The Lived Experience of a Mother of a Young Adult with Intellectual Disability: ‘My Daughter as My Enlightenment’
References
- Antonovsky, Aron. 1979.
Health, Stress and Coping . San Francisco: Jossey-Bass. - Beckett, Angharad. 2015. “Anti-Oppressive Pedagogy and Disability: Possibilities and Challenges.” Scandinavian Journal of Disability Research 17: 76–94. DOI: 10.1080/15017419.2013.835278
- Blacher, Jan, Cameron Neece, and Emilie Paczkowski. 2005. “Families and IntellectualDisability.” Current Opinion in Psychiatry 18: 507–513. DOI: 10.1097/01.yco.0000179488.92885.e8
- Calhoun, Lawrence, and Richard Tedeschi. 2013.
Posttraumatic Growth in Clinical Practice . New York: Brunner Routledge. - Campbell, Fiona Kumari. 2012.
“Stalking Ableism: Using Disability to Expose ‘Abled’ Narcissism.” Disability and Social Theory: New Developments and Directions, 212–230. Palgrave: Macmillan. DOI: 10.1057/9781137023001 - Cuskelly, Monica. 2005. “Parents of Adults with Intellectual Disability.” Family Matters 74: 20–25.
- Dykens, Elisabeth. 2005. “Happiness, Well-being, and Character Strengths: Outcomes for Families and Siblings of Persons with Mental Retardation.” Mental Retardation 43: 360–364.
- Fisher, Pamela, and Dan Goodley. 2007. “The Linear Medical Model of Disability: Mothers of Disabled Babies Resist with Counter-Narratives.” Sociology of Health and Illness 29: 66–81. DOI: 10.1111/j.1467-9566.2007.00518.x
- Frankl, Viktor. 1994.
Man’s Search for Meaning: An Introduction to Logotherapy . New York: Pocket Books. - Frankl, Viktor. 1998.
“Self-Transcendence as a Human Phenomenon.” The Will to Meaning: Foundations and Applications of Logotherapy, 31–49. New York: Penguin Books. - Goffman, Erving. 1963.
Stigma: Notes on the Management of Spoiled Identity . New Jersey: Prentice-Hall. - Hammersley, Martyn, and Roger Gomm. 2000.
“Introduction.” Case Study Method. Key Issues, Key Texts, Roger Gomm, Martyn Hammersley, and Peter Foster (eds.), 1–15. London: Sage. - Janoff-Bulman, Ronnie. 1992.
Shattered Assumptions: Towards a New Psychology of Trauma , 256. New York: Free Press. - Kelly, Christine. 2016.
Disability Politics and Funding: The Challenge of Direct Funding , 5–27. Vancouver: UBC Press. - Kim, Kyeong-HwaK, and Ann Turnbull. 2004. “Transition to Adulthood for Students with Severe Intellectual Disabilities: Shifting Toward Person-Family Interdependent Planning.” Research and Practice for Persons with Severe Disabilities 29: 53–57.
- Knox, Marie, and Christine Bigby. 2007. “Moving Towards Midlife Care as Negotiated Family Business: Accounts of People with Intellectual Disabilities and their Families ‘Just Getting Along with their Lives Together.’” International Journal of Disability, Development, and Education 54: 287–304. DOI: 10.1080/10349120701488749
- Lenz, Brenda. 2001. “The Transition from Adolescence to Young Adulthood: A Theoretical Perspective.” The Journal of School Nursing 17: 300–306. DOI: 10.1177/10598405010170060401
- Loukisas, Theodoros, and Despina Papoudi. 2016. “Mothers’ Experiences of Children in the Autistic Spectrum in Greece: Narratives of Development, Education and Disability across their Blogs.” International Journal of Disability, Development and Education 63: 64–78. DOI: 10.1080/1034912X.2015.1111304
- Merleau-Ponty, Maurice. 1962.
Phenomenology of Perception . London, UK: Routledge and Kegan Paul. - Miles, Matthew, Michael Huberman, and Johnny Saldaña. 2014.
Qualitative Data Analysis. A Methods Sourcebook . London: Sage. DOI: 10.1080/10572252.2015.975966 - Mydaftlife. 2015. “The (blogging) mother game.” Accessed December 2018.
https://mydaftlife.com/2015/10/20/the-blogging-mother-blame/ . - Nolan, Mike, Gordan Grant, and John Keady. 1996.
Understanding Family Care , 7–56, Buckingham, UK: Open University Press. - Rice, Pranee Liamputtong, and Douglas Ezzy. 1999.
“Theory in qualitative research: traditions and innovations.” Qualitative Research Methods: A Health Focus. South Melbourne, Australia: Oxford University Press. - Runswick-Cole, Katherine, and Dan Goodley. 2013. Resilience: A Disability Studies and Community Psychology Approach. Social and Personality Psychology Compass 7: 67–78. DOI: 10.1111/spc3.12012
- Rutter, Michael. 1999. “Resilience Concepts and Findings: Implications for Family Therapy.” Journal of Family Therapy 21: 119–144. DOI: 10.1111/1467-6427.00108
- Ryan, Sara, and Katherine Runswick-Cole. 2008. “From Advocate to Activist? Mapping the Experiences of Children on the Autism Spectrum.” Journal of Applied Research in Intellectual Disabilities 22: 43–53. DOI: 10.1111/j.1468-3148.2008.00438.x
- Smith, Jonathon, and Mike Osborn. 2010.
“Interpretative Phenomenological Analysis.” In: Qualitative Psychology: A Practical Guide to Research Methods, Jonathon Smith (ed.), 53–80. London: Sage. - Traustadottir, Rannveig. 1991. “Mothers Who Care: Gender, Disability and Family Life.” Journal of Family Issues 12: 211–228. DOI: 10.1177/019251391012002005
- Ungar, Michael. 2005.
“Introduction: Resilience Across Cultures and Contexts.” Handbook for Working with Children and Youth: Pathways to Resilience Across Cultures and Contexts, Ungar, Michael (ed.), xv–xxxix. Thousand Oaks, CA: Sage. - van Manen, Max. 2016.
Researching Lived Experience: Human Science for an Action Sensitive Pedagogy . New York: Routledge. - Yee, Michelle Jean. 2013.
“Lived Experiences of Women with Hidden Disabilities: A Phenomenologically Based Study.” PhD diss., University of San Francisco. - Yin, Robert. 2009.
Case Study Research: Design and Methods . California: Thousand Oaks.
DOI: https://doi.org/10.16993/sjdr.560 | Journal eISSN: 1745-3011
Language: English
Page range: 49 - 57
Submitted on: Mar 17, 2018
Accepted on: Feb 18, 2019
Published on: Mar 21, 2019
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2019 Murray Rieck, Jane Shakespeare-Finch, Mariann Märtsin, Marie Knox, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.