The Social Media Experiences of Long-term Patients: Illness, Identity, and Participation
By: Brita Ytre-Arne

References
- Bjerkestrand, Stine (2012) ”Maktskiftet [Power Change]”. Tidsskrift for Den norske legeforening [The Journal of the Norwegian Medical Association] 24(2): 125-132.
- Baym, Nancy (2010) Personal Connections in the Digital Age. Cambridge: Polity.
- Boyd, Danah (2014) It’s Complicated. The social lives of networked teens. New Haven: Yale University Press.
- Bury, Michael (1982) “Chronic Illness as biographical disruption”. Sociology of Health and Illness 4 (2): 167-182.
- Carpentier, Nico, Dahlgren, Peter & Pasquali, Francesca (2013) “The Democratic (Media) Revolution: A Parallel Genealogy of Political and Media Participation”, pp. 123-41 in Carpentier, Nico, Schrøder, Kim & Hallett, Lawrie (eds.) Audience Transformations. Shifting Audience Positions in Late Modernity. New York: Routledge.
- Carpentier, Nico & Dahlgren, Peter (2014) “Histories of media(ted) participation: An introduction”. CM: Communication Management Quarterly 30: 7-14.
- Edwards, Catherine, Thompson, Andrew, & Blair, Alan (2007) “An ‘Overwhelming Illness’: Women’s experiences of Learning to Live with Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis”. Journal of Health Psychology 12(2): 203-14.
- Enjolras, Bernard, Karlsen, Rune, Steen-Johnsen, Kari & Dag Wollebæk (2013) Liker, liker ikke. Sosiale medier, samfunnsengasjement og offentlighet [Social media, societal engagement and public sphere]. Oslo: Cappelen Damm.
- Enli, Gunn & Thumin, Nancy (2012) “Socializing and Self-Representation online: Exploring Facebook”. Observatorio (OBS*) 6(1): 87-105.
- Frank, Arthur (1995) The Wounded Storyteller: Body, Illness and Ethics. Chicago: University of Chicago Press.
- Fuchs, Christian (2014) Social media: A critical introduction. London: Sage.
- Gentikow, Barbara (2005) Hvordan utforsker man medieerfaringer? Kvalitativ metode [How to explore media experiences? Qualitative methods]Kristiansand: IJ-forlaget.
- Giddens, Anthony (1991) Modernity and Self-Identity. Self and Society in the Late Modern Age. Cambridge: Polity.
- Gray, Ann (2003) Research Practice for Cultural Studies. London: Sage.
- Grue, Jan (2013) “A garden of forking paths: a discourse perspective on ‘myalgic encephalomyelitis’ and ‘chronic fatigue syndrome’.” Critical Discourse Studies, online publication.
- Harrison, Katherine (2014) “Online negotiations of infertility: Knowledge production in (in)fertility blogs.” Convergence 20(3): 227-351.
- Hatland Aksel, Kuhnle, Stein & Romøren, Tor (eds.) (2011) Den norske velferdsstaten [The Norwegian Welfare State]. Oslo: Gyldendal.
- Held, David (1996) Models of Democracy. Cambridge: Polity.
- Jackson, Ida (2010) Sosiale medier. Hvordan ta over verden uten å gå ut av huset [Social media. How to take over the world without leaving your house]. Oslo: Aschehoug.
- Jelstad, Jørgen (2011) De bortgjemte - og hvordan ME ble vår tids mest omstridte sykdom [The hidden - and how ME became the most controversial disease of our time]. Oslo: Cappelen Damm.
- Kivits, Joëlle (2009) ”Everyday health and the internet: a mediated health perspective on ’health information seeking”. Sociology of Health & Illness 31(5): 673-87.
- Knudsen AK, Lervik LV, Harvey SB, Løvvik CMS, Omenås AN and Mykletun A (2012) ”Comparison of chronic fatigue syndrome/ myalgic encephalopathy with other disorders: an observational study”. JRSM Short Reports 3:32.
- Loader, Brian D. & Dan Mercea (eds.) (2012) Social Media and Democracy. Innovations in participatory politics. London: Routledge.
- Lövheim, Mia (2011) “Personal and Popular. The Case of Young Swedish Female Top- bloggers”, Nordicom Review 32(1): 3-16.
- Mager, Anne (2009) “Mediated health: sociotechnical practices of providing and using online health information”. New Media & Society 11(7): 1123-1142.
- Miller, Daniel (2011) Tales from Facebook. Cambridge: Polity Press.
- Moe, Hallvard (2011) “Mapping the Norwegian Blogosphere: Methodological Challenges in Internationalizing Internet Research”. Social Science Computer Review 29(3): 313- 26.
- Murero, Monica & Rice, Ronald (eds.) (2006) The Internet and Health Care. Theory, Research, Practice. New York: Routledge.
- Nettleton, Sarah (2013) The Sociology of Health and Illness. Cambridge: Polity.
- Nettleton Sarah, Burrows, Roger & O’Malley, Lisa (2005) “The mundane realities of the everyday lay use of the internet for health, and their consequences for media convergence”. Sociology of Health & Illness 27(7): 972-92.
- Orgad, Shani (2005) Storytelling Online. Talking Breast Cancer on the Internet. New York: Peter Lang.
- Orgad, Shani (2007) ”The Transformative Potential of Online Communication”, Feminist Media Studies 5(2): 141-161.
- Pateman, Carole (1970) Participation and Democratic Theory. Cambridge: Cambridge University Press.
- Rettberg, Jill (2014) Seeing Ourselves Through Technology. Basingstoke: Palgrave Macmillan.
- Seale, Clive (2005) “New directions for critical internet health studies: representing cancer experience on the web”. Sociology of Health and Illness 27(4): 515-540.
- Tjora, Aksel & Sandaune, Anne-Grete (2010) Digitale Pasienter [Digital Patients]. Oslo: Gyldendal.
- Turkle, Sherry (1995) Life on the Screen. Identity in the Age of the Internet. New York: Simon & Schuster.
- Westerby Catherine (2013) ”Pasientaktivist på sengekanten [Bedside Patient Activist]”, pp. 165-202 in Bjørkelo, Kristian (ed.) Gi meg en scene! Norsk blogghistorie [Give me a stage! Norwegian blog history]. Oslo: Humanist forlag.
- Åsbring, Pia & Närvänen, Anna-Lisa (2002) Women’s Experiences of Stigma in Relation to Chronic Fatigue Syndrome and Fibromyaliga. Qualitative Health Research 12(2): 148-60.
Language: English
Page range: 57 - 70
Published on: Jun 15, 2016
Published by: University of Gothenburg Nordicom
In partnership with: Paradigm Publishing Services
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© 2016 Brita Ytre-Arne, published by University of Gothenburg Nordicom
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.