References
- 1Leyenaar JK, et al. Prevalence of Children With Medical Complexity and Associations With Health Care Utilization and In-Hospital Mortality. JAMA Pediatr. 2022; 176(6):
e220687 . DOI: 10.1001/jamapediatrics.2022.0687 - 2Cohen E, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011; 127(3): 529–38. DOI: 10.1542/peds.2010-0910
- 3Kuo DZ, et al. A national profile of caregiver challenges among more medically complex children with special health care needs. Arch Pediatr Adolesc Med. 2011; 165(11): 1020–6. DOI: 10.1001/archpediatrics.2011.172
- 4Simon TD, et al. Pediatric medical complexity algorithm: a new method to stratify children by medical complexity. Pediatrics. 2014; 133(6): e1647–54. DOI: 10.1542/peds.2013-3875
- 5Altman L, et al.
“Dealing with the Hospital has Become too Difficult for Us to Do Alone” – Developing an Integrated Care Program for Children with Medical Complexity (CMC). 2018; 1(3): 14. DOI: 10.5334/ijic.3953 - 6Bell J, et al. Prevalence, hospital admissions and costs of child chronic conditions: A population-based study. J Paediatr Child Health. 2020; 56(9): 1365–1370. DOI: 10.1111/jpc.14932
- 7McLendon SF, Wood FG, Stanley N. Enhancing diabetes care through care coordination, telemedicine, and education: Evaluation of a rural pilot program. Public Health Nursing. 2019; 36(3): 310–320. DOI: 10.1111/phn.12601
- 8Kastner M, et al. Effectiveness of interventions for managing multiple high-burden chronic diseases in older adults: a systematic review and meta-analysis. Canadian Medical Association Journal. 2018; 190(34): E1004–E1012. DOI: 10.1503/cmaj.171391
- 9Plant N, et al. Implementation and effectiveness of ‘care navigation’, coordinated management for people with complex chronic illness: rationale and methods of a randomised controlled trial. BMC Health Services Research. 2013; 13(1): 164. DOI: 10.1186/1472-6963-13-164
- 10Arendts G, et al. A randomized-controlled trial of a patient-centred intervention in high-risk discharged older patients. Eur J Emerg Med. 2018; 25(4): 237–241. DOI: 10.1097/MEJ.0000000000000444
- 11Mallitt KA, et al. Reducing emergency department presentations among chronically ill patients in Western Sydney: a key role for coordinated primary care. Aust J Prim Health. 2017; 23(2): 140–146. DOI: 10.1071/PY16012
- 12Health H. About Us; 2021 [cited 2024 15 February]. Available from:
https://www.hnehealth.nsw.gov.au/about-us . - 13Health H. John Hunter Children’s Hospital; 2021 [cited 2024 15 February]. Available from:
https://www.hnekidshealth.nsw.gov.au/facilities/childrens_hospital . - 14Hodgson S, et al. Between equilibrium and chaos, with little restitution: a narrative analysis of qualitative interviews with clinicians and parent carers of children with medical complexity. BMC Health Serv Res. 2024; 24(1): 504. DOI: 10.1186/s12913-024-10973-6
- 15Statistics ABo.
Australian Statistical Geography Standard (ASGS) Edition 3 ; 2021. 2021 [cited 2024 23 June]. Available from: Australian Bureau of Statistics (abs.gov.au ). - 16Statistics ABo. Socio-Economic Indexes for Areas (SEIFA), Australia; 2021 [cited 2024 23 June]. Available from:
https://www.abs.gov.au/statistics/people/people-and-communities/socio-economic-indexes-areas-seifa-australia/latest-release#index-of-relative-socio-economic-advantage-and-disadvantage-irsad- . - 17Nahm FS. Nonparametric statistical tests for the continuous data: the basic concept and the practical use. Korean J Anesthesiol. 2016; 69(1): 8–14. DOI: 10.4097/kjae.2016.69.1.8
- 18Finch T, et al. NoMAD: Implementation measure based on Normalization Process Theory; 2015 [cited 2024 1 February]. Available from:
http://www.normalizationprocess.org . - 19Beck AF, et al. Perspectives from the Society for Pediatric Research: interventions targeting social needs in pediatric clinical care. Pediatric Research. 2018; 84(1): 10–21. DOI: 10.1038/s41390-018-0012-1
- 20Innovation, A.f.C. Co-design toolkit. [cited 2024 August 8]. Available from:
https://aci.health.nsw.gov.au/projects/co-design . - 21Bowen S, et al. How was it for you? Experiences of participatory design in the UK health service. CoDesign. 2013; 9(4): 230–246. DOI: 10.1080/15710882.2013.846384
- 22Mulvale G, et al. Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration. Health Expectations. 2019; 22(3): 284–297. DOI: 10.1111/hex.12864
- 23Heslop L, Power R, Cranwell K. Building workforce capacity for complex care coordination: a function analysis of workflow activity. Hum Resour Health. 2014; 12: 52. DOI: 10.1186/1478-4491-12-52
- 24Noar AP, et al. The aims and effectiveness of communities of practice in healthcare: A systematic review. PLoS One. 2023; 18(10):
