Layers of Disability Terminology Experiences of People with Disabilities and their Relatives: An Analysis of Dutch Newspapers between 1950–2020
References
- Aboglo, Poovi, and June Downing. 1990. “Using Labels: A Study of Client Preference.” Journal of Visual Impairment & Blindness 84(5): 218–220. DOI: 10.1177/0145482X9008400506
- Andrews, Erin E., Robyn M. Powell, and Kara Ayers. 2022. “The Evolution of Disability Language: Choosing Terms to Describe Disability.” Disability and Health Journal 15(3). DOI: 10.1016/j.dhjo.2022.101328
- ARC. 2019.
“The Power of Words: People First Language.” The ARC, Last Modified May 22, 2019. Accessed Aug 11, 2021.https://thearc.org/about-us/press-center/ . - Back, Lindsey T., Christopher B. Keys, Susan D. McMahon, and Kaney O’Neill. 2016. “How We Label Students with Disabilities: A Framework of Language Use in an Urban School District in the United States.” Disability Studies Quarterly 36(4). DOI: 10.18061/dsq.v36i4.4387
- Brants, Luc, Paul van Trigt, and Alice Schippers. 2018.
“A Short History of Approaches to Disability in the Netherlands.” In The Routledge History of Disability, edited by Roy Hanes, Ivan Brown and Nancy E. Hansen, 151–162. London|New York: Routledge. DOI: 10.1201/9781315198781-11 - Briant, Emma, Greg Philo, and Nick Watson. 2011. Bad News for Disabled People: How the Newspapers are Reporting Disability. Glasgow: Strathclyde Centre for Disability Research and Glasgow Media Unit.
- Brontsema, Robin. 2004. “A Queer Revolution: Reconceptualizing the Debate Over Linguistic Reclamation.” Colorado Research in Linguistics 17(1). DOI: 10.25810/dky3-zq57
- Bury, Simon M., Rachel Jellett, Jennifer R. Spoor, and Darren Hedley. 2020. “’It Defines Who I Am’ or ‘It’s Something I Have’: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?” Journal of Autism and Developmental Disorders. DOI: 10.1007/s10803-020-04425-3
- Conway, Megan A. 2017. “When A Hyphen Matters: Reflections on Disability and Language.” Review of Disability Studies 13(3): 1–2.
- De Boer, Theo. 2011.
“Het gevaar van politieke correctheid.” In Van Dale Taalhandboek Nederlands – Gebruiksaanwijzing van de Nederlandse taal, 22–23. Utrecht: Van Dale Uitgevers. - De Graaf, Erik. 1994. “Naar een zo min mogelijk beperkende terminologie; Het voortdurende gevecht met de media.” Down + Up 28: 31–35.
- Devotta, Kimberly, Robert Wilton, and Niko Yiannakoulias. 2013. “Representations of Disability in the Canadian News Media: A Decade of Change?” Disability & Rehabilitation 35(22): 1859–2021. DOI: 10.3109/09638288.2012.760658
- Feldman, David, Phyllis A. Gordon, Michael J. White, and Christopher Weber. 2002. “The Effects of People-First Language and Demographic Variables on Beliefs, Attitudes and Behavioral Intentions Toward People with Disabilities.” Journal of Applied Rehabilitation Counseling 33(3): 18–25. DOI: 10.1891/0047-2220.33.3.18
- Finlay, W. M. L., and E. Lyons. 2005. “Rejecting the Label: A Social Constructionist Analysis.” Mental Retardation 43(2): 120–134. DOI: 10.1352/0047-6765(2005)43<;120:RTLASC>2.0.CO;2
- Fleischer, Doris Zames, and Frieda Zames. 2011. The Disability Rights Movement. From Charity to Confrontation. Philadelphia: Temple University Press.
- Ford, Marty, Annie Acosta, and T. J. Sutclijfe. 2013. “Beyond Terminology: The Policy Impact of a Grassroots Movement.” Intellectual and Developmental Disabilities 51(2): 108–112. DOI: 10.1352/1934-9556-51.2.108
- Gill, Carol J., and William E. Cross. 2010.
