Interventions to support people with dementia and their informal caregivers during the transition from home care to nursing home care – a protocol for a systematic review / Interventionen zur Unterstützung von Menschen mit Demenz und ihren Angehörigen während des Übergangs von der häuslichen Pflege ins Pflegeheim – ein Studienprotokoll für eine systematische Übersichtsarbeit

The transition from home care to nursing home care is a decisive moment in the life of persons with dementia and their informal caregivers.
Informal caregivers suffer from stress, burden, anxiety and often feel not prepared for the transition period with little information and support.
Most people with dementia show behavioral and neuropsychiatric symptoms during the transition period associated with a lower quality of life, lower general well-being, anxiety and/or depression.

Why this systematic review is needed?

Although a number of systematic reviews on non-pharmacological interventions either for people with dementia or informal caregivers have been published, none have specifically focused supportive techniques and interventions for people with dementia and their informal caregivers during the transition period from home care to nursing home care.
It remains unknown so far whether interventions delivered by nurses, occupational therapists, social workers, physiotherapists or other healthcare professionals are effective.

Implications for practice and/or policy

An overview of the existing knowledge on treatment programs will be generated aimed to inform healthcare professionals, policy makers and decision makers how to improve healthcare provision for people with dementia or their informal caregivers.

People with dementia	Informal caregiver(s)
Quality of life Mental well-being Physical well-being Participation in daily activities Mood Performance in activities and instrumental activities of daily living (ADL/IADL) Depression Mortality Changing behaviour (e.g. agitation, aggression)	Quality of life Mental well-being Physical well-being Social participation of informal caregiver(s) Burden/stress of care Informal caregiver(s) knowledge Informal caregiver(s) satisfaction with support or care Coping Sense of competence Depression

Table 2

Appendix

Search Strategy Medline (via Pubmed)
Search	Queries	Results
#1	Caregivers [Mesh aa]	22.920

#2	Family Nursing [Mesh]	1.118

#3	Caregiver* [tw]	46.698

#4	Social Support [Mesh]	53.546

#5	Decision Support Systems, Clinical [Mesh]	5.175

#6	Counseling [Mesh]	34.148

#7	Patient education [tw]	82.524

#8	Treatment program* [tw]	15.186

#9	Exercise program* [tw])	8.570

#10	Exercise training [tw]	69.001

#11	Social Adjustment [Mesh]	21.379

#12	Adaptation, Psychological [Mesh]	104.155

#13	Coping [tw]	127.099

#14	Dementia [Mesh]	123.448

#15	Nursing Homes [Mesh]	32.704

#16	Long-Term Care [Mesh]	22.143

#17	Home Nursing [Mesh]	8.746

#18	Home Care Services [Mesh]	40.564

#19	Randomized controlled trial [ptbb]	496.068

#20	Randomly [tiab cc]	235.769

#21	non-randomized controlled trials	1.002

#22	controlled clinical trial	102.573

#23	cluster-randomized trial	1.936

#24	Search (((“Caregivers”[Mesh aa]) OR “Family Nursing”[Mesh])) OR caregiver*	47.714

#25	Search (((“Social Support”[Mesh]) OR “Decision Support Systems, Clinical”[Mesh]) OR “Counseling”[Mesh]) OR patient education [tw]	167.418

#26	Search ((treatment program* [twdd]) OR exercise program* [tw]) OR exercise training [tw]	88.542

#27	Search (((“Social Adjustment”[Mesh]) OR “Adaptation, Psychological”[Mesh])) OR coping [tw]	143.824

#28	#24 OR #25 OR #26 OR #27	411.518

#29	Search (((“Nursing Homes”[Mesh]) OR “Long-Term Care”[Mesh]) OR “Home Nursing”[Mesh]) OR “Home Care Services”[Mesh]	88.751

#30	#14 AND #29	5.271

#31	#28 AND #30	1.758

#32	Search (randomized controlled trial [ptbb] OR randomly [tiab cc] OR non-randomized controlled trials [tiab cc] OR controlled clinical trial [tiab cc] OR cluster-randomized trial [tiab cc]	723.273

#33	#31 AND #32	195

Search Date	between 1 January 2000 and 15 July 2015

Search Strategy Cinahl (via Ovid)
Search	Queries	Results
#1	Family nursing interventions	2.751

