References
- 1Dröes RM, van Rijn A, Rus E, Dacier S, Meiland F. Utilization, effect, and benefit of the individualized Meeting Centers Support Program for people with dementia and caregivers. Clin Interv Aging. 2019; 14: 1527–53. DOI: 10.2147/CIA.S212852
- 2Novelli M, Machado SCB, Lima GB, Cantatore L, Sena BP, Rodrigues RS, et al. Effects of the Tailored Activity Program in Brazil (TAP-BR) for Persons With Dementia: A Randomized Pilot Trial. Alzheimer Dis Assoc Disord. 2018; 32(49): 339–45. DOI: 10.1097/WAD.0000000000000256
- 3Orsulic-Jeras S, Whitlatch CJ, Szabo SM, Shelton EG, Johnson J. The SHARE program for dementia: Implementation of an early-stage dyadic care-planning intervention. Dementia [London]. 2019; 18(1): 360–79. DOI: 10.1177/1471301216673455
- 4Aasmul I, Husebo BS, Flo E. Description of an advance care planning intervention in nursing homes: outcomes of the process evaluation. BMC Geriatr. 2018; 18(1):
26 . DOI: 10.1186/s12877-018-0713-7 - 5Laakkonen ML, Kautiainen H, Hölttä E, Savikko N, Tilvis RS, Strandberg TE, et al. Effects of Self-Management Groups for People with Dementia and Their Spouses--Randomized Controlled Trial. J Am Geriatr Soc. 2016; 64(4): 752–60. DOI: 10.1111/jgs.14055
- 6Mavandadi S, Patel S, Benson A, DiFilippo S, Streim J, Oslin D. Correlates of Caregiver Participation in a Brief, Community-Based Dementia Care Management Program. Gerontologist. 2017; 57(6): 1103–12. DOI: 10.1093/geront/gnw127
- 7Faarup I, Lauridsen JT, Lütgen K, Nørregaard A, Poulsen FR, Østergaard B. Do family health conversations impact patients with glioblastoma multiforme and their family members? J Clin Nurs. 2019; 28(9–10): 1695–707. DOI: 10.1111/jocn.14777
- 8Kellett U, Moyle W, McAllister M, King C, Gallagher F. Life stories and biography: a means of connecting family and staff to people with dementia. J Clin Nurs. 2010; 19(11–12): 1707–15. DOI: 10.1111/j.1365-2702.2009.03116.x
- 9Judge KS, Yarry SJ, Looman WJ, Bass DM. Improved Strain and Psychosocial Outcomes for Caregivers of Individuals with Dementia: Findings from Project ANSWERS. Gerontologist. 2013; 53(2): 280–92. DOI: 10.1093/geront/gns076
- 10A’Campo LE, Spliethoff-Kamminga NG, Roos RA. The Patient Education Program for Huntington’s Disease (PEP-HD). J Huntingtons Dis. 2012; 1(1): 47–56. DOI: 10.3233/JHD-2012-120002
- 11Charlesworth G, Burnell K, Crellin N, Hoare Z, Hoe J, Knapp M, et al. Peer support and reminiscence therapy for people with dementia and their family carers: a factorial pragmatic randomised trial. J Neurol Neurosurg Psychiatry. 2016; 87(11): 1218–28. DOI: 10.1136/jnnp-2016-313736
- 12Reblin M, Ketcher D, Forsyth P, Mendivil E, Kane L, Pok J, et al. Outcomes of an electronic social network intervention with neuro-oncology patient family caregivers. J Neurooncol. 2018; 139(3): 643–9. DOI: 10.1007/s11060-018-2909-2
- 13Gluyas H. Patient-centred care: improving healthcare outcomes. Nurs Stand. 2015; 30(4): 50–7; quiz 9. DOI: 10.7748/ns.30.4.50.e10186
- 14Heintz H, Monette P, Epstein-Lubow G, Smith L, Rowlett S, Forester BP. Emerging Collaborative Care Models for Dementia Care in the Primary Care Setting: A Narrative Review. The American Journal of Geriatric Psychiatry. 2020; 28(3): 320–30. DOI: 10.1016/j.jagp.2019.07.015
- 15Allen, J, Gay B, Crebolder H, Heyrman J, Svab I, Ram P. The European definitions of the key features of the discipline of general practice: the role of the GP and core competencies. Br J Gen Pract. 2002; 52(479): 526–7.
