Empowering Parents as Co-producers: Personal Assistance for Families with Disabled Children
By: Line Jenhaug and Ole Petter Askheim
References
- Alford, John. 2009. Engaging Public Sector Clients: From Service-Delivery to Co-production. Hampshire: Palgrave Macmillan. DOI: 10.1057/9780230235816
- Alford, John. 2015. “‘Co-production, publicness and social exchange: Extending public service-dominant logic’.” Paper presented at International Research Society for Public Management 2015 Conference.
University of Birmingham . - Ansthel, Kevin M., and Guy-Ronald Joseph. 2006. “‘Maternal stress in nonverbal learning disorder: A comparison with reading disorder’.” Journal of Learning Disabilities 30(3): 194–205.
- Askheim, Ole P., Jan Andersen, Ingrid Guldvik, Line Jenhaug, and Ingvild S. Begg. 2014.
‘Brukerstyrt personlig assistanse—statlig policy, kommunal iverksetting og klagesaker’ . Forskningsrapport (162). Lillehammer: Lillehammer University College. - Axelsson, Anna K., Christine Imms, and Jenny Wilder. 2014. “‘Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: Parents’ and personal assistants’ experiences’.” Disability and Rehabilitation, 1–9. Early online. DOI: 10.3109/09638288.2014.895058
- Barnes, Colin, and Geof Mercer. 2006. Independent Futures. Creating User-Led Disability Services in a Disabling Society. Cambridge: Polity Press.
- Boström, Petra, Philip Hwang, and Malin Broberg. 2010. “Parents’ descriptions and experiences of young children recently diagnosed with intellectual disability.” Child Care, Health and Development 36: 93–100. DOI: 10.1111/j.1365-2214.2009.01036.x
- Bowers, Helen, and Anita Wilkins. 2012.
“Co-production in Evaluation and Outcome.” In: Social Care, Service Users and User Involvement: Research Highlights on Social Care, edited by Peter Beresford, and Sarah Carr. London: Jessica Kingsley Publishers. - Boyle, David, and Michael Harris. 2009. The Challenge of Co-production. London: NESTA.
- Christensen, Karen. 2016. “Personalised care funding in Norway: A case of gradual co-production.” Social Policy Review 28: 233–249. DOI: 10.2307/j.ctt1t89drw.18
- Connors, Clare, and Kirsten Stalker. 2003. The Views and Experiences of Disabled Children and Their Siblings: A Positive Outlook. London: Jessica Kingsley.
- Cuzzocrea, Francesca, Rosalba Larcan, and Finn West. 2013. “Family and parental functioning in parents of disabled children.” Nordic Psychology 65(3): 271–287. DOI: 10.1080/19012276.2013.824201
- Davis, Kate, and Susana Gavidia-Payne. 2009. “The impact of child, family and professional support characteristics on the quality of life in families of young children with disabilities.” Journal of Intellectual and Developmental Disability 34(2): 153–162. DOI: 10.1080/13668250902874608
- DeJong, Gerben. 1983.
“Defining and Implementing the Independent Living Concept.” In: Independent Living for Physically Disabled People, edited by NM. Crewe, and IK. Zola. San Fransisco: Jossey-Bass Publishers. - Dempsey, Ian, and Carl J. Dunst. 2004. “Helpgiving styles and parent empowerment in families with a young child with a disability.” Journal of Intellectual and Developmental Disability 29(1): 40–51. DOI: 10.1080/13668250410001662874
- European Network on Independent Living. 2013. Personal Assistance Services in Europe. Dublin: European Network on Independent Living.
- Fairthorne, Jenny, Colleen Fisher, Jenny Bourke, and Helen M. Leonard. 2014. “Experiences impacting the quality of life of mothers of children with autism and intellectual disability.” Psychology Research 4(8): 666–684. DOI: 10.17265/2159-5542/2014.08.005
- Glasby, Jon, and Rosemary Littlechild. 2009. Direct Payments and Personal Budgets. Bristol: The Policy Press.
- Grue, Lars. 1999. Funksjonshemmet ungdom og livskvalitet. Oslo: Ad Notam Gyldendal.
- Grue, Lars. 2001. Motstand og mestring. Om funksjonshemmedes livsvilkår. Rapport nr. 1, Oslo: NOVA.
