Handling Uncertainty When Seeking Care: How People with Disabilities Encounter and Manage Barriers Within Swedish Healthcare

– Public transport infrastructure (buses, trams)

– Parking spaces

– Distance to hospital

– Transport nodes

– Anxiety about travel

– Anxiety about independence

– Emotional burden of planning

– Building design (stairs, elevators, doors)

– Room size and layout

– Toilet accessibility

– Examination tables

– Feelings of exclusion

– Feeling dependent on staff

– Feeling vulnerable in unfamiliar spaces

– Lack of assistive equipment (e.g., lifts)

– Time constraints due to scheduling systems

– Facing impoliteness or ignorance

– Lack of empathy

– Tiredness of repetition of medical history

– Emotional exhaustion

– Inaccessible ordering systems

– Incorrect deliveries

– Lack of home delivery

– Physical effort to retrieve supplies

– Feeling frustration and fatigue

– Exhaustion from being dependent on relatives

– Sense of isolation

– Tiredness of negotiation with institutions