
Addressing Uncertainty and Stigma in Social Relations Related to Hidden Dysfunctions Following Acquired Brain Injury
By: Inger Hellem, Georg Førland, Kjersti Eide and Siri Ytrehus
References
- Ahman, Sara, Britt-Inger Saveman, Johan Styrke, Ulf Bjornstig, and Britt-Marie Stalnacke. 2013. “Long-term Follow-up of Patients with Mild Traumatic Brain Injury: A Mixed-Method Study.” Journal of Rehabilitation Medicine 45(8): 758–764. DOI: 10.2340/16501977-1182
- Carlsson, Gunnel E., Anders Moller, and Christian Blomstrand. 2004. “A Qualitative Study of the Consequences of ‘Hidden Dysfunctions’ One Year after a Mild Stroke in Persons <75 Years.” Disability & Rehabilitation 26(23): 1373–1380. DOI: 10.1080/09638280400000211
- Carlsson, Gunnel E., Anders Moller, and Christian Blomstrand. 2009. “Managing an Everyday Life of Uncertainty – A Qualitative Study of Coping in Persons with Mild Stroke.” Disability & Rehabilitation 31(10): 773–782. DOI: 10.1080/09638280802638857
- Cassidy, J. David, Carol Cancelliere, Linda J. Carroll, Pierre Côté, Cesar A. Hincapié, Lena W. Holm, Jan Hartvigsen et al. 2014. “Systematic Review of Self-reported Prognosis in Adults after Mild Traumatic Brain Injury: Results of the International Collaboration on Mild Traumatic Brain Injury Prognosis.” Archives of Physical Medicine and Rehabilitation 95(3): S132–S151. DOI: 10.1016/j.apmr.2013.08.299
- Chen, Anthony J. W., and Mark D’Esposito. 2010. “Traumatic Brain Injury: From Bench to Bedside to Society.” Neuron 66(1): 11–14. DOI: 10.1016/j.neuron.2010.04.004
- Comper, Paul, Sean M. Bisschop, Nancy Carnide, and Andrea Tricco. 2005. “A Systematic Review of Treatments for Mild Traumatic Brain Injury.” Brain Injury 19(11): 863–880. DOI: 10.1080/02699050400025042
- Corrigan, Patrick W., and Amy C. Watson. 2002. “The Paradox of Self-stigma and Mental Illness.” Clinical Psychology: Science and Practice 9(1): 35–53. DOI: 10.1093/clipsy.9.1.35
- Donnan, Geoffrey A., Marc Fisher, Malcolm Macleod, and Stephen M. Davis. 2008. “Stroke.” The Lancet 371(9624): 1612–1623. DOI: 10.1016/S0140-6736(08)60694-7
- Edwards, Dorothy F., Michele Hahn, Carolyn Baum, and Alexander W. Dromerick. 2006. “The Impact of Mild Stroke on Meaningful Activity and Life Satisfaction.” Journal of Stroke and Cerebrovascular Diseases 15(4): 151–157. DOI: 10.1016/j.jstrokecerebrovasdis.2006.04.001
- Eilertsen, Grethe, Heidi Ormstad, and Marit Kirkevold. 2013. “Experiences of Poststroke Fatigue: Qualitative Meta-synthesis.” Journal of Advanced Nursing 69(3): 514–525. DOI: 10.1111/jan.12002
- Gallacher, Katie, Deborah Morrison, Bhautesh Jani, Sara Macdonald, Carl R. May, Victor M. Montori, Patricia J. Erwin, et al. 2013. “Uncovering Treatment Burden as a Key Concept for Stroke Care: A Systematic Review of Qualitative Research.” PLoS Medicine 10(6):
e1001473 . DOI: 10.1371/journal.pmed.1001473 - Goffman, Erving. 1959. The Presentation of Self in Everyday Life. New York: Anchor Books.
- Goffman, Erving. 1968. Stigma: Notes on the Management of Spoiled Identity. Harmondsworth: Penguin Books.
