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Environmental, Personal, and Relational Barriers and Facilitators to Self-Determination among Adults with Intellectual Disabilities Cover

Environmental, Personal, and Relational Barriers and Facilitators to Self-Determination among Adults with Intellectual Disabilities

Open Access
|Apr 2020

References

  1. American Association on Intellectual and Developmental Disabilities (AAIDD). 2010. Intellectual Disability: Definition, Classification and Systems of Supports (11th Edition). Washington, DC: American Association on Intellectual and Developmental Disabilities.
  2. Antaki, C., Finlay, W., Walton, C., and Pate, L. 2008. “Offering Choices to People with Intellectual Disabilities: An Interactional Study”. J Intellect Disabil Res 52(12): 11651175. DOI: 10.1111/j.1365-2788.2008.01101.x
  3. Barbour, R., and Kitzinger, J. 1999. Developing Focus Group Research: Politics, Theory and Practice. London: Sage Publications. DOI: 10.4135/9781849208857
  4. Barr, O., McConkey, R., and McConaghie, J. 2003. “Views of People with Learning Difficulties about Current and Future Accommodation: The Use of Focus Groups to Promote Discussion.” Disability & Society 18(5): 577597. DOI: 10.1080/0968759032000097834
  5. Bergstrom, N. 2008. “The Gap Between Discovery and Practice Implementation in Evidence-based Practice: Is Practice-based Evidence a Solution?” Int J Evid Based Healthc 6(2): 135136. DOI: 10.1111/j.1744-1609.2008.00102.x
  6. Bianco, M., Garrison-Wade, D. F., Tobin, R., and Lehmann, J. P. 2009. “Parents’ Perceptions of Postschool Years for Young Adults with Developmental Disabilities.” Intellect Dev Disabil 47(3): 186196. DOI: 10.1352/1934-9556-47.3.186
  7. Carter, E. W., Lane, K. L., Cooney, M., Weir, K., Moss, C. K., and Machalicek, W. 2013. “Parent Assessments of Self-determination Importance and Performance for Students with Autism or Intellectual Disability.” Am J Intellect Dev Disabil 118(1): 1631. DOI: 10.1352/1944-7558-118.1.16
  8. Cudré-Mauroux, A., Piérart, G., and Vaucher, C. 2019. “The Importance of the Relational Needs of People with Learning Disabilities in the Promotion of Self-determination.” British Journal of Learning Disabilities 17. DOI: 10.1111/bld.12268
  9. Cudré-Mauroux, A., Piérart, G., and Vaucher, C. Under review. “Partnership with Social Care Professionals as a Context for Promoting Self-determination Among People with Intellectual Disabilities.”
  10. Détraux, J.-J. 2014. “La Place de la Personne en Situation de Handicap Dans la Recherche: Quels Principes Ếthiques?” In Méthodes de Recherche Dans le Champ de la Déficience Intellectuelle, edited by G. Petitpierre & B.-M. Martini-Willemin 187221. Berne: Peter Lang.
  11. Finlay, W. M., Antaki, C., and Walton, C. 2008. “Saying No to the Staff: An Analysis of Refusals in a Home for People With Severe Communication Difficulties.” Sociol Health Illn 30(1): 5575. DOI: 10.1111/j.1467-9566.2007.01028.x
  12. Fontana-Lana, B., Angéloz Brügger, P., Gobet, L. and Hauenstein, I. 2016. “Des Outils Pour Soutenir L’implémentation de Pratiques D’autodétermination et de Participation Citoyenne en Milieu Socio-éducatif.” Revue Suisse de Pédagogie Spécialisée 1: 1825.
  13. Fraser, M., and Fraser, A. 2001. “Are People with Learning Disabilities Able to Contribute to Focus Groups on Health Promotion?” J Adv Nurs 33(2): 225233. DOI: 10.1046/j.1365-2648.2001.01657.x
