Skip to main content
Have a personal or library account? Click to login
Forced Into an Ableist Narrative? The Swedish Covid Association’s Quest for Recognition Cover

Forced Into an Ableist Narrative? The Swedish Covid Association’s Quest for Recognition

By:  and    
Open Access
|Jun 2025

References

  1. Bahner, Julia. 2022. “Nothing About Us Without … Who? Disability Rights Organisations, Representation and Collaborative Governance.” International Journal of Disability and Social Justice 2(2):4064. DOI: 10.13169/intljofdissocjus.2.2.0040
  2. Bosi, Lorenzo, and Anna Lavizzari. 2023. “How Young Activists Responded to the First Wave of the Covid-19 Crisis in Italy: Variations across Trajectories of Participation.” Mobilization: An International Quarterly 28(1):89107. DOI: 10.17813/1086-671X-28-1-89
  3. Charlton, James I. 1998. Nothing About Us Without Us: Disability Oppression and Empowerment. Berkeley: University of California Press. DOI: 10.1525/9780520925441
  4. Chowaniec-Rylke, Anna. 2019. “‘Lchad Poland’ and the Fight Against Inequality. The Role of Internet Advocacy in Cases of a Rare Genetic Condition.” In The Routledge Handbook of Disability Activism, edited by Maria Berghs, Tsitsi Chataika, Yahya El-Lahib & Kudakwashe Dube, 289296. London: Routledge. DOI: 10.4324/9781351165082-23
  5. Crow, Deserai, and Michael D. Jones. 2018. “Narratives as Tools for Influencing Policy Change.” Policy & Politics 46(2):21734. DOI: 10.1332/030557318X15230061022899
  6. Frank, Arthur W. 2013. The Wounded Storyteller. Chicago: The University of Chicago Press.
  7. Fraser, Nancy. 1993. “Clintonism, Welfare, and the Antisocial Wage: The Emergence of a Neoliberal Political Imaginary.” Rethinking Marxism 6(1):923. DOI: 10.1080/08935699308658040
  8. Garden, Rebecca. 2010. “Disability and Narrative: New Directions for Medicine and the Medical Humanities.” Medical Humanities 36:7074. DOI: 10.1136/jmh.2010.004143
  9. Geiss, Carley, and Justine E. Egner. 2022. “Examining Organizational Narratives – Public Appeals of Morality, Emotions and Medical Logic in the Case of Sex Work for Disabled Clients.” Sociological Inquiry 92(3):10291052. DOI: 10.1111/soin.12445
  10. Goodley, Dan, Rebecca Lawthom, Kirsty Liddiard, and Katherine Runswick-Cole. 2019. “Provocations for Critical Disability Studies.” Disability & Society 34(6):972997. DOI: 10.1080/09687599.2019.1566889
  11. Grue, Jan. 2014a. “Technically Disabled, Ill for All Practical Purposes? Myalgic Encephalopathy/Chronic Fatigue Syndrome Discourse in Norway.” Disability & Society 29(2):213223. DOI: 10.1080/09687599.2013.796876
  12. Grue, Jan. 2014b. “A Garden of Forking Paths: A Discourse Perspective on ‘Myalgic Encephalomyelitis’ and ‘Chronic Fatigue Syndrome.’” Critical Discourse Studies 11(1):3548. DOI: 10.1080/17405904.2013.829114
  13. Grue, Jan. 2016. “The Social Meaning of Disability: A Reflection on Categorisation, Stigma and Identity.” Sociology of Health & Illness 38(6):957964. DOI: 10.1111/1467-9566.12417
  14. Higashi, Robin T., Allison Tillack, Michael A. Steinman, C. Bree Johnston, and G. Michael Harper. 2013. “The ‘Worthy’ Patient: Rethinking the ‘Hidden Curriculum’ in Medical Education.” Anthropology and Medicine 20(1):1323. DOI: 10.1080/13648470.2012.747595
  15. Hoffman, Beatrix. 2012. Health Care for Some: Rights and Rationing in the United States Since 1930. Toronto: University of Toronto Press. DOI: 10.7208/chicago/9780226348056.001.0001
  16. Jones, Michael D., and Mark K. McBeth. 2010. “Narrative Policy Framework: Clear Enough to be Wrong.” Policy Studies Journal 38(2):32953. DOI: 10.1111/j.1541-0072.2010.00364.x
  17. Kleinman, Arthur. 1988. The Illness Narratives: Suffering, Healing and the Human Condition. New York: Basic Books.
