Table 1.
Number of data sources and meaning units from each family and all families together.
Fam1Fam2Fam3Fam4Fam5TotalSource of data
nMean units
NMean units
nMean units
nMean units
NMean units
nMean unitsMemory notes344328444955794996821500573Informal inform132108101323806676231196Planning meetings3171441716131047Interviews21413121526730Total4814675669621011311731836748846
Table 2.
The coding process from keywords/concepts to subcategories and categories.
Keywords and concepts, examples ofSubcategoriesCategoriesStretching; bending; exercising; stabilizing; strengtheningBody/physical functionsFOCUSAids for sitting, standing, walking, moving, orthoses; technical aids; wheel chairs; participateActivityMouth massage; sign class; aid for getting attention initiating conversation (Big Mac); communication training; pictures as support for communicationCommunicationAids for drinking, eating; mincing food; special food; Perkutan Endoskopisk Gastrostomi (PEG)NutritionMedications for facilitating catheterization, weight gain, decrease spasms; surgeries; tube,Medical issuesRespite care; assistant; support in relation to visits and appointments; parent support groups; financialSupportActions to minimize the symptoms of disability in body/ physical functions, activity, communication, nutrition, medical issues, and to offer relevant supportInterveningACTIONInstructing family, preschool teachers, assistants about how to use and how aids function,InstructingAssessing the child's status and abilities e.g. physical, psychological, communicational, needsAssessingInforming parent, colleagues, personal at preschool, assistant, contact persons, external resources; informing about activities, wishes, treatment, needsInformingPlanning for meetings with the team, the family, external recourses, preschool, assessments, appointments for treatment, assessment, follow-upsPlanningDossier for referral; letters of referral to specialists, doctors; training programmes; medical records; protocols; dossier for assessments; assessments;DocumentingAsking colleagues about the family; comments about development; worrying; chats with the families; disappointed when families are treated badlyEngagingConsulting colleagues; special competence; being a consult; consulting for finding special competence; about aids; advices; external support for the familyConsultingReflecting about own and the team's professional knowledge and competence; reflecting about children's needs and reactions; encountering familiesReflectingBring and fetch aids, materials, orthoses, books, bolls, toys, feeding supplies, documents, computer programmesHanding overAsk for information/knowledge about disability, consequences, health; advices; support; needs;ConcernsCOLLABORATION (parents and/or professionals together)Emphasize and negotiating problems; express difficulties; discuss conceivable solutionsProblem solvingDecide about activities, actions, interventions; goal-settingMaking decisions
Table 3.
Timeline showing content focus in the collaboration at a planning meeting; focus for the action intervening performed four month after the planning meeting, together with problem solving and new decisions (Fam1).
NovemberDecemberJanuaryFebruaryMarchAction: interveningPlanning meetingEveryday habEveryday habEveryday habEveryday hab
FocusPh – Body/physiological23A – Activity132Com – Communication2454N – Nutrition2M – MedicineS – Family support11
CollaborationParents’ concerns2Com;2S; 1NProblem solving1N4S; 1NDecision1Ph2Com2Ph1S1Ph; 1Com