Rights in Crisis: Lived Experience as Knowledge in Policy Development During the COVID-19 Pandemic
References
- Abbott, David, and Sue Porter. 2013. “Environmental Hazard and Disabled People: From Vulnerable to an Expert to Interconnected.” Disability & Society 28(6): 839–852. DOI: 10.1080/09687599.2013.802222
- Ahmed, Sara. 2012. On Being Included. London: Duke University Press. DOI: 10.1515/9780822395324
- Ahmed, Sara. 2021. Complaint! London: Duke University Press.
- Alexander, David. 2015.
“Disability and Disaster: An Overview.” In Disability and Disaster. Explorations and Exchanges, edited by Ilian Kelman and Laura M. Stough, 15–29. London: Palgrave Macmillan. DOI: 10.1057/9781137486004_2 - Arnstein, Sherry. 1969. “A Ladder of Participation.” Journal of the American Institute of Planners 35(4): 216–224. DOI: 10.1080/01944366908977225
- Björnsdóttir, Kristín, and Ásta Jóhannsdóttir. 2021. “Fatlað Fólk í Hamförum.” Íslenska Þjóðfélagið 12(1): 72–86.
- Brennan, Ciara Siobhan. 2020. “Disability Rights During the Pandemic. A Global Report on Findings of the COVID-19 Disability Rights Monitor.” DOI: 10.13140/RG.2.2.10978.76486
- Braun, Virginia, and Victoria Clarke. 2013. Successful Qualitative Research: A Practical Guide for Beginners. New York: SAGE Publications.
- Collins, Patricia Hill. 1998.
“Introduction: The Politics of Critical Social Theory.” In Fighting Words: Black Women and the Search for Justice, ix–2. Minneapolis: University of Minnesota Press. - Collins, Patricia Hill. 2009.
“The Politics of Black Feminist Thought.” In Black Feminist Thought: Knowledge, Consciousness, and the Politics of Empowerment, 1–11. 2nd ed. New York: Routledge. DOI: 10.3395/reciis.v2i2.221pt - Committee on the Rights of Persons with Disabilities. 2018.
“General Comment No. 7 on the Participation of Persons with Disabilities, Including Children with Disabilities, Through their Representative Organizations, in the Implementation and Monitoring of the Convention (CRPD/C/GC/7).” Retrieved from United Nations Digital Library. - Council for International Organizations of Medical Sciences (CIOMS). 2016. “International Ethical Guidelines for Health-Related Research Involving Humans.” Retrieved from CIOMS website.
- Degener, Theresia. 2016. “Disability in a Human Rights Context.” Laws 5(3):
35 . DOI: 10.3390/laws5030035 - Eurofound. 2022.
“Living Conditions and Quality of Life. People With Disabilities and the COVID-19 Pandemic: Findings From the Living, Working and COVID-19 E-Survey.” COVID-19 series. Luxembourg: Publications Office of the European Union. - Grove, Samuel, Nicola Grove, and Ted Myerscough. 2010. “Intellectual Disability and War: Issues for Considerations.” Journal on Developmental Disabilities 16(1): 85–93.
- Harding, Sandra. 1993.
“Rethinking Standpoint Epistemology: What is ‘Strong Objectivity?’” In Feminist Epistemologies, edited by Linda Alcoff, and Elizabeth Potter, 49–82. Routledge. - Harding, Sandra. 2004. “A Socially Relevant Philosophy of Science? Resources From Standpoint Theory’s Controversiality.” Hypatia 19(1): 25–47. DOI: 10.1111/j.1527-2001.2004.tb01267.x
- Hochschild, Arlie. 1989. The Second Shift. New York: Avon Books.
- Inclusion London. 2020. “Abandoned, Forgotten and Ignored: The Impact of the Coronavirus Pandemic on Disabled People.” Retrieved from
https://www.inclusionlondon.org.uk/news/abandoned-forgotten-and-ignored-the-impact-of-covid-19-on-disabled-people/ . - Kanter, Arlene S. 2007. “The Promise and Challenge of the United Nations Convention on the Rights of Persons with Disabilities.” Syracuse Journal of International Law and Commerce 34: 287–321.
- Kanter, Arlene S. 2015. The Development of Disability Rights Under International Law: From Charity to Human Rights. Routledge. DOI: 10.4324/9780203711712
- Keys, Mary. 2017.
Article 12 of the UN Convention on the Rights of Persons With Disabilities and the European Convention on Human Rights . In Disability Law and Policy: An Analysis of the UN Convention, edited by Charles O’Mahony and Gerard Quinn. Dublin: Clarus. - Kubenz, Vera, and Dina Kiwan. 2023. “‘Vulnerable’ or Systematically Excluded? The Impact of Covid-19 on Disabled people in Low-and Middle-Income Countries.” Social Inclusion 11(1): 26–37. DOI: 10.17645/si.v11i1.5671
- Kumpuvuori, Jukka, and Riku Virtanen. 2017.
“Are We Right or are We Right? ‘Right Approach’ in the Advocacy Work of Organisations of Persons With Disabilities.” In Disability Law and Policy: An Analysis of the UN Convention, edited by Charles O’Mahony, and Gerard Quinn, 55–65. Dublin: Clarus. - Lord, Janet, and Michael Waterstone. 2009.