- 16Porter ME, Teisberg EO.
Redefining health care: creating value-based competition on results . Boston: Harvard Business Press; 2006. - 17Efficace F, Collins GS, Cottone F, Giesinger JM, Sommer K, Anota A, et al. Patient-Reported Outcomes as Independent Prognostic Factors for Survival in Oncology: Systematic Review and Meta-Analysis. Value Health. 2021; 24(2): 250–67. DOI: 10.1016/j.jval.2020.10.017
- 18Denis, F, Lethrosne C, Pourel N, Molinier O, Pointreau Y, Domont J, et al. Randomized Trial Comparing a Web-Mediated Follow-up With Routine Surveillance in Lung Cancer Patients. J Natl Cancer Inst. 2017; 109(9). DOI: 10.1093/jnci/djx029
- 19Kodner D. All Together Now: A Conceptual Exploration of Integrated Care. Healthcare quarterly (Toronto, Ont). 2009; 13: Spec No:6–15. DOI: 10.12927/hcq.2009.21091
- 20Nolte E, Pitchforth E.
What is the evidence on the economic impacts of integrated care? Copenhagen: WHO Regional Office for Europe; 2014. - 21Valentijn PP, Schepman SM, Opheij W, Bruijnzeels MA. Understanding integrated care: a comprehensive conceptual framework based on the integrative functions of primary care. IJIC. 2013; 13:
e010 . DOI: 10.5334/ijic.886 - 22Shortell SM, Gillies RR, Anderson DA. The new world of managed care: creating organized delivery systems. Health Aff (Millwood). 1994; 13(5): 46–64. DOI: 10.1377/hlthaff.13.5.46
- 23Kee K, Nies H, van Wieringen M, Beersma B. From integrated care to integrating care: a conceptual framework of behavioural processes underlying effective collaboration in care. IJIC. 2023; 23(4): 4, 1–15. DOI: 10.5334/ijic.7446
- 24Fox S, Gaboury I, Chiocchio F, Vachon B. Communication and interprofessional collaboration in primary care: from ideal to reality in practice. Health Communication. 2021; 36(2): 125–135. DOI: 10.1080/10410236.2019.1666499
- 25Galvin M, Carney S, Corr B, Mays I, Pender N, Hardiman O. Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis. BMJ Open. 2018; 8(1):
e018721 . DOI: 10.1136/bmjopen-2017-018721 - 26Zwaanswijk M, Peeters JM, van Beek AP, Meerveld JH, Francke AL. Informal caregivers of people with dementia: problems, needs and support in the initial stage and in subsequent stages of dementia: a questionnaire survey. Open Nurs J. 2013; 7: 6–13. DOI: 10.2174/1874434601307010006
- 27Schubart JR, Kinzie MB, Farace E. Caring for the brain tumor patient: family caregiver burden and unmet needs. Neuro Oncol. 2008; 10(1): 61–72. DOI: 10.1215/15228517-2007-040
- 28Aubeeluck AV, Buchanan H, Stupple EJN. ‘All the burden on all the carers’: exploring quality of life with family caregivers of Huntington’s disease patients. Quality of Life Research. 2012; 21(8): 1425–35. DOI: 10.1007/s11136-011-0062-x
- 29Spoorenberg SLW, Uittenbroek RJ, Kremer HPH, Reijneveld SA, Wynia K. Advantages of person-centered and integrated care service: results of Mixed Method Research on Embrace. IJIC. 2016; 16(6): A226:1–8. DOI: 10.5334/ijic.2774
- 30Lewanczuk R. Achieving person-centered care through integrated care. IJIC. 2021; 22(S1) A1: 1–8. DOI: 10.5334/ijic.ICIC21015
- 31Kodner DL, Spreeuwenberg C. Integrated care: meaning, logic, applications, and implications--a discussion paper. IJIC. 2002; 2:
e12 . DOI: 10.5334/ijic.67 - 32Feng TL, Stoessl AJ, Harrison RA. Integrated care in neurology: the current landscape and future directions. Canadian Journal of Neurological Sciences. 2024; 1–9. DOI: 10.1017/cjn.2024.62
