
‘I am Trying so Hard to Smile’: Ableism and Feeling Rules When Living with Traumatic Brain Injury
References
- Alston, Margaret, Jennifer Jones, and Michael Curtin. 2012. “Women and Traumatic Brain Injury: “It’s Not Visible Damage”.” Australian Social Work 65 (1): 39–53. DOI: 10.1080/0312407X.2011.594898
- Brewin, Chris R., Suzanna Rose, Bernice Andrews, John Green, Phillip Tata, Chris McEvedy, Stuart Turner, and Edna N. Foa. 2002. “Brief Screening Instrument for Post-traumatic Stress Disorder.” The British Journal of Psychiatry 181 (2): 158–162. DOI: 10.1192/bjp.181.2.158
- Broom, Aled F., Emma Kirby, Jon Adams, and Kathryn M. Refshauge. 2014. “On illegitamacy, Suffering and Recognition: A Diary Study of Women Living with Chronic Pain”. Sociology 49(4): 712–31. DOI: 10.1177/0038038514551090
- Campbell, Fiona Kumari. 2008. “Refusing Able (ness): A Preliminary Conversation About Ableism.” M/C Journal 11 (3). DOI: 10.5204/mcj.46
- Campbell, Fiona Kumari. 2009. Contours of ableism: The production of disability and abledness. London: Palgrave Macmillan.
- Campbell, Fiona Kumari. 2013. “Ableism: A theory of everything.” Keynote presented for the International Conference on Linking Concepts of Critical Ableism and Racism Studies with Research on Conflicts of Participation, Hamburg, Germany,
June ,University of Hamburg . Accessed on 20 November 2024.https://youtu.be/dY3EMNaB5p0 . - Campbell, Stephen M., and Joseph A. Stramondo. 2023. “Expressed Ableism.” Ergo an Open Access Journal of Philosophy 9: 60. DOI: 10.3998/ergo.3585
- Chamberlain, J. Diane. 2006. “The Experience of Surviving Traumatic Brain Injury.” Journal of Advanced Nursing 54 (4): 407–417. DOI: 10.1111/j.1365-2648.2006.03840.x
- Davis, Ann N. 2005. “Invisible Disability.” Ethics 116 (1): 153–213. DOI: 10.1086/453151
- Dewan, Michael C., Abbas Rattani, Saksham Gupta, Ronnie E. Baticulon, Ya-Ching Hung, Maria Punchak, Amit Agrawal, Ams O. Adeleye, Mark G. Shrime, Andrés M. Rubiano, Jeffrey V. Rosenfeld, and Kee B. Park. 2018. “Estimating the Global Incidence of Traumatic Brain Injury.” Journal of Neurosurgery 130 (4): 1080–1097. DOI: 10.3171/2017.10.JNS17352
- Eickers, Gen. 2023.
“Pathologizing Disabled and Trans Identities: How Emotions Become Marginalized.” In The Bloomsbury Guide to Philosophy of Disability, edited by Shelly Lynn Tremain, 360–379. London: Bloomsbury Academic. DOI: 10.5040/9781350268937.0024 - Engelman, William, Fiona M. Hammond, and James F. Malec. 2014. “Diagnosing Pseudobulbar Affect in Traumatic Brain Injury.” Neuropsychiatric Disease and Treatment 10: 1903–1910. DOI: 10.2147/NDT.S63304
- Frissa, Souci, Stephanie L. Hatch, Nicola T. Fear, Sarah Dorrington, Laura Goodwin, and Mathew Hotopf. 2016. “Challenges in the Retrospective Assessment of Trauma: Comparing a Checklist Approach to a Single Item Trauma Experience Screening Question.” BMC Psychiatry 16 (20): 1–9. DOI: 10.1186/s12888-016-0720-1
- Goffman, Erving. 1959. The Presentation of Self in Everyday Life. New York: Anchor Books.
- Goffman, Erving. 1963. Stigma: Notes on the Management of Spoiled Identity. New York: Simon and Schuster.
- Goffman, Erving. 1967. Interaction Ritual: Essays on Face-to-Face Behavior. New York: Routledge.
- Goodley, Dan. 2014. Dis/Ability Studies: Theorising Disablism and Ableism. London: Routledge. DOI: 10.4324/9780203366974
- Goodley, Dan, Kirsty Liddiard, and Katherine Runswick-Cole. 2018. “Feeling Disability: Theories of Affect and Critical Disability Studies.” Disability & Society 33 (2): 197–217. DOI: 10.1080/09687599.2017.1402752
- Gray, David E. 2018. Doing Research in the Real World, 4th edition. London: Sage.
- Green, Julie, Karen Willis, Emma Hughes, Rhonda Small, Nicky Welch, Lisa Gibbs, and Jeanne Daly. 2007. “Generating Best Evidence from Qualitative Research: The Role of Data Analysis.” Australian and New Zealand Journal of Public Health, 31 (6): 545–550. DOI: 10.1111/j.1753-6405.2007.00141.x
- Harvey, Jonathan. 2017. A Sociological Approach to Acquired Brain Injury and Identity. London: Routledge. DOI: 10.4324/9781315565217
- Hochschild, Arlie Russel. 1979. “Emotion Work, Feeling Rules, and Social Structure.” American Journal of Sociology 85 (3): 551–575.
https://www.jstor.org/stable/2778583 - Hochschild, Arlie Russel. 1983. The Managed Heart: Commercialization of Human Feeling. Berkeley, CA: University of California Press.