- Graneheim, Ulla Hällgren, and Berit Lundman. 2004. “Qualitative Content Analysis in Nursing Research: Concepts, Procedures and Measures to Achieve Trustworthiness.” Nurse Education Today 24(2): 105–112. DOI: 10.1016/j.nedt.2003.10.001
- Hall, Alexandra, Brooke Grohn, Emily Nalder, Linda Worrall, and Jennifer Fleming. 2012. “A Mixed Methods Study of the Experience of Transition to the Community of Working-aged People with Non-traumatic Brain Injury.” Brain Impairment 13(1): 85–98. DOI: 10.1017/BrImp.2012.7
- Hommel, Marc, Sandra Trabucco-Miguel, Bernadette Naegele, Nicolas Gonnet, and Assia Jaillard. 2009. “Cognitive Determinants of Social Functioning after a First Ever Mild to Moderate Stroke at Vocational Age.” Journal of Neurology, Neurosurgery & Psychiatry 80(8): 876–880. DOI: 10.1136/jnnp.2008.169672
- Hsieh, Hsiu-Fang, and Sarah E. Shannon. 2005. “Three Approaches to Qualitative Content Analysis.” Qualitative Health Research 15(9): 1277–1288. DOI: 10.1177/1049732305276687
- ICMJE (International Committee of Medical Journal Editors). 2015. “Recommendations for the Conduct, Reporting, Editing, and Publication of Scholarly work in Medical Journals.” ICMJE, December.
http://www.icmje.org/icmje-recommendations.pdf . - Jaillard, Assia, Bernadette Naegele, Sandra Trabucco-Miguel, Jean François Lebas, and Marc Hommel. 2009. “Hidden Dysfunctioning in Subacute Stroke.” Stroke 40(7): 2473–2479. DOI: 10.1161/STROKEAHA.108.541144
- Jones, Janelle M., Jolanda Jetten, S. Alexander Haslam, and W. Huw Williams. 2012.
“Deciding to Disclose: The Importance of Maintaining Social Relationships for Well-being after Acquired Brain Injury.” In The Social Cure: Identity, Health and Well-Being, edited by Jolanda Jetten, Catherine Haslam, and S. Alexander Haslam, 255–271. Hove: Psychology Press. - Konrad, Carsten, Anne Jule Geburek, Fred Rist, Hauke Blumenroth, Bernhard R. Fischer, Ingo W. Husstedt, Volker Arolt, Hagen Schiffbauer, and Hubertus Lohmann. 2011. “Long-term Cognitive and Emotional Consequences of Mild Traumatic Brain Injury.” Psychological Medicine 41(6): 1197–1211. DOI: 10.1017/S0033291710001728
- Krueger, Richard A., and Mary Anne Casey. 2015. Focus Groups: A Practical Guide for Applied Research 5th ed. Thousand Oaks, CA: SAGE Publications.
- Langlois, Jean A., Angela Marr, Jane Mitchko, and Renee L. Johnson. 2005. “Tracking the Silent Epidemic and Educating the Public.” Journal of Head Trauma Rehabilitation 20(3): 196–204. DOI: 10.1097/00001199-200505000-00003
- Lawrence, Maggie. 2010. “Young Adults’ Experience of Stroke: A Qualitative Review of the Literature.” British Journal of Nursing 19(4): 241–248. DOI: 10.12968/bjon.2010.19.4.46787
- Lingsom, Susan. 2008. “Invisible Impairments: Dilemmas of Concealment and Disclosure.” Scandinavian Journal of Disability Research 10(1): 2–16. DOI: 10.1080/15017410701391567
- Lock, Sarah, Lesley Jordan, Karen Bryan, and Jane Maxim. 2005. “Work after Stroke: Focusing on Barriers and Enablers.” Disability & Society 20(1): 33–47. DOI: 10.1080/0968759042000283629
- Malterud, Kirsti. 2011. Kvalitative metoder i medisinsk forskning. En innføring. [Qualitative methods in medical research. An introduction]. 3th ed. Oslo: Universitetsforlaget.
- Marshall, Shawn, Mark Bayley, Scott McCullagh, Diana Velikonja, and Lindsay Berrigan. 2012. “Clinical Practice Guidelines for Mild Traumatic Brain Injury and Persistent Symptoms.” Canadian Family Physician 58(3): 257–267. DOI: 10.3109/02699052.2015.1004755
- Morgan, David L., and Richard A. Krueger. 1998. The Focus Group Kit. Thousand Oaks, CA: SAGE Publications.
- Nortvedt, Line, and May Solveig Fagermoen. 2010. “Hjerneskade og selvpresentasjon. En kvalitativ studie.” [Brain Injury and Self-presentation – a Qualitative Study]. Nordic Journal of Nursing Research 30(2): 18–22. DOI: 10.1177/010740831003000205
- Ownsworth, Tamara. 2014. Self-Identity after Brain Injury. Hove: Psychology Press.
