Beyond “just speak up!”: How what people think, feel, and experience shape patient and caregiver voice in long-term complex care
Authors
Emily Cordeaux
emily.cordeaux@mail.utoronto.ca
1: Institute of Health Policy, Management and Evaluation, University of Toronto; 2: Institute for Better Health, Trillium Health Partners
Meena Andiappan
emily.cordeaux@mail.utoronto.ca
1: Institute of Health Policy, Management and Evaluation, University of Toronto; 4: DeGroote School of Business, McMaster University
Lesley Gotlib-Conn
emily.cordeaux@mail.utoronto.ca
1: Institute of Health Policy, Management and Evaluation, University of Toronto
Kerry Kuluski
emily.cordeaux@mail.utoronto.ca
1: Institute of Health Policy, Management and Evaluation, University of Toronto; 2: Institute for Better Health, Trillium Health Partners
Journal eISSN: 1568-4156
Language: English
Page range: 033 - 033
Published on: Sep 11, 2026
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
© 2026 Emily Cordeaux, Isra Amsdr, John Easton, Meena Andiappan, Lesley Gotlib-Conn, Kerry Kuluski, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.