- 33Suter E, Arndt J, Arthur N, Parboosingh J, Taylor E, Deutschlander S. Role understanding and effective communication as core competencies for collaborative practice. J Interprof Care. 2009; 23(1): 41–51. DOI: 10.1080/13561820802338579
- 34Suter E, Oelke ND, Adair CE, Armitage GD. Ten key principles for successful health systems integration. Healthc Q. 2009; 13 Spec No:16–23. DOI: 10.12927/hcq.2009.21092
- 35Abdelhalim R, Grudniewicz A, Kuluski K, Wodchis W. Person-centered and integrated care: a discussion of concepts. IJIC. 2019; 19. DOI: 10.5334/ijic.s3416
- 36Verbakel E, Tamlagsrønning S, Winstone L, Fjær EL, Eikemo TA. Informal care in Europe: findings from the European Social Survey (2014) special module on the social determinants of health. Eur J Public Health. 2017; 27(suppl_1): 90–5. DOI: 10.1093/eurpub/ckw229
- 37Ekman B, McKee K, Vicente J, Magnusson L, Hanson E. Cost analysis of informal care: estimates from a national cross-sectional survey in Sweden. BMC Health Services Research. 2021; 21(1):
1236 . DOI: 10.1186/s12913-021-07264-9 - 38Ulmanen P, Szebehely, M. From the state to the family or to the market? Consequences of reduced residential eldercare in Sweden. International Journal of Social Welfare. 2015; 24: 82–92 DOI: 10.1111/ijsw.12108
- 39Barker JC. Neighbors, friends, and other nonkin caregivers of community-living dependent elders. J Gerontol B Psychol Sci Soc Sci. 2002; 57(3): S158–67. DOI: 10.1093/geronb/57.3.S158
- 40Lapierre T, Keating N. Characteristics and contributions of non-kin carers of older people: A closer look at friends and neighbours. Ageing and Society. 2013; 33. DOI: 10.1017/S0144686X12000736
- 41Ownsworth T, Chambers S, Damborg E, Casey L, Walker DG, Shum DH. Evaluation of the making sense of brain tumor program: a randomized controlled trial of a home-based psychosocial intervention. Psychooncology. 2015; 24(55): 540–7. DOI: 10.1002/pon.3687
- 42Boele FW, Given CW, Given BA, Donovan HS, Schulz R, Weimer JM, et al. Family caregivers’ level of mastery predicts survival of patients with glioblastoma: A preliminary report. Cancer. 2017; 123(5): 832–40. DOI: 10.1002/cncr.30428
- 43Chan V, Toccalino D, Omar S, Shah R, Colantonio A. A systematic review on integrated care for traumatic brain injury, mental health, and substance use. PLoS One. 2022; 1(3):
e0264116 . DOI: 10.1371/journal.pone.0264116 - 44Salander P. Facilitating interventions and/or relationships in malignant brain tumors. Adv Ther. 2010; 27(1): 17–27. DOI: 10.1007/s12325-010-0003-z
- 45Sherwood PR, Given BA, Given CW, Schiffman RF, Murman DL, Lovely M, et al. Predictors of distress in caregivers of persons with a primary malignant brain tumor. Res Nurs Health. 2006; 29(2): 105–20. DOI: 10.1002/nur.20116
- 46Boykoff N, Moieni M, Subramanian SK. Confronting chemobrain: an in-depth look at survivors’ reports of impact on work, social networks, and health care response. J Cancer Surviv. 2009; 3(4): 223–32. DOI: 10.1007/s11764-009-0098-x
- 47Myers JS. Cancer- and Chemotherapy-Related Cognitive Changes: The Patient Experience. Seminars in Oncology Nursing. 2013; 29(4): 300–7. DOI: 10.1016/j.soncn.2013.08.010
- 48Von Ah D, Habermann B, Carpenter JS, Schneider BL. Impact of perceived cognitive impairment in breast cancer survivors. Eur J Oncol Nurs. 2013; 17(2): 236–41. DOI: 10.1016/j.ejon.2012.06.002
- 49Munn Z, Micah DJ, Peters MDJ, Cindy Stern C, Catalin Tufanaru C, Alexa McArthur A, Aromataris E. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Medical Research Methodology. 2018; 18:
