Table 1
Descriptive Information about Interviewees with Visual Impairment (VI) or Intellectual Disabilities (ID).
| DEMOGRAPHICS | VI (n = 16) | ID (n = 20) |
|---|---|---|
| Job (or Daily/Weekly Voluntary Work) | 7 (44%) | 13 (65%) |
| Romantic Partner | 11 (69%) | 7 (35%) |
| Children | 8 (50%) | 1 (5%) |
| Supported Living/Within Residential Settings | 0 | 13 (65%) |
| Number of Years Living in the Same Place Ranged from 2–43 Years |
Table 2
Framework of the Semi-structured Interview with Accompanying Indexes and Question Numbers for the Interviews with People with Visual Impairment (VI) or Intellectual Disabilities (ID).
| FRAMEWORK CATEGORIES | QUESTION NUMBERS | QUESTION NUMBERS | INDEX (SUB-THEME) | QUESTION NUMBERS | QUESTION NUMBERS |
|---|---|---|---|---|---|
| VI per Category | ID per Category | VI per Index | ID per Index | ||
| Knowledge on Data/Information Storage | 6, 7, 8, 9, 10, 11, 12 | 7, 8, 9, 10, 11, 12, 13 | Practicalities of the Data | 6, 7, 10 | 7, 8, 11 |
| Reason for Routine Care Data | 9 | 10 | |||
| People Access | 8, 11, 12 | 9, 12, 13 | |||
| Personal Experience | 13, 14 | 14, 15 | Personal Experience | 13, 14 | 14, 15 |
| Opinions on Routine/Big Data Use | 17, 22, 28 | 18, 23 | Storage/Sharing | 17 | 18 |
| Linking | 22 | 23 | |||
| Follow-up | 28 | ||||
| Ownership | 15, 18, 19, 23, 24, 28a | 16, 19, 20, 24, 25 | Feelings of ownership | 15 | 16 |
| Decision making | 18a, 19, 23, 24 | 19abc, 20, 24, 25 | |||
| Permission | 18bc, 23ab, 28a | 19de, 24ab | |||
| Weighing up | 20, 21, 25, 26, 28b, 28c | 21, 22, 26, 27 | Advantages/Benefits | 20, 25, 28b, | 21, 26 |
| Worries/Concerns | 21, 26, 28c | 22, 27 | |||
| Conceptualisation | 3, 16, 27 | 3, 6, 17 | Personal Disability Concept | 3 | 3 |
| Definition and Meaning | 16, 27 | 6, 17 | |||