1791-809X.
- Ingstad, Benedicte. 2001.
“Disability in the Developing World.” In Handbook of Disability Studies, edited by Gary Albrecht, Katherine Seelman, and Michael Bury, 219–251. Thousand Oaks, CA: Sage. - Ingstad, Benedicte, and Susan Reynolds Whyte. 1995. Disability and Culture. Berkeley, CA: University of California Press. DOI: 10.1525/9780520342194
- Khowaja-Punjwani, Sumaira. 2015 “Issues of Research Ethics in Developing World.” Journal of Clinical Research & Bioethics 6(6): 1–3. DOI: 10.4172/2155-9627.1000e113
- Koen, Jennifer, Catherina Slack, Nicole Barsdorf, and Zaynab Essack. 2008. “Payment of Trial Participants Can Be Ethically Sound: Moving Past a Flat Rate.” South African Medical Journal 98(12): 926–9. PMID: 19374064.
- Labaree, Robert. 2002. “The Risk of ‘Going Observationalist’: Negotiating the Hidden Dilemmas of Being an Insider Participant Observer.” Qualitative Research 2(1): 97–122. DOI: 10.1177/1468794102002001641
- Ladd, Paddy. 2003. Understanding Deaf Culture: In Search of Deafhood. Clevedon, UK: Multilingual Matters LTD. DOI: 10.21832/9781853595479
- London, Alex John. 2005. “Justice and the Human Development Approach to International Research.” The Hastings Center Report 35(1): 24–37. PMID: 15799498. DOI: 10.1353/hcr.2005.0009
- Meekosha, Helen. 2011. “Decolonising disability: Thinking and acting globally.” Disability & Society 26(6): 667–682. DOI: 10.1080/09687599.2011.602860
- Midgley, James. 1990. “International Social Work: Learning from the Third World.” Social Work 35(4): 295–301. DOI: 10.1093/sw/35.4.295
- Molyneux, Sassy, Stephen Mulupi, Lairumbi Mbaabu, and Vicki Marsh. 2012. “Benefits and Payments for Research Participants: Experiences and Views from A Research Centre on the Kenyan Coast.” BMC Medical Ethics 13: 13. DOI: 10.1186/1472-6939-13-13
- Morgan, Sophie. 2015. “The Country where Disabled People are Beaten and Chained.” BBC report, 28 July.
https://www.bbc.com/news/blogs-ouch-33523742 . - Mostert, Mark. 2016. “Stigma as Barrier to the Implementation of the Convention on the Rights of Persons with Disabilities in Africa.” African Disability Rights Yearbook 4: 3–24. DOI: 10.15171/ijhpm.2016.117
- Mprah, Wisdom. 2011.
“Sexual and Reproductive Needs Assessment with Deaf People in Ghana.” PhD diss., University of Illinois at Chicago. - Mprah, Wisdom. 2013. “Sexual and Reproductive Health Needs Assessment with Deaf People in Ghana: Methodological Challenges and Ethical Concerns.” African Journal of Disability 2(1): 55. DOI: 10.4102/ajod.v2i1.55
- Mullings, Beverley. 1999. “Insider or Outsider, Both or Neither: Some Dilemmas of Interviewing in a Cross-cultural Setting.” Geoforum 30(4): 337–350. DOI: 10.1016/S0016-7185(99)00025-1
- Mweemba, Chris, Joseph Ali, and Adnan Hyder. 2018. “Providing Monetary and Non-monetary Goods to Research Participants: Perspectives and Practices of Researchers and Research Ethics Committees in Zambia.” Global Bioethics 31:1–14. DOI: 10.1080/11287462.2018.1527672
- Naami, Augustina. 2019a.
