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‘Caring for Him Makes Me More Sensitive, like a Kind of Prayer’: Intimate Physical Care for Aging Family Members with Intellectual and Developmental Disabilities in Religious Muslim and Ultra-Orthodox Jewish Societies Cover

‘Caring for Him Makes Me More Sensitive, like a Kind of Prayer’: Intimate Physical Care for Aging Family Members with Intellectual and Developmental Disabilities in Religious Muslim and Ultra-Orthodox Jewish Societies

By:  and    
Open Access
|Mar 2025

Figures & Tables

Figure 1

Venn Diagram representing components of the Integrative Model of Family Care.

Table 1

Characteristics of participating families (N = 16).

COMMUNITYCAREGIVERAGECARE RECIPIENT AGEDISABILITY TYPE
HarediMother-Shifra7554Severe CP + Moderate IDD
HarediMother-Dorit7045Moderate IDD + Hemiplegia
HarediMother-Rachel7847Severe Autism + Moderate IDD
HarediMother-Miriam7847Severe IDD
HarediSister-Nechama5650Moderate IDD
HarediBrother-Netanel3454Moderate Autism + Mild IDD
HarediSister-Sarah4847Moderate IDD
HarediSister-Chaya4847Mild IDD
Haredi AvgParents: 75.3Siblings: 46.548.9
MuslimMother-Walaa6543Moderate IDD
MuslimMother-Amira7641Severe CP + Severe IDD
MuslimMother-Samira7646Moderate IDD
MuslimMother-Fatima7644Severe Autism + Moderate IDD
MuslimSister-Yasmin5740Mild IDD
MuslimSister-Limor6859Moderate IDD
MuslimBrother-Omar3642Mild IDD
MuslimSister-Noor3641Moderate IDD + Hemiplegia
Muslim AvgParents: 73.3Siblings: 49.344.5
Table 2

Themes, Subcategories, and Representative Examples of Intimate Care in Faith-Based Communities.

THEMESUBCATEGORIESREPRESENTATIVE EXAMPLESNUMBER OF MEANING UNITSEXPLANATION
Theme 1: Intimate Care as Preservation of Family HonorFamily unity‘Caring for him reflects the respect we give to our parents.’11Demonstrates the importance of shared responsibility within the family.
Respecting parents‘This is what being a family is all about.’11Highlights the cultural norm of honoring and prioritizing parents.
Preserving dignity‘Even in the smallest details, we maintain dignity.’12Reflects the cultural and moral value of treating individuals with respect.
Modesty‘I didn’t see this being done modestly.’8Addresses how modest behavior is tied to preserving family honor.
Theme 2: Intimate Care as an Act of Religious KindnessReligious duty‘This act is done with devotion and faith.’13Shows how caregiving is perceived as fulfilling a religious obligation.
Fulfilling religious commandments‘It’s both a mitzvah and a way to show kindness.’13Links caregiving to specific religious practices and values.
Connecting with God‘Through this, I feel closer to the divine.’10Demonstrates the spiritual connection fostered through caregiving.
Internal appreciation‘It feels like angelic work, motivated by belief.’9Reflects the inner sense of fulfillment and purpose through faith-based caregiving.
Theme 3: Intimate Care as a Means for Self-ImprovementPersonal growth‘Caring for him is to make me more sensitive, a kind of prayer.’12Highlights how caregiving fosters emotional sensitivity and spiritual development.
Faith and resilience‘You can despair, and it won’t help you. However, you can see it as a true test of faith.’10Shows how individuals use caregiving as a way to build resilience.
Acceptance of others‘My role is to expand the circle of containment and acceptance of the other and the different.’8Reflects how caregiving encourages inclusion and acceptance of diversity.
DOI: https://doi.org/10.16993/sjdr.1193 | Journal eISSN: 1745-3011
Language: English
Page range: 106 - 119
Submitted on: Sep 13, 2024
Accepted on: Feb 3, 2025
Published on: Mar 7, 2025
In partnership with: Paradigm Publishing Services

© 2025 Alon Zamir, Rabab Awad, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.