Parental and professional agency in terminations for fetal anomalies: analysis of Finnish women's accounts

Katriina Koponen; Kaisa Laaksonen; Tanja Vehkakoski; Simo Vehmas

doi:10.1080/15017419.2012.660704

Parental and professional agency in terminations for fetal anomalies: analysis of Finnish women's accounts

Scandinavian Journal of Disability Research

Volume 15 (2013): Issue 1

By: Katriina Koponen, Kaisa Laaksonen, Tanja Vehkakoski and Simo Vehmas

Open Access

|Mar 2013

Act on the status and rights of patients N:o 785/1992 . http://www.finlex.fi/fi/laki/kaannokset/1992/en19920785.pdf
Search in Google Scholar Back to article
Antaki , C. , M. Billig , D. Edwards , and J. Potter . 2002 . Discourse analysis means doing analysis: A critique of six analytical shortcomings . Discourse Analysis Online 1 .
Search in Google Scholar Back to article
Autti-Rämö , I. , H. Koskinen , M. Mäkelä , A. Ritvanen , and P. Taipale . 2005 . Raskauden ajan ultraäänitutkimukset ja seerumiseulonnat rakenne- ja kromosomipoikkeavuuksien tunnistamisessa [Maternal ultrasound and serum screening in the detection of structural and chromosomal abnormalities] . FinOHTAn raportti 27 . Helsinki : STAKES .
Search in Google Scholar Back to article
Anderson , G. 1999 . Nondirectiveness in prenatal genetics: Patients read between the lines . Nursing Ethics , 6 ( 2 ) : 126 – 36 .
Search in Google Scholar Back to article
Beauchamp , T.L. and Childress , J.F. 2001 . Principles of biomedical ethics , 5th ed , New York : Oxford University Press .
Search in Google Scholar Back to article
Broberg , G. , and N. Roll-Hansen . 1996 . Eugenics and the welfare state: Sterilization policy in Denmark, Sweden, Norway and Finland . East Lansing , MI : Michigan State University Press .
Search in Google Scholar Back to article
Bryar , S.H. 1997 . One day you're pregnant and one day you're not: Pregnancy interruption for fetal anomalies . Journal of Obstetric, Gynecologic and Neonatal Nursing , 26 ( 5 ) : 599 – 66 .
Search in Google Scholar Back to article
Burck , C. 2005 . Comparing qualitative research methodologies for systemic research: The use of grounded theory, discourse analysis and narrative analysis . Journal of Family Therapy , 27 ( 5 ) : 237 – 62 .
Search in Google Scholar Back to article
Emirbayer , M. and Mische , A. 1998 . What is agency? . The American Journal of Sociology , 103 ( 4 ) : 962 – 1023 .
Search in Google Scholar Back to article
Fairclough , N. 1992 . Discourse and social change , Cambridge : Polity Press .
Search in Google Scholar Back to article
Fuchs , S. 2001 . Beyond agency . Sociological Theory , 19 ( 1 ) : 24 – 40 .
Search in Google Scholar Back to article
Garel , M. , Gosme-Seguret , S. , Kaminski , M. and Cuttini , M. 2002 . Ethical decision-making in prenatal diagnosis and termination of pregnancy: A qualitative survey among physicians and midwives . Prenatal Diagnosis , 22 ( 9 ) : 811 – 17 .
Search in Google Scholar Back to article
Goverment decree on screenings 1339/2006 . http://www.finlex.fi/fi/laki/kaannokset/2006/en20061339.pdf
Search in Google Scholar Back to article
Hakulinen , A. , Vilkuna , M. , Korhonen , R. , Koivisto , V. , Heinonen , T.-R. and Alho , I. 2004 . Iso suomen kielioppi [The Finnish Grammar] , Helsinki : Finnish Literature Society .
Search in Google Scholar Back to article
Halliday , M.A.K. 1985 . An introduction to functional grammar , London : Arnold .
Search in Google Scholar Back to article
Hall , S. , Abramsky , L. and Marteau , T. 2003 . Health professionals' report of information given to parents following the prenatal diagnosis of sex chromosome anomalies and outcomes of pregnancies: a pilot study . Prenatal Diagnosis , 23 ( 7 ) : 535 – 8 .
Search in Google Scholar Back to article
Halonen , M. 2008 . “ Person reference as a device for constructing experiences as typical in group therapy ” . In Conversation analysis and psychotherapy , Edited by: Peräkylä , A. , Antaki , C. , Vehviläinen , S. and Leudar , I. 139 – 51 . Cambridge : Cambridge University Press .
Search in Google Scholar Back to article
Hammersley , M. 2003 . Conversation analysis and discourse analysis: Methods or paradigms? . Discourse and Society , 14 ( 6 ) : 751 – 81 .
Search in Google Scholar Back to article
Jallinoja , P. 2001 . Genetic screening in maternity care: Preventive aims and voluntary choices . Sociology of Health and Illness , 23 ( 3 ) : 286 – 307 .
Search in Google Scholar Back to article
Jennings , B. 2000 . “ Technology and the genetic imaginary: Prenatal testing and the construction of disability ” . In Prenatal testing and disability rights , Edited by: Parens , Erik and Asch , Adrienne . 124 – 44 . Washington , DC : Georgetown University Press .
Search in Google Scholar Back to article
Korenromp , M.J. , Page-Christiaens , G.C.M.L. , van den Bout , J. , Mulder , E.J.H. , Hunfeld , J.A.M. , Bilardo , C.M. , Offermans , J.P.M. and Visser , G.H.A. 2005 . Long-term psychological consequences of pregnancy termination for fetal abnormality: A cross-sectional study . Prenatal Diagnosis , 25 : 253 – 60 .
Search in Google Scholar Back to article