- Patton, Michael Quinn. 2015. Qualitative Research & Evaluation Methods. 4th ed. Thousand Oaks, CA: SAGE Publications.
- Peeters, Wouter, Ruben van den Brande, Suzanne Polinder, Alexandra Brazinova, Ewout W. Steyerberg, Hester F. Lingsma, and Andrew I. R. Maas. 2015. “Epidemiology of traumatic brain injury in Europe.” Acta Neurochir 157:1683–1696. DOI: 10.1007/s00701-015-2512-7
- Raffel, Stanley. 2013. “The Everyday Life of the Self: Reworking Early Goffman.” Journal of Classical Sociology 13(1): 163–178. DOI: 10.1177/1468795X12474055
- Ralph, Andrea, and Catherine Derbyshire. 2013. “Survivors of Brain Injury through the Eyes of the Public: A Systematic Review.” Brain Injury 27(13–14): 1475–1491. DOI: 10.3109/02699052.2013.823653
- Rochette, Annie, Johanne Desrosiers, Gina Bravo, Denise St-Cyr-Tribble, and Annick Bourget. 2007. “Changes in Participation after a Mild Stroke: Quantitative and Qualitative Perspectives.” Topics in Stroke Rehabilitation 14(3): 59–68. DOI: 10.1310/tsr1403-59
- Roe, Cecilie, Unni Sveen, Kristin Alvsåker, and Erik Bautz-Holter. 2009. “Post-concussion Symptoms after Mild Traumatic Brain Injury: Influence of Demographic Factors and Injury Severity in a 1-Year Cohort Study.” Disability & Rehabilitation 31(15): 1235–1243. DOI: 10.1080/09638280802532720
- Romsland, Grace Inga. 2008.
“Erfaringer fra et rystet selv: om å leve med kognitive vanskeligheter etter ervervet hjerneskade.” [Experiences from a Shaken Self: Living with Cognitive Difficulties after Acquired Brain Injury] . Phd diss., University of Oslo. Accessed 29 May 2013.https://www.duo.uio.no/handle/10852/30013 . - Santuzzi, Alecia M., Pamela R. Waltz, Lisa M. Finkelstein, and Deborah E. Rupp. 2014. “Invisible Disabilities: Unique Challenges for Employees and Organizations.” Industrial and Organizational Psychology 7(2): 204–219. DOI: 10.1111/iops.12134
- Sarre, Sophie, Cara Redlich, Anthea Tinker, Euan Sadler, Ajay Bhalla, and Christopher McKevitt. 2014. “A Systematic Review of Qualitative Studies on Adjusting after Stroke: Lessons for the Study of Resilience.” Disability & Rehabilitation 36(9): 716–726. DOI: 10.3109/09638288.2013.814724
- Squiers, Linda, Susana Peinado, Nancy Berkman, Vanessa Boudewyns, and Lauren McCormack. 2012. “The Health Literacy Skills Framework.” Journal of Health Communication 17(3): 30–54. DOI: 10.1080/10810730.2012.713442
- Stone, Sharon Dale. 2005. “Reactions to Invisible Disability: The Experiences of Young Women Survivors of Hemorrhagic Stroke.” Disability & Rehabilitation 27(6): 293–304. DOI: 10.1080/09638280400008990
- Sveen, Unni, Sigrid Ostensjo, Sara Laxe, and Helene L. Soberg. 2013. “Problems in Functioning after a Mild Traumatic Brain Injury within the ICF Framework: The Patient Perspective using Focus Groups.” Disability & Rehabilitation 35(9): 749–57. DOI: 10.3109/09638288.2012.707741
- Wilson, Barbara A. 2002. “Towards a comprehensive model of cognitive rehabilitation.” Neuropsychological Rehabilitation 12(2): 97–110. DOI: 10.1080/09602010244000020
- WHO (World Health Organization). 2003. The World Health Report 2003: Shaping the Future. Geneva: World Health Organization.
DOI: https://doi.org/10.16993/sjdr.24 | Journal eISSN: 1745-3011
Language: English
Page range: 152 - 161
Submitted on: May 4, 2017
Accepted on: May 4, 2017
Published on: Mar 13, 2018
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2018 Inger Hellem, Georg Førland, Kjersti Eide, Siri Ytrehus, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.