Culturalisation, Homogenisation, Assimilation? Intersectional Perspectives on the Life Experiences of Sami People with Disabilities
By: Ingrid Fylling and Line Melboe
References
- Bjerregaard, P. M. D., and Young, T. K. 2008. Health Transitions in Arctic Populations. Toronto: University of Toronto Press.
- Bjørklund, I. 1985. Fjordfolket i Kvænangen: fra samisk samfunn til norsk utkant 15501980. Tromsø: Universitetsforlaget.
- Blix, B. H. 2016. Helse- og omsorgstjenester til den samiske befolkningen i Norge. Tromsø: Senter for omsorgsforskning.
- Block, P., Balcazar, F., and Keys, C. 2001. “From Pathology to Power: Rethinking Race, Poverty, and Disability.” Journal of Disability Policy Studies (12): 18–39. DOI: 10.1177/104420730101200103
- Brooks, N., and Deegan, J. D. 1981. “Women and Disability: The Double Handicap.” The Journal of Sociology and Social Welfare 8(2): 228–231.
- Brustad, M., Pettersen, T., Melhus, M., and Lund, E. 2009. “Mortality Patterns in Geographical Areas with a High vs. Low Sami Population Density in Arctic Norway.” Scandinavian Journal of Public Health 37(5): 475–480. DOI: 10.1177/1403494809106502
- Byrd, J., Byrd, A., and Rothberg, M. 2011. “Between Subalternity and Indigeneity.” Interventions 13(1): 1–12. DOI: 10.1080/1369801X.2011.545574
- Cunningham, M., Kanyinke, P., and Sena, P. K. 2013. Study on the Situation of Indigenous Persons with Disabilities, with a Particular Focus on Challenges Faced with Regard to the Full Enjoyment of Human Rights and Inclusion in Development. Retrieved from New York:
http://www.un.org/disabilities/documents/ecosoc/e.c.19.2013.6.pdf . - Daerga, L., Sjölander, P., Jacobsson, L., and Edin-Liljegren, A. 2012. “The Confidence in Health Care and Social Services in Northern Sweden – A Comparison between Reindeer-herding Sami and the Non-Sami Majority Population.” Scandinavian Journal of Public Health 40(6): 516–522. DOI: 10.1177/1403494812453971
- Engen, T. O., and Kulbrandstad, L. A. 2004. Tospråklighet, minoritetsspråk og minoritetsundervisning (2. ed.). Oslo: Gyldendal Akademisk.
- Fekjær, S. B. 2010.
“Klasse og innvandrerbakgrunn: to sider av samme sak?” In Klassebilder: Ulikhet og sosial mobilitet i Norge, edited by K. Dahlgren, & J. Ljunggren, 84–97. Oslo: Universitetsforlaget. - Fladstad, T., and Berg, B. 2008. “Gi meg en sjanse!” Minoritetsfamilier med funksjonshemmede barn i Bydel Bjerke. Trondheim: NTNU Samfunnsforskning.
- Fuentes, J. 2016.
“Etnicitet och funktionshinder.” In Bara funktionshindrad? Funktionshinder och interseksionalitet, edited by M. Söder, & A. Hugemark, 103–129. Malmö: Gleerups Utbildning. - Gaski, L. 2008.
“Sami Identity as a Discursive Formation: Essentialism and Ambivalence.” In Self-determination, Knowledge, Indigeneity, edited by H. Minde, 219–236. Delft: Eburon. - Gilroy, J., Uttjek, M., Gibson, C., and Smiler, K. 2018. “Yuin, Kamilaroi, Sámi, and Maori People’s Reflections on Experiences as ‘Indigenous scholars’ in ‘Disability Studies’ and ‘Decolonisation’”. Disability and the Global South 5(2): 1344–1364.
- Hansen, K. L., Høgmo, A., and Lund, E. 2016. “Value Patterns in Four Dimensions among the Indigenous Sami Population in Norway.” Journal of Northern Studies 10(1): 39–66.
- Hansen, K. L., Melhus, M., Høgmo, A., and Lund, E. 2008. “Ethnic Discrimination and Bullying in the Sami and Non-Sami Populations in Norway: The SAMINOR Study.” International Journal of Circumpolar Health 67(1): 97–113. DOI: 10.3402/ijch.v67i1.18243
- Hansen, K. L., Melhus, M., and Lund, E. 2010. “Ethnicity, Self-reported Health, Discrimination and Socio-economic Status: A Study of Sami and Non-Sami Norwegian Populations.” International Journal of Circumpolar Health 2(69): 111–128. DOI: 10.3402/ijch.v69i2.17438
- Hedlund, M., and Moe, A. 2010. “Redefining Relations among Minority Users and Social Workers.” European Journal of Social Work 13(2): 183–198. DOI: 10.1080/13691451003690924
- Hokkanen, L. 2017. Experiences of Inclusion and Welfare Services among Finnish Sámi with Disabilities: Project Report. Stockholm: Nordic Welfare Centre.
