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Dis/Entangling Disability, Mental Health, and the Cultural Politics of Care Cover

Dis/Entangling Disability, Mental Health, and the Cultural Politics of Care

Open Access
|Feb 2024

References

  1. Ahmed, Sara. 2014. Cultural Politics of Emotion. Edinburgh: Edinburgh University Press.
  2. Ahmed, Sara. 2017. Living a Feminist Life. Durham and London: Duke University Press.
  3. Barad, Karen. 2007. Meeting the Universe Halfway: Quantum Physics and the Entanglement of Matter and Meaning. Durham and London: Duke University Press. DOI: 10.2307/j.ctv12101zq
  4. Baril, Alexandre, and Trevenen, Kathryn. 2014. “Exploring Ableism and Cisnormativity in the Conceptualization of Identity and Sexuality ‘Disorders’.” Annual Review of Critical Psychology 11(1): 389416
  5. Bennett, Elizabeth A., Cordner, Alissa, Klein, Peter Taylor, Savell, Stephanie, and Baiocchi, Gianpaolo. 2013. “Disavowing Politics: Civic Engagement in an Era of Political Scepticism.” American Journal of Sociology 119(2): 518548. DOI: 10.1086/674006
  6. Beresford, Peter, and Rose, Diana. 2023. “Decolonising Global Mental Health: The Role of Mad Studies.” Cambridge Prisms: Global Mental Health 10: 30. DOI: 10.1017/gmh.2023.21
  7. Beresford, Peter, and Russo, Jasna. 2016. “Supporting the Sustainability of Mad Studies and Preventing Its Co-Option.” Disability & society 31(2): 270274. DOI: 10.1080/09687599.2016.1145380
  8. Bowlby, Sophie. 2012. “Recognising the Time—Space Dimensions of Care: Caringscapes and Carescapes.” Environment and Planning A 44(9): 21012118. DOI: 10.1068/a44492
  9. Braun, Virginia, and Clarke, Victoria. 2022. Thematic Analysis: A Practical Guide. London: Sage. DOI: 10.53841/bpsqmip.2022.1.33.46
  10. Brinkmann, Svend. 2014. “Doing Without Data.” Qualitative Inquiry 20(6): 720725. DOI: 10.1177/1077800414530254
  11. Campbell, Fiona Kumari. 2009. Contours of ableism: The production of disability and abledness. Springer. DOI: 10.1057/9780230245181
  12. Carers UK. 2020. “Comprehensive Spending Review Carers UK Submission 2020.” Online at: https://www.carersuk.org/media/tdcntqjs/comprehensive-spending-review-2020-carers-uk-submission.pdf.
  13. Carlson, Licia. 2001. “Cognitive Ableism and Disability Studies: Feminist Reflections on the History of Mental Retardation.” Hypatia 16(4): 124146. DOI: 10.1111/j.1527-2001.2001.tb00756.x
  14. Castrodale, Mark Anthony. 2017. “Critical Disability Studies and Mad Studies: Enabling New Pedagogies in Practice.” Canadian Journal for the Study of Adult Education 29(1): 4966. https://cjsae.library.dal.ca/index.php/cjsae/article/view/5357.
  15. Cluley, Victoria. 2018. “From “Learning Disability to Intellectual Disability”—Perceptions of the Increasing Use of the Term “Intellectual Disability” in Learning Disability Policy, Research and Practice.” British Journal of Learning Disabilities 46(1): 2432. DOI: 10.1111/bld.12209
  16. Crocker, Joanna C, Boylan, Anne-Marie, Bostock, Jennifer, and Locock, Louise. 2017. “Is It Worth It? Patient and Public Views on the Impact of Their Involvement in Health Research and Its Assessment: A UK-Based Qualitative Interview Study.” Health Expectations 20(3): 519528. DOI: 10.1111/hex.12479
  17. Daley, Andrea, Costa, Lucy, and Beresford, Peter (Editors). 2019. Madness, Violence, and Power: A Critical Collection. Toronto, Buffalo, London: University of Toronto Press. DOI: 10.3138/9781442629981
  18. Davies, Olivia (Reporter), and Plomin, Joe (Producer). 2019. “Under Cover Hospital Abuse Scandal.” Panorama. BBC: UK.
  19. Digital National Health Service (NHS). 2022. “Adult Social Care Activity and Finance Report, England, 2021–22.” Online at: https://digital.nhs.uk/data-and-information/publications/statistical/adult-social-care-activity-and-finance-report/2021-22#.
  20. Drotbohm, Heike. 2022. “Care Beyond Repair.” Oxford Research Encyclopaedia of Anthropology. Oxford. DOI: 10.1093/acrefore/9780190854584.013.411
  21. Finkelstein, Vic. 1999. Professions allied to the community (PACs). Centre for Disability Studies: University of Leeds.
