Systematic cognitive monitoring of children with cerebral palsy – the development of an assessment and follow-up protocol

Louise Bøttcher; Kristine Stadskleiv; Torhild Berntsen; Klaus Christensen; Åsa Korsfelt; Margareta Kihlgren; Pia Ödman

doi:10.1080/15017419.2015.1091035

Systematic cognitive monitoring of children with cerebral palsy – the development of an assessment and follow-up protocol

Scandinavian Journal of Disability Research

Volume 18 (2016): Issue 4

By: Louise Bøttcher, Kristine Stadskleiv, Torhild Berntsen, Klaus Christensen, Åsa Korsfelt, Margareta Kihlgren and Pia Ödman

Open Access

|Oct 2016

Abstract

Cerebral palsy (CP) is associated with cognitive impairments, learning difficulties and reduced social participation. Individual assessment is necessary for individually tailored interventions. This paper describes the development of a systematic follow-up programme of cognition, and the challenges of integrating it into the regular follow-up of children with CP. Initiated by the Nordic users‘ organisations, a group of psychologists proposed a protocol of follow-up of cognition in children with CP – the CP Cog. This protocol consists of neuropsychological instruments covering general cognitive functioning, visuospatial and executive functioning. The article presents a natural experiment describing development and implementation of the cognitive protocol in three Scandinavian countries. This introduction illustrates challenges associated with implementation, especially how the success of the protocol hinges on structural backup within the different countries. In conclusion the CP Cog assessment protocol holds the promise of increasing the awareness among habilitation professionals that children with CP are in need of cognitive evaluation and educational support.

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Articles in this issue

DOI: https://doi.org/10.1080/15017419.2015.1091035 | Journal eISSN: 1745-3011

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Language: English

Page range: 304 - 315

Submitted on: Mar 4, 2015

Accepted on: Aug 20, 2015

Published on: Oct 4, 2016

Published by: Stockholm University Press

In partnership with: Paradigm Publishing Services

Keywords:

Cerebral palsy,

cognition,

systematic follow-up,

learning difficulties,

interventions

© 2016 Louise Bøttcher, Kristine Stadskleiv, Torhild Berntsen, Klaus Christensen, Åsa Korsfelt, Margareta Kihlgren, Pia Ödman, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.

Volume 18 (2016): Issue 4