#2	Caregiver of dementia	3.801

#3	Decision Support Systems, Clinical [MHaa]	1.653

#4	Support, Psychosocial [MH]	37.760

#5	Patient education	92.014

#6	Relatives or family support	31.416

#7	Education	375.375

#8	Counseling interventions	2.768

#9	Treatment program*	32.063

#10	Exercise program for people with dementia	9

#11	Exercise training	15.395

#12	Social Adjustment [MH]	1.987

#13	Coping	28.907

#14	Dementia	29.193

#15	Home care services or home health care	38.913

#16	Nursing home placement	728

#17	Transition	14.128

#18	Randomised controlled trial or randomized controlled trial	13.365

#19	Randomly [AB bb]	31.154

#20	Randomly [TI cc]	61

#21	Family Nursing interventions OR caregiver of dementia	6.464

#22	Decision Support Systems, Clinical [MH] OR Support, Psychosocial [MH] OR patient education OR relatives or family support OR education OR counseling interventions	424.874

#23	Treatment program* OR exercise program for people with dementia OR exercise training	46.156

#24	Social Adjustment [MH] OR coping	30.690

#25	#21 OR #22 OR #23 OR #24	482.569

#26	Home care services or home health care OR nursing home placement OR Transition	52.629

#27	#14 AND #26	1.797

#28	#25 AND #27	862

#29	Randomised controlled trial or randomized controlled trial OR TI randomly OR AB randomly	47.387

#30	#28 AND #29	135

Search Strategy CENTRAL
Search	Queries	Results
#1	Caregivers [Mesh] explode all trees	1.063

#2	Family nursing [ti, ab, kw]	1.358

#3	Social Support [Mesh] explode all trees	1.930

#4	Patient education [ti, ab, kw]	14.429

#5	Family [ti, ab, kw]	14.588

#6	Relative [ti, ab, kw]	31.996

#7	Education [ti, ab, kw]	27.082

#8	Counseling [ti, ab, kw]	8.439

#9	Social adjustment [ti, ab, kw]	1.572

#10	Adaptation, Psychological [Mesh] explode all trees	3.969

#11	Exercise program* [ti, ab, kw]	10.595

#12	Treatment program* [ti, ab, kw]	20.073

#13	Exercise training [ti, ab, kw]	3.130

#14	Dementia [Mesh] explode all trees	3.206

#15	Long-Term Care [Mesh] explode all trees	1115

#16	Home care [ti, ab, kw]	2.831

#17	Nursing home* [ti, ab, kw]	3.785

#18	Trials, Randomized Clinical [Mesh] explode all trees	20.970

#19	MeSH descriptor: [Caregivers] explode all trees OR family nursing: ti, ab, kw (Word variations have been searched)	2.508

#20	MeSH descriptor: [Social Support] explode all trees OR patient education: ti, ab, kw (Word variations have been searched) OR “family”: ti, ab, kw OR “relative” OR “education” (Word variations have been searched) OR “counseling”: ti, ab, kw (Word variations have been searched)	80.511

#21	Social adjustment: ti, ab, kw (Word variations have been searched) OR MeSH descriptor: [Adaptation, Psychological] explode all trees	5.413

#22	Exercise program: ti, ab, kw (Word variations have been searched) OR treatment program: ti, ab, kw (Word variations have been searched) OR “exercise training”: ti, ab, kw (Word variations have been searched)	29.068

#23	#19 OR #20 OR #21 OR #22	103.770

#24	MeSH descriptor: [Long-Term Care] explode all trees OR “home care”: ti, ab, kw (Word variations have been searched) OR nursing home*: ti, ab, kw (Word variations have been searched)	6.351

#25	#14 AND #24	425

#26	#23 AND #25	193

#27	#26 AND #18	169

Search Strategy Psyclnfo (via Ovid)
Search	Queries (only textwords used)	Results
#1	Caregiver*	39.226