“Natural Disasters and Persons With Disabilities.” In Law and Recovery from Disaster: Hurricane Katrina, edited by Robin Paul Malloy, 71–82. London: Routledge. - Löve, Laufey, Rannveig Traustadóttir, Gerard Quinn, and James Rice. 2017. “The Inclusion of the Lived Experience of Disability in Policymaking.” Laws 6(4):
4 . DOI: 10.3390/laws6040033 - Löve, Laufey, Rannveig Traustadóttir, and James Rice. 2018. “Achieving Disability Equality: Empowering Disabled People to Take the Lead.” Social Inclusion 6(1):
1 . DOI: 10.17645/si.v6i1.1180 - Löve, Laufey, Rannveig Traustadóttir, and James Rice. 2019. “Shifting the Balance of Power: The Strategic Use of the CRPD by Disabled People’s Organizations in Securing ‘a Seat at the Table.’” Laws 8(2): 1–15. DOI: 10.3390/laws8020011
- Office of the High Commissioner for Human Rights. 2010. “Monitoring the Convention on the Rights of Persons with Disabilities: Guidance for Human Rights Monitors (Professional Training Series No. 17).” Retrieved from Office of the High Commission for Human Rights website.
- Ólafsson, J. G. 2021.
“Iceland: No Lockdown and Experts at the Forefront.” In Political Communication and COVID-19: Governance and Rhetoric in Times of Crisis, edited by Darren Lilleker, Ioana Coman, Milos Gregor, and Eduardo Novelli, 239–247. Routledge. - Quinn, Gerard. 2009.
“Resisting the ‘Temptation of Elegance’: Can the Convention on the Rights of Persons with Disabilities Socialise States to Right Behaviour?” In The UN Convention on the Rights of Persons with Disabilities: European and Scandinavian Perspectives, edited by Oddný Mjöll Arnardóttir, and Gerard Quinn, 215–256. Leiden: Martinus Nijhoff Publishers. DOI: 10.1163/ej.9789004169715.i-320.70 - Quinn, Gerard, and Charles O’Mahony. 2017.
“Introduction.” In, Disability Law and Policy: An Analysis of the UN Convention, edited by Charles O’Mahony, and Gerard Quinn, xxiii–xxv. Dublin: Clarus. - Sisters of Frida. 2020. “The Impact of COVID 19 on Disabled Women from Sisters of Frida: Voices of Disabled Women in the Pandemic.” Retrieved from
https://www.sisofrida.org/the-impact-of-covid-19-on-disabled-women-from-sisters-of-frida/ . - Skarstad, Kjersti, and Michael Ashley Stein. 2018. “Mainstreaming Disability in the United Nations Treaty Bodies.” Journal of Human Rights 17(1): 1–24. DOI: 10.1080/14754835.2017.1286238
- Smith, Dorothy. 2005. Institutional Ethnography: A Sociology for People. Oxford: AltaMira Press.
- Snæfríðardóttir-Gunnarsdóttir, Hrafnhildur, Tinna Ólafsdóttir, and Kristín Björnsdóttir. 2023. “Risky Obliviousness Within fragmented services: Experiences of families with disabled children during the COVID-19 pandemic.” Social Inclusion 11(1): 5–15. DOI: 10.17645/si.v11i1.5642
- Stein, Michael Ashley, and Penelope J.S. Stein. 2006. “Beyond Disability Civil Rights.” Hastings Law Journal 58: 1203–1240. DOI: 10.2139/ssrn.1552010
- Uldry, Marine, and An-Sofie Leenknecht. 2021.
“European Human Rights Report: Impact of COVID-19 on Persons with Disabilities.” Brussels, European Disability Forum. - United Nations. 2006.
“The Convention on the Rights of Persons with Disabilities and Optional Protocol.” New York: United Nations. - United Nations. 2020. “Policy Brief: A Disability-Inclusive Response to COVID-19.” Retrieved from
www.un.org/sites/un2.un.org/files/2020/05/sg_policy_brief_on_persons_with_disabilities_final.pdf . - United Nations International Strategy for Disaster Reduction (UNISDR). 2015. “UN World Conference on Disaster Risk Reduction, Issue Brief: Inclusive Disaster Risk Management—Governments, Communities and Groups Acting Together.” Retrieved from
http://www.wcdrr.org/uploads/Inclusive-Disaster-Risk-Management-2.pdf . - World Health Organization. 2011.
“World Report on Disability.” Malta: World Health Organization. - World Health Organization. 2020. “Disability Considerations during the COVID-19 Outbreak.” Retrieved from:
https://www.who.int/publications/i/item/WHO-2019-nCoV-Disability-2020-1 . - Wylie, Alison. 2003. “Why Standpoint Matters” In Science and Other Cultures: Issues in Philosophies of Science and Technology, edited by R. M. Figueroa, and S. Harding, 26–48. New York: Routledge.
- Young, Iris Marion. 1990. Justice and the Politics of Difference. New Jersey: Princeton University Press.
DOI: https://doi.org/10.16993/sjdr.1062 | Journal eISSN: 1745-3011
Language: English
Page range: 380 - 392
Submitted on: Jul 14, 2023
Accepted on: May 21, 2024
Published on: Jul 10, 2024
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2024 Hrafnhildur Snæfríðar- og Gunnarsdóttir, Laufey E. Löve, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.