- Horstkotte, T., and Aikio, A. 2017. Sápmi and Reindeer Husbandry. Turku: University of Turku.
- Huuva, K. 2014. Kunskapsläge: Personer med funktionsnedsättning och samisk bakgrund. Nordens. Velferdssenter: Stockholm.
- Imperatori, S. M. 2009. Norsk, morsmål, eller begge deler? (Master), Oslo: University of Oslo.
- International Labour Organisation. 1989. ILO-konvensjon nr. 169 om urfolk og stammefolk i selvstendige stater. Geneve: International Labour Organisation.
- Johnsen, K. I., Mathiesen, S. D., and Eira, I. M. G. 2017. “Sámi Reindeer Governance in Norway as Competing Knowledge Systems: A Participatory Study.” Ecology and Society 22(4): 33. DOI: 10.5751/ES-09786-220433
- Kittelsaa, A. M., Wik, S. E., and Tøssebro, J. 2015. Levekår for personer med nedsatt funksjonsevne: Fellestrekk og variasjon. Trondheim: NTNU Samfunnsforskning.
- Kramvig, B. 2005. “The Silent Language of Ethnicity.” European Journal of Cultural Studies 8(1): 45–64. DOI: 10.1177/1367549405049491
- Kuppers, P. 2013. “Decolonizing Disability, Indigeneity and Poetic Methods: Hanging out in Australia.” Journal of Literary and Cultural Disability Studies 7(2). DOI: 10.3828/jlcds.2013.13
- Kvale, S. 1996. Interviews: An Introduction to Qualitative Research Interviewing. Thousand Oaks: SAGE.
- Lund, E., Brustad, M., and Høgmo, A. 2008. “The Sami – Living Conditions and Health.” International Journal of Circumpolar Health 67(1): 6–8. DOI: 10.3402/ijch.v67i1.18218
- Melbøe, L. 2018. “Cultural Sensitivity and Barriers: Sami People with Disabilities Facing the Welfare System.” Community Development Journal. DOI: 10.1093/cdj/bsy025
- Melbøe, L., Hansen, K. L., Johnsen, B.-E. J., Fedreheim, G. E. F., Dinesen, T., Minde, G.-T., and Rustad, M. 2016. “Ethical and Methodological Issues in Research with Disabled Indigenous Sami People in Norway.” International Journal of Circumpolar Health 75(1). DOI: 10.3402/ijch.v75.31656
- Melbøe, L., Johnsen, B. E., Fedreheim, G. E., and Hansen, K. L. 2016. Situasjonen til samer med funksjonsnedsettelser. Tromsø: Universitetet i Tromsø.
- Minde, H. 2005. Assimilation of the Sami: Implementation and Consequences (3). Kautokeino: Resource Centre for the Rights of Indigenous Peoples.
- Ministry of Church Affairs, E. a. R. 1998. Education Act. Oslo.
- Ministry of Local Government and Modernisation. 1987. The Sámi Act.
- Myrvoll, M. 2002.
“Knocking on Heaven’s Door.” In Samisk forskning og forskningsetikk, edited by Den nasjonale forskningsetiske komite for samfunnsvitenskap og humaniora. Oslo: De nasjonale forskningskomiteer. - Niemi, E. 1997.
“Sami History and the Frontier Myth. A perspective on Northern Sami Spatial and Right History.” In Sami culture in a new Era, edited by H. Gaski, 62–85. Karasjok: Davvi Girji OS. - NOU. 2009. 10. Fordelingsutvalget.
- Nystad, T., Melhus, M., and Lund, E. 2008. “Sami Speakers are Less Satisfied with General Practitioners’ Services.” International Journal of Circumpolar Health 67(1): 116–123. DOI: 10.3402/ijch.v67i1.18246
- Olsen, T. A. 2017. Sápmi i Noreg i dag. Syn og Segn (4).
- Orupabo, J. 2014. “Interseksjonalitet i praksis: Utfordringer med å anvende et interseksjonalitetsperspektiv i empirisk forskning.” Sosiologisk tidsskrift 22(04): 329–351.
- Ostad, J. 2006.
“Zweisprachigkeit bei Kindern mit Down-Syndrom.” PhD diss., Humboldt Universität, Berlin. - O’Sullivan, D. 2014. “Indigeneity, Ethnicity, and the State: Australia, Fiji, and New Zealand.” Nationalism and Ethnic Politics 20(1): 26–42. DOI: 10.1080/13537113.2014.878611
- Owren, T. 2008. “Noen betraktninger om brukerråd, empowerment og samfunnsarbeid.” SOR-rapport (4): 4–12.
