
Staff’s and Managers’ Conceptions of Participation for Adults with Profound Intellectual Disabilities or Profound Intellectual and Multiple Disabilities
References
- Beadle-Brown, Julie, J. Paul Leigh, Beckie Whelton, Lisa Richardson, Jeni Beecham, Teresia Baumker, and Jill Bradshaw. 2016. “Quality of Life and Quality of Support for People with Severe Intellectual Disability and Complex Needs.” Journal of Applied Research in Intellectual Disabilities 29(5): 409–421. DOI: 10.1111/jar.12200
- Bigby, Christine, Tim Clement, Jim Mansell, and Julie Beadle-Brown. 2009. “‘It’s Pretty Hard with Our Ones, They Can’t Talk, the More Able-bodied Can Participate’: Staff Attitudes about the Applicability of Disability Policies to People with Severe and Profound Intellectual Disabilities.” Journal of Intellectual Disability Research 53(4): 363–376. DOI: 10.1111/j.1365-2788.2009.01154.x
- Blomberg, Barbro. 2006.
“Inklusion en illusion? om delaktighet i samhället för vuxna personer med utvecklingsstörning [Inclusion an illusion? Participation in society for people with intellectual disability].” PhD diss. Umeå University. - Clement, Tim, and Christine Bigby. 2009. “Breaking Out of a Distinct Social Space: Reflections on Supporting Community Participation for People with Severe and Profound Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities 22(3): 264–275. DOI: 10.1111/j.1468-3148.2008.00458.x
- Dahlgren, Lars-Ove, and Margareta Fallsberg. 1991. “Phenomenography as a Qualitative Approach in Social Pharmacy Research.” Journal of Social and Administrative Pharmacy 8(4): 150–156.
- Dolva, Anne-Stine, Jo Kleiven, and Marit Kollstad. 2014. “Actual Leisure Participation of Norwegian Adolescents with Down Syndrome.” Journal of Intellectual Disabilities 18(2): 159–175. DOI: 10.1177/1744629514523158
- Dunn, Michael C., Isabel C. H. Clare, and Anthony J. Holland. 2010. “Living ‘A Life Like Ours’: Support Workers’ Accounts of Substitute Decision-making in Residential Care Homes for Adults with Intellectual Disabilities.” Journal of Intellectual Disability Research 54(2): 144–160. DOI: 10.1111/j.1365-2788.2009.01228.x
- Dusseljee, Joost C. E., P. Mieke Rijken, Mieke Cardol, Leopold M. G. Curfs, and Peter P. Groenewegen. 2011. “Participation in Daytime Activities among People with Mild or Moderate Intellectual Disability.” Journal of Intellectual Disability Research 55(1): 4–18. DOI: 10.1111/j.1365-2788.2010.01342.x
- Felce, David, and Jonathan Perry. 1995. “Quality of Life: Its Definition and Measurement.” Research in Developmental Disabilities 16(1): 51–74. DOI: 10.1016/0891-4222(94)00028-8
- Furenhed, Ragnar. 1997. En gåtfull verklighet – att förstå hur gravt utvecklingsstörda upplever sin värld [A puzzling reality – understanding how profound intellectual disabled people experience their world]. Stockholm: Carlssons.
- Government Bill 1999/2000: 79. From Patient to Citizen – A National Action Plan for Disability Policy. Stockholm: Ministry of Health and Social Affairs.
- Government Bill 2008/09: 28. Human Rights for People with Disabilities. Stockholm: Ministry of Health and Social Affairs.
- Granlund, Mats, Jenny Wilder, and Lena Almqvist. 2013.
“Severe Multiple Disabilities.” In The Oxford Handbook of Positive Psychology and Disability, edited by Michael L. Wehmeyer, 452–474. New York: Oxford University Press. DOI: 10.1093/oxfordhb/9780195398786.013.013.0028 - Gustavsson, Anders. (Red.). 2004. Delaktighetens språk. [Language of participation]. Lund: Studentlitteratur.
- Hammel, Joy, Susan Magasi, Allen Heinemann, Gale Whiteneck, Jennifer Bogner, and Evelyn Rodriguez. 2008. “What Does Participation Mean?: An Insider Perspective from People with Disabilities.” Disability and Rehabilitation 30(19): 1445–1460. DOI: 10.1080/09638280701625534
- Johnson, Hilary, Jacinta Douglas, Christine Bigby, and Teresa Iacono. 2012. “Social Interaction with Adults with Severe Intellectual Disability: Having Fun and Hanging Out.” Journal of Applied Research in Intellectual Disabilities 25(4): 329–341. DOI: 10.1111/j.1468-3148.2011.00669.x
- Kozma, Agnes, Jim Mansell, and Julie Beadle-Brown. 2009. “Outcomes in Different Residential Settings for People with Intellectual Disability: A Systematic Review.” American Journal on Intellectual and Developmental Disabilities 114(3): 193–222. DOI: 10.1352/1944-7558-114.3.193
- Lincoln, Yvonna S., and Egon G. Guba. 1985. Naturalistic Inquiry. Newbury Park, CA: Sage. DOI: 10.1016/0147-1767(85)90062-8
- Mansell, Jim, and Julie Beadle-Brown. 2012. Active Support: Enabling and Empowering People with Intellectual Disabilities. London: Jessica Kingsley Publishers.