  14. Gates, B., and Waight, M. 2007. “Reflections on Conducting Focus Groups with People ith Learning Disabilities.” Journal of Research in Nursing 12(2): 111126. DOI: 10.1177/1744987106075617
  15. Gaumer Erickson, A. S., Noonan, P. M., Zheng, C., and Brussow, J. A. 2015. “The Relationship Between Self-determination and Academic Achievement for Adolescents with Intellectual Disabilities.” Res Dev Disabil 36: 4554. DOI: 10.1016/j.ridd.2014.09.008
  16. Giard, M.-F., and Morin, D. 2010. «Le Consentement à la Recherche en Déficience Intellectuelle: Situation Québecoise.» Revue Francophone de la Déficience Intellectuelle 21: 4053.
  17. Haelewyck, M. C., and Nader-Grosbois, N. 2004. «L’autorégulation: Porte D’entrée Vers L’autodétermination des Personnes Avec Retard Mental?» Revue Francophone de la Déficience Intellectuelle 15: 173186.
  18. Jahoda, A., and Markova, I. 2004. “Coping with Social Stigma: People with Intellectual Disabilities Moving from Institutions and Family Home.” J Intellect Disabil Res 48(Pt 8): 719729. DOI: 10.1111/j.1365-2788.2003.00561.x
  19. Lachapelle, Y., Wehmeyer, M. L., Haelewyck, M. C., Courbois, Y., Keith, K. D., Schalock, R., et al. 2005. “The Relationship Between Quality of Life and Self-determination: An International Study.” J Intellect Disabil Res 49(Pt 10): 740744. DOI: 10.1111/j.1365-2788.2005.00743.x
  20. Marquis, R. and Jackson, R. 2000. “Quality of Life and Quality of Service Relationships: Experiences of People with Disabilities.” Disability & Society 15: 411425. DOI: 10.1080/713661967
  21. McConkey, R., and Collins, S. 2010. “The Role of Support Staff in Promoting the SocialIinclusion of Persons with an ntellectual Disability.” J Intellect Disabil Res 54(8): 691700. DOI: 10.1111/j.1365-2788.2010.01295.x
  22. McPherson, L., Ware, R. S., Carrington, S., and Lennox, N. 2016. “Enhancing Self-Determination in Health: Results of an RCT of the Ask Project, a School-Based Intervention for Adolescents with Intellectual Disability.” J Appl Res Intellect Disabil. DOI: 10.1111/jar.12247
  23. Miles, M. B., and Huberman, A. M. 2003. Analyse des Données Qualitatives. Bruxelles: De Boeck.
  24. Muir, W. J., and Gibbs, S. M. 2006. “Research in the Psychiatry of Learning Disability.” In Research Methods in Psychiatry, eidted by C. Freeman & P. J. Tyrer, 252291. London: Gaskell.
  25. Palmer, S. B., and Wehmeyer, M. L. 1998. “Students’ Expectations of the Future: Hopelessness as a Barrier to Self-determination.” Ment Retard 36(2): 128136. DOI: 10.1352/0047-6765(1998)036<;0128:SEOTFH>2.0.CO;2
  26. Peterson, C. 2004. Looking forward through the lifespan. Frenchs Forest, NSW: Pearson.
  27. Sands, D. J., and Kozleski, E. B. 1994. “Quality of Life Differences Between Adults With and Without Disabilities.” Education and Training in Developmental Disabilities 29: 90101.
  28. Sarrazin, C. 2013. Autodétermination et Déficience Intellectuelle. L›expérience D›une Institution Suisse: Le Village d›Aigues-Vertes. Saint-Denis: Edilivre.
  29. Shogren, K. A. 2013. “A Social-ecological Analysis of the Self-determination Literature.” Intellect Dev Disabil 51(6): 496511. DOI: 10.1352/1934-9556-51.6.496
  30. Shogren, K. A., and Broussard, R. 2011. “Exploring the Perceptions of Self-Determination of Individuals with Intellectual Disability.” Intellect Dev Disabil 49(2): 86102. DOI: 10.1352/1934-9556-49.2.86