Korenromp , M. J. , Page-Christiaens , G.C.M.L. , van den Bout , J. , Mulder , E.J.H. , Potters , C.M.A.A. , Erwich , J.J.H.M , van Binsbergen , C.J.M. , Brons , J.T.J. , Beekhuis , J.R. , Omtzigt , A.W.J. and Visser , G.H.A. 2007 . A prospective study on parental coping 4 months after termination of pregnancy for fetal anomalies . Prenatal Diagnosis , 27 : 709 – 16 .
Search in Google Scholar Back to article
Kurri , K. and Wahlström , J. 2007 . Reformulations of agentless talk in psychotherapy . Text and Talk , 27 ( 3 ) : 315 – 38 .
Search in Google Scholar Back to article
Louhiala , P. 2004 . Preventing intellectual disability: Ethical and clinical issues , Cambridge : Cambridge University Press .
Search in Google Scholar Back to article
Mansfield , C. , Hopfer , S. and Marteau , T.M. 1999 . Termination rates after prenatal diagnosis of Down Syndrome, Spina bifida, Anencephaly, and Turner and Klinefelter syndromes: A systematic literature review . Prenatal Diagnosis , 19 ( 9 ) : 808 – 12 .
Search in Google Scholar Back to article
Mattila , M. 1999 . Kansamme parhaaksi: Rotuhygienia Suomessa vuoden 1935 sterilointilakiin asti [For our nation's best: Racial hygiene in Finland until the 1935 sterilization act] , Helsinki : Suomen Historiallinen Seura .
Search in Google Scholar Back to article
Medical research act No: 488/1999 . http://www.finlex.fi/fi/laki/kaannokset/1999/en19990488.pdf
Search in Google Scholar Back to article
Ministry of Social Affairs and Health . 2007 . Seulontaohjelmat: Opas kunnille kansanterveystyöhön kuuluvien seulontojen järjestämisestä [Screening programmes: A handbook for municipal authorities] . Sosiaali- ja terveysministeriön julkaisuja 2007:5 . Helsinki .
Search in Google Scholar Back to article
Mykkänen , J. 2010 . Isäksi tulon tarinat, tunteet ja toimijuus [Becoming a father – types of account, emotions and agency] . Jyväskylä Studies in Education, Psychology and Social Research 382 . Jyväskylä : University of Jyväskylä .
Search in Google Scholar Back to article
Pellegrino , E.D. and Thomasma , D.C. 1993 . The virtues in medical practice , New York : Oxford University Press .
Search in Google Scholar Back to article
Press , N. 2000 . “ Assessing the expressive character of prenatal testing: The choices made or the choices made available? ” . In Prenatal testing and disability rights , Edited by: Parens , Erik and Asch , Adrienne . 214 – 33 . Washington , DC : Georgetown University Press .
Search in Google Scholar Back to article
Potter , J. and Wetherell , M. 1987 . Discourse and social psychology: Beyond attitudes and behaviour , London : Sage .
Search in Google Scholar Back to article
Santalahti , P. , Hemminki , E. , Latikka , A.-M. and Ryynänen , M. 1998 . Women's decision-making in prenatal screening . Social Science and Medicine , 46 ( 8 ) : 1067 – 76 .
Search in Google Scholar Back to article
Saxton , M. 2000 . “ Why members of the disability community oppose prenatal diagnosis and selective abortion ” . In Prenatal testing and disability rights , Edited by: Parens , Erik and Asch , Adrienne . 147 – 64 . Washington , DC : Georgetown University Press .
Search in Google Scholar Back to article
Shakespeare , T. 1998 . Choices and rights: Eugenics, genetics and disability equality . Disability and Society , 13 ( 5 ) : 665 – 81 .
Search in Google Scholar Back to article
Silverman , D. 2005 . Doing qualitative research: A practical handbook , London : Sage .
Search in Google Scholar Back to article
Thomas , C. 2007 . Sociologies of disability and illness: Contested ideas in disability studies and medical sociology , Basingstoke : Palgrave Macmillan .
Search in Google Scholar Back to article
Vehmas , S. 2001 . Just ignore it? Parents and genetic information . Theoretical Medicine and Bioethics , 22 ( 5 ) : 473 – 84 .
Search in Google Scholar Back to article
Wertz , D.C. and Gregg , R. 2000 . Genetics services in a social, ethical and policy context: A collaboration between consumers and providers . Journal of Medical Ethics , 26 ( 4 ) : 261 – 5 .
Search in Google Scholar Back to article
Wetherell , M. 2001 . “ Debates in discourse research ” . In Discourse theory and practice: A reader , Edited by: Wetherell , M. , Taylor , S. and Yates , S.J. 380 – 99 . London : Sage .
Search in Google Scholar Back to article
Williams , C. , Alderson , P. and Farsides , B. 2002 . Is nondirectiveness possible within the context of antenatal screening and testing . Social Science and Medicine , 54 ( 3 ) : 339 – 47 .
Search in Google Scholar Back to article

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DOI: https://doi.org/10.1080/15017419.2012.660704 | Journal eISSN: 1745-3011

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Language: English

Page range: 33 - 44

Submitted on: May 9, 2011

Accepted on: Dec 20, 2011

Published on: Mar 1, 2013

Published by: Stockholm University Press

In partnership with: Paradigm Publishing Services

Keywords:

mother,

agency,

prenatal diagnosis,

selective abortion,

account

© 2013 Katriina Koponen, Kaisa Laaksonen, Tanja Vehkakoski, Simo Vehmas, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.

Volume 15 (2013): Issue 1