  22. Fisher, Berenice, and Tronto, Joan C. 1990. Toward a feminist theory of caring. In Circles of care, edited by E. Abel and MJ Nelson, 2942. New York: Suny Press.
  23. Forrester-Jones, Rachel. 2021. “Older Carers of People with Learning Disabilities: Their Experiences with Local Authority Assessment Processes and Personnel.” Tizard Learning Disability Review 26(2): 105113. DOI: 10.1108/TLDR-10-2020-0029
  24. Foucault, Michael. 1994. Michel Foucault (Vol. 2). Oxford: Taylor & Francis.
  25. Gilligan, Carol. 1982. In a different voice: Psychological theory and women’s development. Cambridge, MA: Harvard University Press.
  26. Goffman, Erving. 1963. Stigma: Notes on the Management of Spoiled Identity. London: Penguin.
  27. Goodley, Dan, Lawthom, Rebecca, Liddiard, Kirsty, and Runswick-Cole, Katherine. 2019. Provocations for critical disability studies. Disability & Society 34(6): 972997. DOI: 10.1080/09687599.2019.1566889
  28. Goodley, Dan, Liddiard, Kirsty, and Runswick-Cole, Katherine. 2018. Feeling disability: Theories of affect and critical disability studies. Disability & society 33(2): 197217. DOI: 10.1080/09687599.2017.1402752
  29. Goodley, Daniel. 2014. Dis/Ability Studies: Theorising Disablism and Ableism. Abingdon: Routledge. DOI: 10.4324/9780203366974
  30. Goodley, Daniel, and Rapley, Mark. 2001. “How Do You Understand “Learning Difficulties”? Towards a Social Theory of Impairment.” Mental Detardation 39(3): 229232. DOI: 10.1352/0047-6765(2001)039<;0229:HDYULD>2.0.CO;2
  31. Guest, Carly, and Corrigan, Oonagh. 2018. “Extraordinary Normalcy: Home, Relationships and Identities in Narratives of Unpaid Care.” Health & Place 53: 7178. DOI: 10.1016/j.healthplace.2018.07.008
  32. Hall, Melinda C. 2019. “Critical Disability Theory.” In The Stanford Encyclopaedia of Philosophy (Winter 2019 Edition), edited by Edward N. Zalta, URL = < https://plato.stanford.edu/archives/win2019/entries/disability-critical/>.
  33. Haraway, Donna. 2016. Manifestly haraway (Vol. 37). U of Minnesota Press. DOI: 10.5749/minnesota/9780816650477.001.0001
  34. Hatton, Chris, Hastings, Richard P., Caton, Sue, Bradshaw, Jill, Jahoda, Andrew, Kelly, Rosemary, Maguire, Roseann, Oloidi, Edward, Taggart, Laurence, Todd, Stuart, and The Coronavirus and People with Learning Disabilities Study Team. 2024. “Health and Healthcare of People with Learning Disabilities in the United Kingdom through the COVID-19 Pandemic.” British Journal of Learning Disabilities 12. DOI: 10.1111/bld.12578
  35. Heinemann, Linda V., and Heinemann, Torsten. 2017. “Burnout Research: Emergence and Scientific Investigation of a Contested Diagnosis.” Sage Open 7(1): 2158244017697154. DOI: 10.1177/2158244017697154
  36. Herring, Jonathan. 2014. “The Disability Critique of Care.” Elder Law Review 8 NA. Gale Academic OneFile (accessed February 12, 2024). https://link.gale.com/apps/doc/A394184477/AONE?u=anon~9c632343&sid=sitemap&xid=5d5f5c02.
  37. Her Majesty’s Stationery Office (HMSO). 2014. The Care Act 2014. London: HMSO
  38. Hughes, Bill, McKie, Linda, Hopkins, Debra, and Watson, Nick. 2005. “Love’s Labours Lost? Feminism, the Disabled People’s Movement and an Ethic of Care.” Sociology 39(2): 259275. DOI: 10.1177/0038038505050538
  39. Hutcheon, Emily, and Wolbring, Gregor. 2013. ““Cripping” Resilience: Contributions from Disability Studies to Resilience Theory.” M/C Journal 16(5). DOI: 10.5204/mcj.697
  40. Jackson, Alecia Y., and Mazzei, Lisa A. 2022. Thinking with Theory in Qualitative Research. London and New York: Routledge Taylor & Francis Group.