- Pedersen, P., and Høgmo, A. 2012. Sápmi slår tilbake: samiske revitaliserings- og moderniseringsprosser i siste generasjon. Kárášjohka: Čálliid Lágádus.
- Pettersen, T., and Brustad, M. 2013. “Which Sami? Sami Inclusion Criteria in Population-based Studies of Sami Health and Living Conditions in Norway – An Exploratory Study Exemplified with Data from the SAMINOR Study.” International Journal of Circumpolar Health 72: 21813. DOI: 10.3402/ijch.v72i0.21813
- Poulsen, C. 2006. Taler vi om det samme? København: Center for Små Handicapgrupper.
- Schanche, A. 2000. Graver i ur og berg: samisk gravskikk og religion fra forhistorisk til nyere tid. Karasjok: Davvi girji.
- Selle, P., Semb, A. J., Strømsnes, K., and Nordø, Å. D. 2015. Den samiske medborgeren. Oslo: Cappelen Damm Akademisk.
- Shaw, L. R., Chan, F., and McMahon, B. T. 2011. “Intersectionality and Disability Harassment: The Interactive Effects of Disability, Race, Age, and Gender.” Rehabilitation Counseling Bulletin 55(2): 82–91. DOI: 10.1177/0034355211431167
- Sjolander, P. 2011. What Is Known about the Health and Living Conditions of the Indigenous People of Northern Scandinavia, the Sami? Global Health Action 4. DOI: 10.3402/gha.v4i0.8457
- Söderström, S. 2013. “Lost in Translation? Communication Challenges in Minority Families’ and Health Care Workers’ Interaction.” Disability & Society 29(5): 807–820. DOI: 10.1080/09687599.2013.848783
- Söderström, S., Kittelsaa, A. M., and Berg, B. 2011. Snakker vi om det samme? Minoritetsfamilier med funksjonshemmede barn i møte med tjenesteapparatet. Trondheim: NTNU Samfunnsforskning.
- Söderström, S., and Tøssebro, J. 2011. Innfridde mål eller brutte visjoner?: noen hovedlinjer i utviklingen av levekår og tjenester for utviklingshemmede. Trondheim: NTNU Samfunnsforskning.
- Soldatic, K., Melboe, L., Kermit, P., and Somers, K. 2018. “Challenges in Global Indigenous–Disability Comparative Research, or, Why Nation-state Political Histories Matter.” Disability and the Global South 5(2): 1450–1471.
- Stienstra, D. 2012.
“Race/Ethnicity and Disability Studies.” In Routledge Handbook of Disability Studies, edited by N. Watson, A. Roulstone, & C. Thomas. New York: Routledge. - Stienstra, D., Baikie, G., and Manning, S. M. 2018. “‘My Granddaughter Doesn’t Know She Has Disabilities and We Are Not Going to Tell Her’: Navigating Intersections of Indigenousness, Disability and Gender in Labrador.” Disability and the Global South 5(2): 1385–1406.
- Stienstra, D., and Nyerere, L. 2016.
“Race, Ethnicity and Disability: Charting Complex and Intersectional Terrains.” In International Perspectives on Social Policy, Administration, and Practice, 255–268. DOI: 10.1007/978-3-319-42488-0_16 - Stuart, O. 1992. “Race and Disability: Just a Double Oppression?” Disability, Handicap & Society 7(2): 177–188. DOI: 10.1080/02674649266780201
- Stuart, O. 1993.
“Double Oppression: An Appropriate Starting Point?” In Disabling Barriers – Enabling Environments, edited by J. Swain, V. Finkelstein, S. French, and M. Oliver, 93–101. London, UK: SAGE Publication Ltd. - Thagaard, T. 2013. Systematikk og innlevelse. En innføring i kvalitativ metode. Bergen: Fagbokforlaget.
- Turi, A. L., Bals, M., Skre, I., and Kvernmo, S. 2009. “Health Service Use in Indigenous Sami and Non-indigenous Youth in North Norway: A Population-based Study.” BMC Public Health (9): 378. DOI: 10.1186/1471-2458-9-378
- Uttjek, M. 2016. Levnadsförhållanden bland samer med funksjonsnedsättning i Sverige. Stockholm: Nordens Välfärdscenter.
- Warner, D., and Brown, T. 2011. “Understanding How Race/Ethnicity and Gender Define Age Trajectories of Disability: An Intersectionality Approach.” Social Science & Medicine 72(2011): 1236–1248. DOI: 10.1016/j.socscimed.2011.02.034
DOI: https://doi.org/10.16993/sjdr.575 | Journal eISSN: 1745-3011
Language: English
Page range: 89 - 99
Submitted on: Jun 21, 2018
Accepted on: Feb 4, 2019
Published on: May 16, 2019
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
© 2019 Ingrid Fylling, Line Melboe, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.