e0292343 . DOI: 10.1371/journal.pone.0292343 - 25Crespo-Gonzalez C, et al. Advancing integrated paediatric care in Australian general practices: Qualitative insights from the SC4C GP-paediatrician model of care. Plos One. 2024. DOI: 10.1371/journal.pone.0302815
- 26Teisberg E, Wallace S, O’Hara S. Defining and Implementing Value-Based Health Care: A Strategic Framework. Acad Med. 2020; 95(5): 682–685. DOI: 10.1097/ACM.0000000000003122
- 27Breen C, et al. Significant reductions in tertiary hospital encounters and less travel for families after implementation of Paediatric Care Coordination in Australia. BMC Health Services Research. 2018; 18(1). DOI: 10.1186/s12913-018-3553-4
- 28Cohen E, et al. Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration. BMC Health Services Research. 2012; 12(1): 366. DOI: 10.1186/1472-6963-12-366
- 29Yu JA, et al. Family Caregivers of Children With Medical Complexity: Health-Related Quality of Life and Experiences of Care Coordination. Academic Pediatrics. 2020; 20(8): 1116–1123. DOI: 10.1016/j.acap.2020.06.014
- 30Zurynski Y, et al. Care coordination for children with medical complexity results in savings for the healthcare system and for families. International Journal of Integrated Care (IJIC). 2019; 19(S1): 1–2. DOI: 10.5334/ijic.s3615
- 31Hofacer RD, et al. Clinical Care Coordination in Medically Complex Pediatric Cases: Results From the National Survey of Children With Special Health Care Needs. 2019; 1. DOI: 10.1177/2333794X19847911
- 32Bell C, et al. Improving Health Care for Patients with Multimorbidity: A Mixed-Methods Study to Explore the Feasibility and Process of Aligning Scheduled Outpatient Appointments through Collaboration between Medical Specialties. Int J Integr Care. 2022; 22(1): 17. DOI: 10.5334/ijic.6013
- 33Bell C, et al. The Effect of Coordinating the Outpatient Treatment across Medical Specialities for Patients With Multimorbidity. Int J Integr Care. 2024; 24(2): 4. DOI: 10.5334/ijic.7535
- 34Miketic RM, et al. Experience with Combining Pediatric Procedures into a Single Anesthetic. Pediatric Quality & Safety. 2019; 4(5):
e207 . DOI: 10.1097/pq9.0000000000000207 - 35Hutchinson K, et al. Providing care coordination to children with medical complexity in rural New South Wales: implementation experiences from four local health districts. 2023, Abstract from 3rd Asia Pacific Conference on Integrated Care. Sydney, Australia.
- 36Barnert ES, et al. A Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health. Pediatrics. 2018; 142(3). DOI: 10.1542/peds.2018-0779
- 37Johnson SB, et al. The science of early life toxic stress for pediatric practice and advocacy. Pediatrics. 2013; 131(2): 319–27. DOI: 10.1542/peds.2012-0469
- 38Cohn LN, et al. Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis. J Pediatr. 2020; 218: 166–177.e2. DOI: 10.1016/j.jpeds.2019.10.068
- 39Keilty K, et al. 0913 Exploring Sleep Disturbance Among Family Caregivers Of Children With Medical Complexity. Sleep. 2017; 40: A339–A340. DOI: 10.1093/sleepj/zsx050.912
- 40McCann D, Bull R, Winzenberg T. Sleep deprivation in parents caring for children with complex needs at home: a mixed methods systematic review. J Fam Nurs. 2015; 21(1): 86–118. DOI: 10.1177/1074840714562026
- 41Meltzer LJ, Mindell JA. Impact of a Child’s Chronic Illness on Maternal Sleep and Daytime Functioning. Archives of Internal Medicine. 2006; 166(16): 1749–1755. DOI: 10.1001/archinte.166.16.1749
- 42Psihogios AM, et al. Family Functioning and Medical Adherence Across Children and Adolescents With Chronic Health Conditions: A Meta-Analysis. Journal of Pediatric Psychology. 2019; 44(1): 84–97. DOI: 10.1093/jpepsy/jsy044
- 43Lago S, et al. Socioeconomic status, health inequalities and non-communicable diseases: a systematic review. Journal of Public Health. 2018; 26(1): 1–14. DOI: 10.1007/s10389-017-0850-z
- 44Chambers D, Cantrell A, Booth A. Recognition of risk and prevention in safeguarding of children and young people: a mapping review and component analysis of service development interventions aimed at health and social care professionals. BMC Health Services Research. 2021; 21(1): 1241. DOI: 10.1186/s12913-021-07257-8
- 45Park G-A, Lee ON. The Moderating Effect of Social Support on Parental Stress and Depression in Mothers of Children with Disabilities. Occupational Therapy International. 2022. DOI: 10.1155/2022/5162954
- 46Cady RG, et al. Meeting the needs of children with medical complexity using a telehealth advanced practice registered nurse care coordination model. Matern Child Health J. 2015; 19(7): 1497–506. DOI: 10.1007/s10995-014-1654-1