  41. Kelly, Christine. 2011. “Making ‘Care’ Accessible: Personal Assistance for Disabled People and the Politics of Language.” Critical Social Policy 31(4): 562582. DOI: 10.1177/0261018311410529
  42. Kittay, Eva Feder. 2019. Love’s Labor: Essays on Women, Equality and Dependency. Abingdon: Routledge. DOI: 10.4324/9781315108926
  43. Lazarus, Richard S., and Folkman, Susan. 1984. Stress, Appraisal, and Coping. New York: Springer.
  44. Lindgren, Carolyn L., Pass, Cleo Massicotte, and Sime, Marilyn A. 1990. “Burnout and Social Support in Family Caregivers.” Western Journal of Nursing Research 12(4): 469487. DOI: 10.1177/019394599001200404
  45. Ljuslinder, Karin, Ellis, Katie, and Vikström, Lotta. 2020. “Cripping Time: Understanding the Life Course through the Lens of Ableism.” Scandinavian Journal of Disability Research 22(1): 3538. DOI: 10.16993/sjdr.710
  46. Lloyd, Liz. 2006. “Call Us Carers: Limitations and Risks in Campaigning for Recognition and Exclusivity.” Critical Social Policy 26(4): 945960. DOI: 10.1177/0261018306068489
  47. MacLure, Maggie. 2010. “The offence of theory.” Journal of Education Policy 25(2): 277286. DOI: 10.1080/02680930903462316
  48. Mahajan, Deepa, White, Olivia, Madgavkar, Anu, and Krishnan, Mekala. 2020. “Don’t Let the Pandemic Set Back Gender Equality.” Harvard Business Review September 16. Accessed October 29, 2023. https://hbr.org/2020/09/dont-let-the-pandemic-set-back-gender-equality.
  49. Mcleod, Allegra M. 2019. 13. “Law, Critique, and the Undercommons.” In A time for Critique edited by Didier Fassin, 252270. New York: Columbia University Press. DOI: 10.7312/harc19126-015
  50. Milligan, Christine, and Wiles, Janine. 2010. “Landscapes of Care.” Progress in Human Geography 34(6): 736754. DOI: 10.1177/0309132510364556
  51. Mills, China, and Lefrançois, Brenda A. 2018. “Child as Metaphor: Colonialism, Psy-Governance, and Epistemicide.” World Futures 74(7–8): 503524. DOI: 10.1080/02604027.2018.1485438
  52. Morgan, Hannah. 2021. “Mad Studies and Disability Studies.” in The Routledge International Handbook of Mad Studies, edited by Peter Beresford and Jasna Russo, 108118. Abindgon: Routledge. DOI: 10.4324/9780429465444-16
  53. NIHR135080. October 2022–November 2024. Tired of Spinning Plates: An Exploration of the Mental Health Experiences of Adults and/or Older Carers of Adults with Learning Disabilities. Available from: https://fundingawards.nihr.ac.uk/award/NIHR135080 [Accessed 5 May 2023].
  54. Oliver, Michael. 1990. The Politics of Disablement. Basingstoke: Macmillan Education. DOI: 10.1007/978-1-349-20895-1
  55. Oliver, Michael, and Barnes, Colin. 2012. The New Politics of Disablement. London: Bloomsbury. DOI: 10.1007/978-0-230-39244-1
  56. Patel, Varsha, Perez-Olivas, Gisela, Kroese, Biza Stenfert, Rogers, Gemma, Rose, John, Murphy, Glynis, Cooper, Vivien, Langdon, Peter E., Hiles, Steve, Clifford, Clair, and Willner, Paul. 2021. “The Experiences of Carers of Adults with Intellectual Disabilities during the First COVID-19 Lockdown Period.” Journal of Policy and Practice in Intellectual Disabilities 18(4): 254262. DOI: 10.1111/jppi.12382
  57. Perlin, Michael L. 1992. “On Sanism.” SMU Law Review 46(2): 373375. https://scholar.smu.edu/smulr/vol46/iss2/4.
  58. Pettersen, Tove. 2012. “Conceptions of Care: Altruism, Feminism, and Mature Care.” Hypatia 27(2): 366389. DOI: 10.1111/j.1527-2001.2011.01197.x
  59. Piepzna-Samarashinha, Leah Lakshmi. 2018. Care Work: Dreaming Disability Justice. Vancouver: Arsenal Pulp Press.
  60. Poole, Jennifer M., Jivraj, Tania, Arslanian, Araxi, Bellows, Kristen, Chiasson, Sheila, Hakimy, Husnia, … and Reid, Jenna. 2012. Sanism,‘mental health’, and social work/education: A review and call to action. Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice 1: 2036.
  61. Rashed, Mohammed Abouelleil. 2019. “In Defence of Madness: The Problem of Disability.” The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine 44(2): 150174. DOI: 10.1093/jmp/jhy016
  62. Rose, Nikolas. 1998. Inventing Our Selves: Psychology, Power, and Personhood. Cambridge: Cambridge University Press.
  63. Runswick-Cole, Katherine, Douglas, Patty, and Fogg, Penny. in press. “When Father Christmas Is the Gaslighter: How Special Education Systems make (M)others Mad.” Journal of Cultural and Literary Disability Studies.