“Disability Identity and Racial-Cultural Identity Development: Points of Convergence, Divergence and Interplay.” In Race, Culture and Disability: Rehabilitation Science and Practice, edited by Fabricio E. Balcazar, Yolanda Suarez-Balcazar, Tina Taylor-Ritzler, and Christopher B. Keys, 33–52. Boston: Jones & Bartlett Publishers. - Gilson, Stephen French, Anthony Tusler, and Carol Gill. 1997. “Ethnographic Research in Disability Identity: Self-Determination and Community.” Journal of Vocational Rehabilitation 9(1): 7–17. DOI: 10.3233/JVR-1997-9103
- Goodley, Daniel. 2013. “Dis/entangling Critical Disability Studies.” Disability & Society 28(5): 631–644. DOI: 10.1080/09687599.2012.717884
- Haller, Beth, Bruce Dorries, and Jessica Rahn. 2006. “Media Labeling Versus the US Disability Community Identity: A Study of Shifting Cultural Language.” Disability & Society 21(1): 61–75. DOI: 10.1080/09687590500375416
- Hsieh, Hsiu-Fang, and Sarah E. Shannon. 2005. Three Approaches to Qualitative Content Analysis. Qualitative Health Research 15(9): 1277–1288. DOI: 10.1177/1049732305276687
- Kamenetsky, Stuart B., and Adam S. Sadowski. 2020. “Does Language Type Affect Perceptions of Disability Images? An Experimental Study.” Journal of Education, Teaching and Social Studies 2(4): 75–103. DOI: 10.22158/jetss.v2n4p75
- Kenny, Lorcan, Caroline Hattersley, Bonnie Molins, Carole Buckley, Carol Povey, and Elizabeth Pellicano. 2016. “Which Terms Should Be Used to Describe Autism? Perspectives from the UK Autism Community.” Autism 20(4): 442–462. DOI: 10.1177/1362361315588200
- Krijnen, Rietje, and Ronald Besemer. 2001. Stijlvol journalistiek schrijven over mensen met een handicap of chronische ziekte. Utrecht: Chronisch zieken en Gehandicapten Raad (CG-Raad).
- Lei, Jiedi, Lauren Jones, and Mark Brosnan. 2021. “Exploring an E-learning Community’s Response to the Language and Terminology Use in Autism from Two Massive Open Online Courses on Autism Education and Technology Use.” Autism 25(5): 1349–1367. DOI: 10.1177/1362361320987963
- Lindberg, Ylva, and Sangeeta Bagga-Gupta. 2021. “On Naming Groups in the Margins. Constructs of (Dis)ability in the Morning Press across Time in the Nation-State of Sweden.” Scandinavian Journal of Disability Research 23(1): 50–62. DOI: 10.16993/sjdr.737
- Lister, Kate, Tim Coughlan, and Nathaniel Owen. 2020. “‘Disability’ or ‘Additional Study Needs’? Identifying Students’ Language Preferences in Disability-Related Communications.” European Journal of Special Needs Education 35(5): 620–635. DOI: 10.1080/08856257.2020.1743409
- Martin, Ben L. 1991. “From Negro to Black to African American: The Power of Names and Naming.” Political Science Quarterly 106(1): 88–107. DOI: 10.2307/2152175
- Mencap. 2021. “A Journalist’s Guide to Learning Disability.” Mencap. Accessed Aug 25, 2021.
https://www.mencap.org.uk/journalists-guide-learning-disability . - Millington, Michael J., and Stephen J. Leierer. 1996. “A Socially Desirable Response to the Politically Incorrect Use of Disability Labels.” Rehabilitation Counseling Bulletin 39(4): 276–282.
- Morse, Janica M. 2015. “Critical Analysis of Strategies for Determining Rigor in Qualitative Inquiry.” Qualitative Health Research 25(9): 1212–1222. DOI: 10.1177/1049732315588501
- NDA. 2014.
“Appropriate Terms to Use.” National Disability Authority Ireland. Accessed Dec 4, 2021.https://nda.ie/Publications/Attitudes/Appropriate-Terms-to-Use-about-Disability/ . - Noble, Adam J., Abbey Robinson, Darlene Snape, and Anthony G. Marson. 2017. “’Epileptic’, ‘Epileptic Person’ or ‘Person with Epilepsy’? Bringing Quantitative and Qualitative Evidence on the Views of UK Patients and Carers to the Terminology Debate.” Epilepsy & Behavior 67: 20–27. DOI: 10.1016/j.yebeh.2016.10.034
- Oliver, Michael J. 1996. Understanding Disability: From Theory to Practice. London: McMillan. DOI: 10.1007/978-1-349-24269-6
- Peers, Danielle, Nancy Spencer-Cavaliere, and Lindsay Eales. 2014. “Say What You Mean: Rethinking Disability Language.” Adapted Physical Activity Quarterly 31(3): 265–282. DOI: 10.1123/apaq.2013-0091
- PWDA. 2021. PWDA Language Guide: A Guide to Language About Disability. Surry Hills: People with Disability Australia.