143 . DOI: 10.1186/s12874-018-0611-x - 50Arksey H, O’Malley L. Scoping Studies: Towards a Methodological Framework. International Journal of Social Research Methodology: Theory & Practice. 2005; 8(1): 19–32. DOI: 10.1080/1364557032000119616
- 51Moher D, Shamseer L, Clarke M, Ghersi D, Liberati A, Petticrew M, et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement. Syst Rev. 2015; 4(1): 1. DOI: 10.1186/2046-4053-4-1
- 52Eriksen MB, Frandsen TF. The impact of patient, intervention, comparison, outcome [PICO] as a search strategy tool on literature search quality: a systematic review. J Med Libr Assoc. 2018 Oct; 106(4): 420–431. DOI: 10.5195/jmla.2018.345
- 53Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology. 2006; 3(2): 77–101. DOI: 10.1191/1478088706qp063oa
- 54Ouzzani M, Hammady H, Fedorowicz Z, Elmagarmid A. Rayyan—a web and mobile app for systematic reviews. Systematic Reviews. 2016; 5(1):
210 . DOI: 10.1186/s13643-016-0384-4 - 55Levac D, Colquhoun H, O’Brien KK. Scoping studies: advancing the methodology. Implementation Science. 2010; 5(1):
69 . DOI: 10.1186/1748-5908-5-69 - 56Muhandiramge J, Orchard SG, Warner ET, van Londen GJ, Zalcberg JR. Functional Decline in the Cancer Patient: A Review. Cancers (Basel). 2022; 14(6). DOI: 10.3390/cancers14061368
- 57Chang W-Y, Ma J-C, Chiu H-T, Lin K-C, Lee P-H. Job satisfaction and perceptions of quality of patient care, collaboration and teamwork in acute care hospitals. Journal of Advanced Nursing. 2009; 65(9): 1946–55. DOI: 10.1111/j.1365-2648.2009.05085.x
- 58Goodrich DE, Kilbourne AM, Nord KM, Bauer MS. Mental Health Collaborative Care and its Role in Primary Care Settings. Current Psychiatry Reports. 2013; 15(8):
383 . DOI: 10.1007/s11920-013-0383-2 - 59Hipp JR. Collective efficacy: How is it conceptualized, how is it measured, and does it really matter for understanding perceived neighborhood crime and disorder? J Crim Justice. 2016; 46: 32–44. DOI: 10.1016/j.jcrimjus.2016.02.016
- 60Mills J, Abel J, Kellehear A, Noonan K, Bollig G, Grindod A, et al. The role and contribution of compassionate communities. Lancet; 2023. DOI: 10.1016/S0140-6736(23)02269-9
- 61Cambridge OR, Knight MJ, Mills N, Baune BT. The clinical relationship between cognitive impairment and psychosocial functioning in major depressive disorder: A systematic review. Psychiatry Research. 2018; 269: 157–71. DOI: 10.1016/j.psychres.2018.08.033
- 62Lin A, Wood SJ, Yung AR. Measuring psychosocial outcome is good. Current Opinion in Psychiatry. 2013; 26(2): 138–43. DOI: 10.1097/YCO.0b013e32835d82aa
- 63Anstey KJ, Luszcz MA, Andrews G. Psychosocial factors, gender and late-life mortality. Ageing International. 2002; 27(2): 73–89. DOI: 10.1007/s12126-002-1003-3
- 64Di Lorito C, Bosco A, Rai H, Craven M, McNally D, Todd C, et al. A systematic literature review and meta-analysis on digital health interventions for people living with dementia and Mild Cognitive Impairment. International Journal of Geriatric Psychiatry. 2022; 3(6). DOI: 10.1002/gps.5730
- 65Singh M. Value of Face-to-Face Interactions Between Clinician-Educators and Patients or Students to Improve Health Care Education. JMIR Hum Factors. 2018; 5(2):
e15 . DOI: 10.2196/humanfactors.9859 - 66Onwumere J, Amaral F, Valmaggia LR. Digital Technology for Caregivers of People With Psychosis: Systematic Review. JMIR Ment Health. 2018; 5(3):
e55 . DOI: 10.2196/mental.9857 - 67Sullivan TJ.
Collaboration: a health care imperative (pp. 646). New York: McGraw-Hill; 1998.