#2	Family nursing interventions	4.501

#3	Decision support systems	1.041

#4	transitional care interventions	225

#5	Support, psychosocial	25.797

#6	Relatives	161,630

#7	Family support	64.257

#8	Education	515,407

#9	supportive care	6.321

#10	Counseling interventions	31.265

#11	Treatment program*	109.176

#12	Exercise program*	13,206

#13	Exercise training	9.741

#14	Social adjustment	51.257

#15	Coping	68,574

#16	Dementia*	52.555

#17	Home care	47.232

#18	Nursing home*	22.687

#19	Long term care	19.930

#20	Randomised controlled trial	3.822

#21	Randomized controlled trial	21,443

#22	Randomly TI	195

#23	Randomly AB	55.160

#24	Caregiver* OR family nursing interventions	42.859

#25	Decision support systems, clinical* OR support, psychosocial OR relatives OR family support AND education OR care interventions OR counseling intervention OR supportive care	745.170

#26	Treatment program* OR exercise program* OR exercise training	125.059

#27	Social adjustment OR coping	115.951

#28	#24 OR #25 OR #26 OR #27	934.414

#29	Home care OR nursing home* OR long term care	66.847

#30	#16 AND #29	6.607

#31	#28 AND #30	3.782

#32	Randomised controlled trial or randomized controlled trial OR TI randomly OR AB randomly	76.307

#33	#31 AND #32	209

Search Strategy OTSeeker
Search	Queries (only textwords used)	Results
#1	Dementia	410

#2	Caregivers	412

#3	Transition	76

#4	Adjustment	287

#5	Nursing Home	285

#6	Home care	780

#7	Counseling	419

#8	Education	1477

#9	Support	1949

#10	Social Support	470

#11	Treatment program	1070

#12	Exercise program	890

#13	Randomised controlled trial	1026

#14	Randomized controlled trial	3340

#15	[Any Field] like ‘Caregivers’ OR [Any Field] like 'transition'	484

#16	[Any Field] like ‘Adjustment’ OR [Any Field] like ‘Nursing Home’ OR [Any Field] like ‘home care'	1148

#17	#15 AND #16 AND #1	699

#18	[Any Field] like ‘Counseling’ OR [Any Field] like ‘Education’ OR [Any Field] like ‘Support'	3303

#19	[Any Field] like ‘treatment program’ OR [Any Field] like ‘exercise program'	1710

#20	#18 AND #19	2566

#21	#17 AND #20	2159

#22	#21 AND randomised controlled trial [ti, ab] OR randomized controlled trial [ti, ab]	397

Search Strategy PeDro
Search	Queries	Results
#1	Dementia AND home nursing	35

#2	Dementia AND long term care	18

#3	Dementia AND nursing homes	16

#4	Dementia AND therapy	47

#5	Dementia AND support	29
#6	Dementia AND transition	1

sum		146

	Remarks
	Combined search with more than two textwords was not applicable.

Search Strategy ALOIS
Search	Queries	Results
#1	Caregivers	371

#2	Support	290

#3	Training	476

#4	Exercise	353

#5	Treatment	3.759

#5	Home care	259

#5	Nursing home	320

#6	Transition	9

#7	Caregivers OR support OR training OR exercise OR treatment	4.192

#8	Home care OR nursing home OR transition	176

#9	#7 AND #8	353

#10	#9 AND Non-pharmacological OR RCT OR CCT	115

aa Mesh = medical subject headings

bb Pt = publication type

cc Tiab = title and abstract

aa Mesh = medical subject headings

dd tw = textword

bb Pt = publication type

cc Tiab = title and abstract

aa MH = medical subject headings

bb AB = abstract

cc TI = title

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Articles in this issue

DOI: https://doi.org/10.1515/ijhp-2016-0020 | Journal eISSN: 2296-990X

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Language: English, German

Page range: 122 - 135

Submitted on: Feb 18, 2016

Accepted on: Jun 2, 2016

Published on: Aug 15, 2016

Published by: ZHAW Zurich University of Applied Sciences

In partnership with: Paradigm Publishing Services

Publication frequency: 1 issue per year

Keywords:

Dementia,

Alzheimer’s disease,

healthcare professionals,

informal caregivers,

transition,

nursing home,

institutionalisation,

support,

Related subjects:

Clinical medicine, other

© 2016 Christian Müller, Janine Puls, Sindy Lautenschläger, Astrid Stephan, Gabriele Meyer, published by ZHAW Zurich University of Applied Sciences
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.

Volume 3 (2016): Issue 2 (December 2016)