  31. Shogren, K. A., Wehmeyer, M. L., Palmer, S. B., Soukup, J. H., Little, T. D., Garner, N., et al. 2007. “Examining Individual and Ecological Predictors of the Self-determination of Students with Disabilities.” Except Child 73: 488509. DOI: 10.1177/001440290707300406
  32. Soresi, S., Nota, L., and Wehmeyer, M. L. 2011. “Community Involvement in Promoting Inclusion, Participation and Self?determination.” International Journal of Inclusive Education 15(1): 1528. DOI: 10.1080/13603116.2010.496189
  33. Stancliffe, R. J. 1997. “Community Living-unit Size, Staff Presence, and Residents’ Choice-making.” Ment Retard 35(1): 19. DOI: 10.1352/0047-6765(1997)035<;0001:CLSSPA>2.0.CO;2
  34. Stancliffe, R. J. 2001. “Living With Support in the Community: Predictors of Choice and Self-determination.” Ment Retard Dev Disabil Res Rev 7(2): 9198. DOI: 10.1002/mrdd.1013
  35. Stancliffe, R. J., Abery, B. H., and Smith, J. 2000. “Personal Control and the Ecology of Community Living Settings: Beyond Living-unit Size and Type.” American Journal of Mental Retardation 105: 431454. DOI: 10.1352/0895-8017(2000)105<;0431:PCATEO>2.0.CO;2
  36. Thoma, C. A., and Getzel, E. E. 2005. “‘Self-determination Is What It’s All About’: What Post-secondary Students With Disabilities Tell Us Are Important Considerations for Success.” Education and Training in Developmental Disabilities 40: 217233.
  37. UNAPEI. 2009. «L’information Pour Tous. Règles Européennes Pour une Information Facile à Lire et à Comprendre.» http://www.unapei.org/IMG/pdf/Guide_ReglesFacileAlire.pdf
  38. Vaucher, C., Cudré-Mauroux, A., and Piérart, G. 2019 “Perceptions and Understandings of Self-determination in the Context of Relationships Between People With Intellectual Disabilities and Social Care Professionals.” International Jjournal of Developmental Disabilities, 110. DOI: 10.1080/20473869.2019.1623595
  39. Wehmeyer, M. L. 1996. “Self-determination as an Educational Outcome: Why Is It Important to Children, Youth and Adults With Disabilities?” In Self-determination across the life span: independence and choice for people with disabilities, edited by D. J. Sands & M. L. Wehmeyer, 1534. Baltimore: Paul H. Brookes.
  40. Wehmeyer, M. L., and Metzler, C. A. 1995. “How Self-determined are People With Mental Retardation? The National Consumer Survey.” Ment Retard 33(2): 111119.
  41. Wehmeyer, M. L., and Palmer, S. B. 2003. “Adult Outcomes for Students with Cognitive Disabilities Three-Years After High School: The Impact of Self-Determination.” Education and Training in Developmental Disabilities 38(2): 131144.
  42. Wehmeyer, M. L., and Schwartz, M. 1998. “The Relationship Between Self-determination, Quality of Life, and Life Satisfaction for Adults With Mental Retardation.” Education and Training in Mental Retardation and Developmental Disabilities 33: 312.
  43. Wong, P. K., and Wong, D. F. 2008. “Enhancing Staff Attitudes, Knowledge and Skills in Supporting the Self-determination of Adults With Intellectual Disability in Residential Settings in Hong Kong: A Pretest-posttest Comparison Group Design.” J Intellect Disabil Res 52(Pt 3): 230243. DOI: 10.1111/j.1365-2788.2007.01014.x
DOI: https://doi.org/10.16993/sjdr.624 | Journal eISSN: 1745-3011
Language: English
Page range: 97 - 107
Submitted on: Jan 21, 2019
Accepted on: Feb 24, 2020
Published on: Apr 9, 2020
In partnership with: Paradigm Publishing Services

© 2020 Carla Vaucher, Annick Cudré-Mauroux, Geneviève Piérart, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.