- Roth, Silke. 2021. “Intersectionality and Coalitions in Social Movement Research – A Survey and Outlook.” Sociology Compass 15(7):
e12885 . DOI: 10.1111/soc4.12885 - Samuel, Mounir. 2021. Waarden Voor Een Nieuwe Taal; Een veilige, inclusieve en toegankelijke taal voor iedereen in de kunst- en cultuursector. Amsterdam: Code Diversiteit & Inclusie.
- Shakes, Pieta, and Andrew Cashin. 2019. “An Analysis of Twitter Discourse Regarding Identifying Language for People on the Autism Spectrum.” Issues in Mental Health Nursing 41(3): 221–228. DOI: 10.1080/01612840.2019.1648617
- Shakespeare, Tom. 1996.
“Disability, identity and difference.” In Exploring the Divide, edited by Colin Barnes, and Geof Mercer, 94–113. Leeds: The Disability Press. - Smith, Tom W. 1992. “Changing Racial Labels: From ‘Colored’ to ‘Negro’ to ‘Black’ to ‘African American’.” Public Opinion Quarterly 56(4): 496–514. DOI: 10.1086/269339
- Soffer, Michal, and Shay Argaman-Danos. 2021. “Self-Labeling, Perceived Stigma Toward Autism Spectrum Disorder, and Self-Esteem and the Change in Autism Nosology.” Disability and Health Journal 14(4). DOI: 10.1016/j.dhjo.2021.101162
- Ter Haar, Aartjan, Sander R. Hilberink, and Alice Schippers. 2023.
“Shifting Terminology and Confusing Representations: An Examination of Intellectual Disability Terminology in Dutch Newspapers from 1950 to 2020.” (manuscript submitted for publication). University of Humanistic Studies. - Terry, Gareth, Nikki Hayfield, Victoria Clarke, and Virginia Braun. 2017.
“Thematic Analysis.” In The SAGE Handbook of Qualitative Research in Psychology, edited by Carla Willig, and Wendy Stainton-Rogers, 17–37. London: Sage. DOI: 10.4135/9781526405555.n2 - Thalitaya, Madhusudan Deepak, Verinder P. Prasher, Faheem Khan, and Harm Boer. 2011. “What’s in a Name? – The Psychiatric Identity Conundrum.” Psychiatria Danubina 23: 178–181.
- Thoreau, Estelle. 2006. “Ouch!: An Examination of the Self-Representation of Disabled People on the Internet.” Journal of Computer-Mediated Communication 11(2): 442–468. DOI: 10.1111/j.1083-6101.2006.00021.x
- Titchkosky, Tanya. 2001. “Disability: A Rose by Any Other Name? “People-First” Language in Canadian Society.” Canadian Review of Sociology 38(2): 125–140. DOI: 10.1111/j.1755-618X.2001.tb00967.x
- Townsend, L., and C. Wallace. 2016. Social Media Research: A Guide to Ethics. Aberdeen: The University of Aberdeen.
- Valeras, Aimee Burke. 2010. “’We Don’t Have a Box’: Understanding Hidden Disability Identity Utilizing Narrative Research Methodology.” Disability Studies Quarterly 30(3/4). DOI: 10.18061/dsq.v30i3/4.1267
- Van Trigt, Paul. 2015. “A Blind Spot of a Guiding Country? Human Rights and Dutch Disability Groups Since 1981.” Moving the Social 53: 87–102. DOI: 10.13154/mts.53.2015.87-102
- Vaughan, C. Edwin. 2009. “People-First Language: An Unholy Crusade.” The Braille Monitor 52(3).
- Wijnbeek, Cees M. 1990. Terminologie. In Letter from the Director of the Federatie van Ouderverenigingen (FvO) to M.B.E.G. Brenninkmeyer-Rutten, Secretary of the Interdepartmental Steering group Disability policies (ISG). Copy in possession of first author.
- WOMEN Inc. 2019. De Incomplete Stijlgids, Publicaties, tools, onderzoek. Amsterdam: WOMEN Inc.
- Ziss, Bethany. 2022. “Does Person-Centered Language Focus on the Person?” Journal of Developmental & Behavioral Pediatrics 43(2): 114–115. DOI: 10.1097/DBP.0000000000001059
- Zola, Irving Kenneth. 1993. “Self Identity and the Naming Question: Reflections on the Language of Disability.” Social Science & Medicine 36(2): 167–173. DOI: 10.1016/0277-9536(93)90208-L
DOI: https://doi.org/10.16993/sjdr.1000 | Journal eISSN: 1745-3011
Language: English
Page range: 183 - 197
Submitted on: Jan 5, 2023
Accepted on: Apr 12, 2023
Published on: Jun 21, 2023
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2023 Aartjan ter Haar, Sander R. Hilberink, Alice Schippers, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.