“Ethical Concerns Regarding Rights of People Living with Disabilities in Ghana.” In Bioethics in Africa: Theories and Praxis, edited by Yaw Frimpong-Mansoh and Caesar Atuire, 131–144. Wilmington, US: Vernon Press. - Naami, Augustina. 2019b. Disability-specific Forms of Deprivation of Liberty. Ghana country lead researcher. Geneva: United Nations.
https://www.nuigalway.ie/media/centrefordisabilitylawandpolicy/files/DoL-ReportFinal.pdf . - Nguyen, Xuan Thuy. 2018. “Critical Disability Studies at the Edge of Global Development: Why Do We Need to Engage with Southern Theory?” Canadian Journal of Disability Studies 7(1): e1–e25. DOI: 10.15353/cjds.v7i1.400
- Nicolaisen, Ida. 1995.
“Persons and Nonpersons: Disability and Personhood Among the Punan Bah of Central Borneo.” In Disability and Culture, edited by Benedicte Ingstad and Susan Reynolds White, 38–55. Berkeley, CA: University of California Press. DOI: 10.1525/9780520342194-004 - Oppenheim, Claire. 2012. “Nelson Mandela and the Power of Ubuntu.” Religions 3(2): 369–388. DOI: 10.3390/rel3020369
- Owusu-Ansah, Francis E., and Gubela Mji. 2013. “African Indigenous Knowledge and Research.” African Journal of Disability 2(1): 30. DOI: 10.4102/ajod.v2i1.30
- Patton, Michael. 2002. Qualitative Research and Evaluation Methods (3rd ed.). Thousand Oaks, CA: Sage Publications, Inc.
- Pollard, Robert. 2002.
“Ethical Conduct in Research Involving Deaf People.” In Ethics in Mental Health and Deafness, edited by Virginia Gutman, 162–178. Washington, DC: Gallaudet University Press. - Samuel, Michael, and Hyleen Mariaye. 2014. “De-colonising International Collaboration: The University of KwaZulu-Natal-Mauritius Institute of Education Cohort PhD Programme.” Compare 44. DOI: 10.1080/03057925.2013.795100
- Savvides, Nicola, Joanna Al-Youssef, Mindy Colin, and Cecilia Garrido. 2014. “Journeys into Inner/outer Space: Reflections on the Methodological Challenges of Negotiating Insider-Outsider Status in International Educational Research.” Research in Comparative and International Education 9(4): 412–425. DOI: 10.2304/rcie.2014.9.4.412
- Seehawer, Marin Kristin. 2018. “Decolonising Research in a Sub-Saharan African Context: Exploring Ubuntu as a Foundation for Research Methodology, Ethics and Agenda.” International Journal of Social Research Methodology 21(4):1–13. DOI: 10.1080/13645579.2018.1432404
- Shutte, Augustine. 1993. Philosophy for Africa. Rondebosch, South Africa: UCT Press.
- Slikker, Jaqueline. 2009. Attitudes towards Persons with Disability in Ghana. VSO Ghana.
- Stapleton, Greg, Peter Schröder-Bäck, Ulrich Laaser, Agnes Meershoek, and Daniela Popa. 2014. “Global Health Ethics: An Introduction to Prominent Theories and Relevant Topics.” Global Health Action 7: 23569. DOI: 10.3402/gha.v7.23569
- Strang, Cecily, and Sandra Mixer. 2015. “Discovery of the Meanings, Expressions, and Practices Related to Malaria Care Among the Maasai.” Journal of Transcultural Nursing 27(4): 333–341. DOI: 10.1177/1043659615573841.
- Wax, Rosalie. 1971. Doing Field Research: Warnings and Advice. Chicago, IL: University of Chicago Press.
- Woodsong, Cynthia, and Quarraisha Abdool Karim. 2005. “A Model Designed to Enhance Informed Consent: Experiences from the HIV Prevention Trials Network.” American Journal of Public Health. 95(3): 412–419. DOI: 10.2105/AJPH.2004.041624
DOI: https://doi.org/10.16993/sjdr.702 | Journal eISSN: 1745-3011
Language: English
Page range: 169 - 179
Submitted on: Jan 16, 2020
Accepted on: Jun 3, 2021
Published on: Jul 2, 2021
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2021 Jeff Grischow, Augustina Naami, Wisdom Mprah, Magnus Mfoafo-M’Carthy, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.