  18. Krantz, Oskar, and Stina Melander. 2024. “Funktionsrättsrörelsen i dag: Kamp för förändring och engagemang.” [“The Disability Rights Movement Today: Struggle for Change and Engagement.”]. In Funktionsförmåga, funktionshinder och socialt arbete edited by Hanna Egard, Ingrid Runesson, and Matilda Svensson Chowdhury, 197208. Malmö: Gleerups.
  19. LCE, Long COVID Europe. 2024. “Long COVID Europe.” Accessed November 9, 2024. https://longcovideurope.org/
  20. Ludvigsson, Jonas F. 2023. “How Sweden Approached the COVID-19 Pandemic: Summary and Commentary on the National Commission Inquiry.” Acta Paediatrica 112(1):1933. DOI: 10.1111/apa.16535
  21. Macpherson, Karen, Kay Cooper, Jenny Harbour, Dawn Mahal, Charis Miller, and Moray Nairn. 2022. “Experiences of Living with Long COVID and of Accessing Healthcare Services: A Qualitative Systematic Review.” BMJ Open 12:e050979. DOI: 10.1136/bmjopen-2021-050979
  22. Mankell, Anna. 2021. “Collective Patient Participation: Patient Voice and Civil Society Organizations in Healthcare.” PhD diss., Ersta Sköndal Bräcke University College.
  23. Meekosha, Helen, and Russell Shuttleworth. 2009. “What’s So ‘Critical’ About Critical Disability Studies?” Australian Journal of Human Rights 15(1):4775. DOI: 10.1080/1323238X.2009.11910861
  24. Rushforth, Alex, Emma Ladds, Sietse Wieringa, Sharon Taylor, Laiba Husain, and Trisha Greenhalgh. 2021. “Long Covid – The Illness Narratives.” Social Science & Medicine 286:114326. DOI: 10.1016/j.socscimed.2021.114326
  25. Sakalys, Jurate A. 2000. “The Political Role of Illness Narratives.” Journal of Advanced Nursing 31(6):14691475. DOI: 10.1046/j.1365-2648.2000.01461.x
  26. Scully, Jackie Leach. 2020. “Disability, Disablism, and COVID-19 Pandemic Triage.” Bioethical Inquiry 17:601605. DOI: 10.1007/s11673-020-10005-y
  27. Sépulchre, Marie, and Lars Lindberg. 2020. “Swedish Disability Activism – From Welfare to Human Rights?.” In The Routledge Handbook of Disability Activism, edited by Marie Berghs, Tsitsi Chataika, Yahya El-Lahib, and Kudakwashe Dube, 398411. Abingdon: Routledge. DOI: 10.4324/9781351165082-32
  28. Shanahan, Elizabeth A., Michael D. Jones, and Mark K. McBeth. 2018. “How to Conduct a Narrative Policy Framework Study.” The Social Science Journal 55(3):33245. DOI: 10.1016/j.soscij.2017.12.002
  29. Shenhav, Shaul. 2015. Analyzing Social Narratives. New York: Routledge. DOI: 10.4324/9780203109083
  30. Smith, Brett, and Monforte, Javier. 2020. “Stories, New Materialism and Pluralism: Understanding, Practising and Pushing the Boundaries of Narrative Analysis.” Methods in Psychology 2:100016. DOI: 10.1016/j.metip.2020.100016
  31. Strandberg, Gunilla, Gunilla Åström, and Astrid Norberg. 2002. “Struggling to Be/Show Oneself Valuable and Worthy to Get Care.” Scandinavian Journal of Caring Sciences 16(1):4351. DOI: 10.1046/j.1471-6712.2002.00053.x
  32. Tarvainen, Merja. 2019. “Ableism and the Life Stories of People with Disabilities.” Scandinavian Journal of Disability Research 21(1):291299. 10.16993/sjdr.632
  33. Tarvainen, Merja, and Mari Kivistö. 2023. “Clients’ and Social Workers’ Stories About Discretion in Social Work with Persons with Disabilities.” Qualitative Social Work 23(6):936950. DOI: 10.1177/14733250231214198
  34. WHO. 2020. “Disability Considerations During the COVID-19 Outbreak.” Accessed November 7, 2024. https://www.who.int/publications/i/item/WHO-2019-nCoV-Disability-2020-1
DOI: https://doi.org/10.16993/sjdr.1234 | Journal eISSN: 1745-3011
Language: English
Page range: 299 - 312
Submitted on: Dec 9, 2024
Accepted on: May 28, 2025
Published on: Jun 10, 2025
In partnership with: Paradigm Publishing Services

© 2025 Stina Melander, Julia Bahner, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.