- Grönroos, Christian, and Annika Ravall. 2011. “Service as business logic: implications for value creation and marketing.” Journal of Service Marketing 22(1): 5–22. DOI: 10.1108/09564231111106893
- Grönroos, Christian, and Päivi Voima. 2013. “Critical service logic: making sense of value creation and co-creation.” Official Publication of the Academy of Marketing Science 41(2): 133–150. DOI: 10.1007/s11747-012-0308-3
- Gundersen, Tonje. 2012. “‘Human dignity at stake: How parents of disabled children experience the welfare system’.” Scandinavian Journal of Disability Research 14(4): 375–390. DOI: 10.1080/15017419.2011.592955
- Haugen, Gry Mette D., Marianne Hedlund, and Christian Wendelborg. 2012. Det går ikke an å bruke seg sjøl både på retta og vranga. Trondheim: Mangfold og inkludering, NTNU samfunnsforskning AS.
- Helse- og omsorgsdepartementet. 2000. Brukerstyrt personlig assistanse. Oslo: Rundskriv 1-20/2000.
https://www.regjeringen.no/no/dokumenter/i-202000/id445628 . - Helse- og omsorgsdepartementet. 2005. Brukerstyrt personlig assistanse (BPA)—utvidelse av målgruppen. Oslo: Rundskriv I-15/2005.
https://www.regjeringen.no/no/dokumenter/I-152005/id445639 . - Helse- og omsorgsdepartementet. 2015. Rettighetsfesting av brukerstyrt personlig assistance (BPA). Rundskriv nr. 1–9/2015. Oslo. Helse- og omsorgsdepartementet.
- Hunter, Susan, and Pete Ritchie. 2007. Co-production and Personalisation in Social Care. London and Philadelphia: Jessica Kingsley Publishers.
- Ingstad, Benedicte, and Hilchen T. Sommerchild. 1984. Familien med det funksjonshemmede barnet. Forløp—reaksjoner—mestring. Oslo: Tanum-Norli.
- Jenhaug, Line. 2014.
“‘Det gjør det mulig å ha en familie samla.» Foreldres erfaringer når et barn har fått innvilget brukerstyrt personlig assistanse’.” Master thesis. Lillehammer: Høgskolen i Lillehammer. - Kittelsaa, Anna, and Jan Tøssebro. 2014.
‘Foreldrenes erfaringer med hjelpeapparatet.’ In: Oppvekst med funksjonsheming: Familie, livsløp og overganger, edited by J. Tøssebro, and C. Wendelborg. Oslo: Gyldendal Akademisk. - Lundeby, Hege. 2008. Foreldre med funksjonshemmete barn: En studie av familiemønster, yrkesaktivitet og møter med hjelpeapparatet. Doctoral dissertation. Trondheim: NTNU.
- Martin, Steve. 2009.
“‘Engaging with citizens and other stakeholders’.” In: Public Management and Governance, edited by T. Bovaird, and E. Löffler. London: Routledge. - Meld. St. 29. 2012–13. Morgendagens omsorg. Oslo: Helse- og omsorgsdepartementet.
- Meld. St. 34. 2012–13. Folkehelsemeldingen. God helse—felles ansvar. Oslo: Helse- og omsorgsdepartementet.
- Murray, Pippa. 2000. “‘Disabled children, parents and professionals: Partnership on whose terms?’” Disability & Society 15(4): 683–698. DOI: 10.1080/09687590050058251
- Needham, Catherine. 2007. “Realising the Potential of Co-production: Negotiating Improvements in Public Services.” Social Policy & Society 7(2): 221–231. DOI: 10.1017/S1474746407004174
- Needham, Catherine, and Sarah Carr. 2009.
“‘Co-production: An emerging base for adult social care transformation’.” Research Briefing 31. London: Social Cares Institute for Excellence.http://www.scie.org.uk/publications/briefings/briefing31 . - NESTA (National Endowment for Science Technology and the Arts). 2011.
“‘Co-production Phase 2: Taking co-production to scale in services for patients with long-term health conditions’.” In: Strategic Partners: Call for Proposals. London: Author. - Norges forskningsråd. 2015. The Impact of a Child’s Special Care Needs on Maternal Sickness and Work Participation.
https://www.forskningsradet.no/prosjektbanken_beta . - NOU. 2011. 11 Innovasjon i omsorg. Oslo: Helse- og omsorgsdepartementet.
- Olsson, Iingrid, Katarina Flygare, and Lise Roll-Pettersson. 2012. “‘Stöd och belastning—föreldrärs erfarenheter av personlig assistans till barn med autism och utvecklingsstörning’.” Barn 4: 25–40.