- Mansell, Jim, Julie Beadle-Brown, Beckie Whelton, Celia Beckett, and Aislinn Hutchinson. 2008. “Effect of Service Structure and Organization on Staff Care Practices in Small Community Homes for People with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 21(5): 398–413. DOI: 10.1111/j.1468-3148.2007.00410.x
- Marton, Ference. 1981. “Phenomenography – Describing Conceptions of the World Around Us.” Instructional Science 10(2): 177–200. DOI: 10.1007/BF00132516
- Marton, Ference, and Shirley Booth. 2000. Om lärande [Learning and awareness]. Lund: Studentlitteratur.
- Maxwell, Gregor, Lilly Augustine, and Mats Granlund. 2012. “Does Thinking and Doing the Same Thing Amount to Involved Participation? Empirical Explorations for Finding a Measure of Intensity for a Third ICF-CY Qualifier.” Developmental Neurorehabilitation 15(4): 274–283. DOI: 10.3109/17518423.2012.689780
- Molin, Martin. 2004.
“Att vara i särklass – om delaktighet och utanförskap i gymnasiesärskolan [To be in special school – about inclusion and exclusion in upper-secondary special school].” PhD diss. Linköping University. - Nakken, Han, and Carla Vlaskamp. 2007. “A Need for a Taxonomy for Profound Intellectual and Multiple Disabilities.” Journal of Policy and Practice in Intellectual Disabilities 4(2): 83–87. DOI: 10.1111/j.1741-1130.2007.00104.x
- Nota, Laura, Lea Ferrari, Salvatore Soresi, and Michael Wehmeyer. 2007. “Self-determination, Social Abilities and the Quality of Life of People with Intellectual Disability.” Journal of Intellectual Disability Research 51(11): 850–865. DOI: 10.1111/j.1365-2788.2006.00939.x
- Patterson, Ian, and Shane Pegg. 2009. “Serious Leisure and People with Intellectual Disabilities: Benefits and Opportunities.” Leisure Studies 28(4): 387–402. DOI: 10.1080/02614360903071688
- Qian, Xueqin, Renáta Tichá, Sheryl A. Larson, Roger J. Stancliffe, and Allise Wuorio. 2015. “The Impact of Individual and Organisational Factors on Engagement of Individuals with Intellectual Disability Living in Community Group Homes: A Multilevel Model.” Journal of Intellectual Disability Research 59(6): 493–505. DOI: 10.1111/jir.12152
- Schalock, Robert L., Ivan Brown, Roy Brown, Robert A. Cummins, David Felce, Leena Matikka, et al. 2002. “Conceptualization, Measurement and Application of Quality of Life for Persons with Intellectual Disabilities: Report of an International Panel of Experts.” Mental Retardation 40: 457–470. DOI: 10.1352/0047-6765(2002)040%3C0457:CMAAOQ%3E2.0.CO;2
- SFS 1993: 387.
Act concerning support and services for persons with certain functional impairments . Stockholm: Ministry of Health and Social Affairs. - Sjöström, Björn, and Lars Owe Dahlgren. 2002. “Applying Phenomenography in Nursing Research.” Journal of Advanced Nursing 40(3): 339–345. DOI: 10.1046/j.1365-2648.2002.02375.x
- SÖ 2008: 26. Konvention om rättigheter för personer med funktionsnedsättning [Convention on the Rights of Persons with Disabilities]. Stockholm: Ministry for Foreign Affairs.
- Tideman, Magnus. 2004.
Lika som andra – om delaktighet som likvärdiga levnadsvill-kor. [Similar as others – about participation as equal living conditions] . In A. Gustavsson (Red.). Delaktighetens språk [Language of participation] (s.119–136). Lund: Studentlitteratur. - Wehmeyer, Michael L., Kathy Kelchner, and Sandy Richards. 1996. “Essential Characteristics of Self Determined Behavior of Individuals With Mental Retardation.” American Journal on Mental Retardation 100(6): 632–642.
DOI: https://doi.org/10.16993/sjdr.53 | Journal eISSN: 1745-3011
Language: English
Page range: 78 - 88
Submitted on: Sep 1, 2017
Accepted on: Apr 5, 2019
Published on: May 7, 2019
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2019 Lena Talman, Jenny Wilder, Jonas Stier, Christine Gustafsson, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.