  64. Runswick-Cole, Katherine, Hatton, Chris, Ryan, Sara, Smith, Martina, and Family Carers who request to stay anonymous. (under review). ““Should We Even Have Questions?” From Survey to Exhibition – Co-Producing Research about ‘Mental Health’ with Carers and Adults with Learning Disabilities.” International Journal of Care and Caring.
  65. Ryan, S. 2020. Love, Learning Disabilities and Pockets of Brilliance: How Practitioners Can Make a Difference to the Lives of Children, Families and Adults. London: Jessica Kingsley Publishers.
  66. Ryan, Sara, and Runswick-Cole, Katherine. 2008. “Repositioning Mothers: Mothers, Disabled Children and Disability Studies.” Disability & Society 23(3): 199210. DOI: 10.1080/09687590801953937
  67. Samuels, Ellen. 2017. “Six Ways of Looking at Crip Time.” Disability Studies Quarterly 37(3). DOI: 10.18061/dsq.v37i3
  68. Smith, Martina. 2021. Political Love and SpaceTime Disturbances: Reimagining Parenting and Disabled Childhoods Beyond Neoliberal and Developmental Discourses (Doctoral dissertation, University of Sheffield).
  69. Smith, Martina, Runswick-Cole, Katherine, Ryan, Sara, Croot, Liz, Hatton, Chris, Kassa, Clare, Cisneros, Rosemary K., Douglas, Patty, and The Tea and Cake Group. (Under Review). “Tired of Spinning Plates: A Rapid Scoping Review of the Mental Health Needs and Mental Health Support of Carers of Adults with Learning Disabilities in the United Kingdom.” International Journal of Disability and Social Justice.
  70. Smith, Martina, Runswick-Cole, Katherine, Ryan, Sara, Croot, Liz, Hatton, Clare, Kassa, C., Cisneros, Rosemary K, Douglas, Patty, and The Tea and Cake Group. 2023–2024. “Tired of Spinning Plates Project Blog Posts.” Available from: https://sites.google.com/sheffield.ac.uk/tiredofspinningplates/blogs.
  71. Thomas, Carol. 2007. Sociologies of Illness and Disability: Contested Ideas in critical disability studies and Medical Sociology, Basingstoke: Palgrave MacMillan.
  72. Tronto, Joan C. 1993. Moral Boundaries: A Political Argument for an Ethic of Care. New York: Routledge.
  73. Tronto, Joan C. 1998. “An Ethic of Care.” Generations: Journal of the American Society on Aging 22(3): 1520. http://www.jstor.org/stable/44875693.
  74. United Nations High Commissioner for Refugees. 2016. “Inquiry Concerning the United Kingdom of Great Britain and Northern Ireland Carried Out by the Committee under Article 6 of the Optional Protocol to the Convention: Committee on the Rights of Persons with Disabilities: Report of the Committee” Available online: https://digitallibrary.un.org/record/1310721?ln=en.
  75. Woodly, Deva, Brown, Rachel H., Marin, Mara, Threadcraft, Shatema, Harris, Christopher Paul, Syedullah, Jasmine, and Ticktin, Miriam. 2021. “The Politics of Care.” Contemporary Political Theory 20(4): 890925. DOI: 10.1057/s41296-021-00515-8
  76. Zembylas, Michalinos. 2005. ““Structures of Feeling” in Curriculum and Teaching: Theorizing the Emotional Rules.” Educational Theory 52(2): 187208. DOI: 10.1111/j.1741-5446.2002.00187.x
  77. Zembylas, Michalinos. 2017. “Love as Ethico-Political Practice: Inventing Reparative Pedagogies of Aimance in “Disjointed” Times.” Journal of Curriculum and Pedagogy 14(1): 2338. DOI: 10.1080/15505170.2016.1277572
  78. Zucker, Alyssa N. 2004. “Disavowing Social Identities: What It Means When Women Say, “I’m Not a Feminist, but…”.” Psychology of Women Quarterly 28(4): 423435. DOI: 10.1111/j.1471-6402.2004.00159.x
DOI: https://doi.org/10.16993/sjdr.1101 | Journal eISSN: 1745-3011
Language: English
Page range: 28 - 43
Submitted on: Nov 17, 2023
Accepted on: Feb 13, 2024
Published on: Feb 28, 2024
In partnership with: Paradigm Publishing Services

© 2024 Katherine Runswick-Cole, Martina Smith, Sara Ryan, Patty Douglas, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.