- Howlett, Jonathan R., Lindsay D. Nelson, and Murray B. Stein. 2022. “Mental Health Consequences of Traumatic Brain Injury.” Biological Psychiatry 91 (5): 413–420. DOI: 10.1016/j.biopsych.2021.09.024
- Kattari, Shanna K., Miranda Olzman, and Michele D. Hanna. 2018. “You Look Fine!” Ableist Experiences by People with Invisible Disabilities.” Affilia, Journal of Women & Social Work 33 (4): 477–492. DOI: 10.1177/0886109918778073
- Maas, Andrew I. R., David K. Menon, Geoffrey T. Manley, Mathew Abrams, Cecillia Åkerlund, Nada Andelic, et al. 2022. “Traumatic Brain Injury: Progress and Challenges in Prevention, Clinical Care, and Research.” The Lancet Neurology 21 (11): 1004–1060. DOI: 10.1016/S1474-4422(22)00309-X
- McDonald, Skye, and Helen Genova. 2021. “The Effect of Severe Traumatic Brain Injury on Social Cognition, Emotion Regulation, and Mood.” Handbook of Clinical Neurology 183 (1): 235–260. DOI: 10.1016/B978-0-12-822290-4.00011-6
- McQueen, Fiona. 2023. “The New Feeling Rules of Emotion Work in Heterosexual Couple Relationships.” Emotions and Society 5 (1): 85–99. DOI: 10.1332/263169021X16541387415753
- Murphy, Jillian M., Joanne M. Bennett, Xochitl de la Piedad Garcia, and Megan L. Willis. 2022. “Emotion Recognition and Traumatic Brain Injury: A Systematic Review and Meta-analysis.” Neuropsychology Review 32 (3): 520–536. DOI: 10.1007/s11065-021-09510-7
- Pavlovic, Dragan, Sandra Pekic, Marko Stojanovic, and Vera Popovic. 2019. “Traumatic Brain Injury: Neuropathological, Neurocognitive and Neurobehavioral Sequelae.” Pituitary 22 (3): 270–282. DOI: 10.1007/s11102-019-00957-9
- Reeve, Donna. 2019.
“Psycho-Emotional Disablism: The Missing Link?” In Routledge Handbook of Disability Studies, edited by Nick Watson, Alan Roulstone, and Carol Thomas, 201–116. London: Routledge. DOI: 10.4324/9780429430817-8 - Salas, Christian E., Martin Casassus, Leanne Rowlands, Steve Pimm, and Desmond A.J. Flanagan. 2016. ““Relating through Sameness”: A Qualitative Study of Friendship and Social Isolation in Chronic Traumatic Brain Injury.” Neuropsychological Rehabilitation 28 (7): 1161–1178. DOI: 10.1080/09602011.2016.1247730
- Stocchetti, Nino, and Elise R. Zanier. 2016. “Chronic Impact of Traumatic Brain Injury on Outcome and Quality of Life: A Narrative Review.” Critical Care 20 (1): 1–10. DOI: 10.1186/s13054-016-1318-1
- Theodosius, Catherine. 2006. “Recovering Emotion from Emotion Management.” Sociology 40 (5): 893–910. DOI: 10.1177/0038038506067512
- Valeras, Aimee Burke. 2010. ““We Don’t Have a Box”: Understanding Hidden Disability Identity Utilizing Narrative Research Methodology.” Disability Studies Quarterly 30 (3/4).
https://dsq-sds.org/index.php/dsq/article/view/1267/1297 . DOI: 10.18061/dsq.v30i3/4.1267 - Watermeyer, Brian. 2017. ““I Don’t Have Time for an Emotional Life”: Marginalization, Dependency and Melancholic Suspension in Disability.” Culture, Medicine, and Psychiatry: An International Journal of Cross-Cultural Health Research 41 (1): 142–160. DOI: 10.1007/s11013-016-9503-x
- Watermeyer, Brian, and Leslie Swartz. 2008. “Conceptualising the Psycho-emotional Aspects of Disability and Impairment: The Distortion of Personal and Psychic boundaries.” Disability & Society 23 (6): 599–610. DOI: 10.1080/09687590802328477
- Wingfield, Adia H. 2010. “Are Some Emotions Marked “Whites Only”? Racialized Feeling Rules in Professional Workplaces.” Social Problems 57 (2): 251–268. DOI: 10.1525/sp.2010.57.2.251
DOI: https://doi.org/10.16993/sjdr.1347 | Journal eISSN: 1745-3011
Language: English
Page range: 635 - 647
Submitted on: Jul 28, 2025
Accepted on: Nov 13, 2025
Published on: Nov 21, 2025
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
© 2025 Ash Barnes, Peta S. Cook, Christine Padgett, Jenna M. Ziebell, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.