- Osborne, Steven P., Zoe Radnor, and Greta Nasi. 2013. “A new theory for public service management? Toward a (public) service-dominant approach.” The American Review of Public Administration 43(2): 135–158. DOI: 10.1177/0275074012466935
- Osborne, Steven P., Zoe Radnor, and Kirsty Strokoch. 2016. “Co-production and the co-creation of value in public services: As Suitable case for treatment?” Public Management Review 18(5): 639–653. DOI: 10.1080/14719037.2015.1111927
- Parks, Roger B., Paula C. Baker, Larry L. Kiser, Ronald Oakerson, Elinor Ostrom, Vincent Ostrom, Steven L. Percy, Martha B. Vandivord, Gordon P. Whitaker, and Rick Wilson. 1981. “Consumers as Coproducers of Public Services: Some Economic and Institutional Considerations.” Policy Studies Journal 9(7): 1001–1011. DOI: 10.1111/j.1541-0072.1981.tb01208.x
- Pestoff, Victor. 2011.
“Childcare in eight European countries.” In: New Public Governance, the Third Sector, and Co-Production, edited by V. Pestoff, T. Brandsen, and B. Verschuere Sidetall. New York: Rutledge. - Pestoff, Victor. 2012. “‘Co-production and third sector social services in Europe: Some concepts and evidence’.” Voluntas 23: 1102–1118. DOI: 10.1007/s11266-012-9308-7
- Ridderspore, Bim. 2003. Att möta det oväntade: tidig föreldraskap til barn med Downs syndrom. Doctoral dissertation. Lund: Lunds universitet.
- Rogne, Kjersti T., and Berger J. Hareide. 2003. Tiden sammen må tilranes. Hverdagsliv og samliv i familier med funksjonshemmede barn. Vikersund: Samlivssenteret Modum Bad.
- Rogne, Kjersti T. 2016. “‘I det lange løp. En oppfølgingsstudie om hverdagsliv og samliv i familier med utviklingshemmede barn’.” Fokus på Familien 3: 220–239. DOI: 10.18261/issn.0807-7487-2016-03-04
- Scourfield, Peter. 2015. “Implementing co-production in adult social care: An example of meta-governance failure?” Social Policy and Society 14(4): 541–554. DOI: 10.1017/S1474746414000438
- Skålén, Per, Johanna Gummerus, Catharina von Koskull, and Peter R. Magnusson. 2014. “Exploring value propositions and service innovation: A Service-dominant logic study.” Journal of the Academy of Marketing Science 41(2): 133–150. DOI: 10.1007/s11747-013-0365-2
- Socialstyrelsen. 1995. Personlig vårdare på Gotland. En uppföljning av LSS og LASS. Art. nr. 1995-49-6. Stockholm: Socialstyrelsen.
- SSB. 2016. Statistisk sentralbyrå: Pleie-og omsorgstjenester, lag egne figurer.
https://www.ssb.no/statistikkbanken/selecttable/hovedtabellHjem.asp?KortNavnWeb=pleie&CMSSubjectArea=helse&checked=true . - Stenhammar, Ann-Marie. 2006.
“‘Handlingsplanen för barn och ungdomar’.” In: Handikappolitiken i praktiken. Om den nationella handlingsplanen, edited by Peter Brusén, and Anders Printz. Stockholm: Gothia Förlag. - Tøssebro, Jan, and Hege Lundeby. 2006.
“‘Kampen og tilfredsheten—om tjenester for familier med barn med funksjonsnedsettelser’.” In: Sosiale tjenester for familier som har barn med funksjonsnedsettelser, edited by OP. Askheim, T. Andersen, and J. Eriksen. Oslo: Gyldendal Akademisk. - Tøssebro, Jan, and Veronika Paulsen. 2014.
“‘Foreldres deltakelse i arbeids- og samfunnsliv’.” In: Oppvekst med funksjonshemming. Familie, livsløp og overganger, edited by J. Tøssebro, and C. Wendelborg. Oslo: Gyldendal Akademisk. - United Nations. 1989. Convention on the Rights of the Child.
http://www.ohchr.org/EN/ProfessionalInterest/Pages/CRC.aspx/ . - Vargo, Steven, and Robert Lusch. 2008. “Service-dominant logic: Continuing the evolution.” Official Publication of the Academy of Marketing Science 36(1): 1–10. DOI: 10.1007/s11747-007-0069-6
- Williams, Brian N., Seong-Cheol Kang, and Japera Johnson. 2016. “(Co)-contamination as the dark side of co-production: Public value failures in co-production processes.” Journal of Public Management Review 18(5): 692–717. DOI: 10.1080/14719037.2015.1111660
DOI: https://doi.org/10.16993/sjdr.57 | Journal eISSN: 1745-3011
Language: English
Page range: 266 - 276
Submitted on: Sep 28, 2017
Accepted on: Sep 28, 2017
Published on: Jun 11, 2018
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2018 Line Jenhaug, Ole Petter Askheim, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.