References
- 1Cohen E, Kuo DZ, Agrawal R, Berry JG, Bhagat SK, Simon TD, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011; 127(3): 529–38. DOI: 10.1542/peds.2010-0910
- 2Peltz A, Hall M, Rubin DM, Mandl KD, Neff J, Brittan M, et al. Hospital Utilization Among Children With the Highest Annual Inpatient Cost. Pediatrics. 2016; 137(2):
e20151829 . DOI: 10.1542/peds.2015-1829 - 3Breen C, Altman L, Ging J, Deverell M, Woolfenden S, Zurynski Y. Significant reductions in tertiary hospital encounters and less travel for families after implementation of Paediatric Care Coordination in Australia BMC Health Services Research. 2018; 18: 1–10. DOI: 10.1186/s12913-018-3553-4
- 4Owens MK, editor Costs of uncoordinated care. The healthcare imperative: Lowering costs and improving outcomes: Workshop series summary; 2010.
- 5Satherley R-M, Green J, Sevdalis N, Newham JJ, Elsherbiny M, Forman J, et al. The Children and Young People’s Health Partnership Evelina London Model of Care: process evaluation protocol. BMJ Open. 2019; 9(8):
e027302 . DOI: 10.1136/bmjopen-2018-027302 - 6Ziniel SI, Rosenberg HN, Bach AM, Singer SJ, Antonelli RC. Validation of a parent-reported experience measure of integrated care. Pediatrics. 2016; 138(6). DOI: 10.1542/peds.2016-0676
- 7Mumford V, Baysari MT, Kalinin D, Raban MZ, McCullagh C, Karnon J, et al. Measuring the financial and productivity burden of paediatric hospitalisation on the wider family network. Journal of paediatrics and child health. 2018; 54(9): 987–96. DOI: 10.1111/jpc.13923
- 8Herdman M, Gudex C, Lloyd A, Janssen M, Kind P, Parkin D, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Quality of life research. 2011; 20(10): 1727–36. DOI: 10.1007/s11136-011-9903-x
- 9Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL™* 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambulatory pediatrics. 2003; 3(6): 329–41. DOI: 10.1367/1539-4409(2003)003<;0329:TPAAPP>2.0.CO;2
- 10Sweeney R, Chen G, Gold L, Mensah F, Wake M. Mapping PedsQLTM scores onto CHU9D utility scores: estimation, validation and a comparison of alternative instrument versions. Quality of Life Research. 2020; 29(3): 639–52. DOI: 10.1007/s11136-019-02357-9
- 11Clarke A, Friede T, Putz R, Ashdown J, Martin S, Blake A, et al. Warwick-Edinburgh Mental Well-being Scale (WEMWBS): validated for teenage school students in England and Scotland. A mixed methods assessment. BMC public health. 2011; 11(1): 1–9. DOI: 10.1186/1471-2458-11-487
- 12Australian Bureau of Statistics. Census of Population and Housing: Socio-Economic Indexes for Areas (SEIFA) Australia 2016 [updated 27/3/18. Available from:
https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/by%20Subject/2033.0.55.001~2016~Main%20Features~IRSAD . - 13Kontopantelis E, Doran T, Springate DA, Buchan I, Reeves D. Regression based quasi-experimental approach when randomisation is not an option: interrupted time series analysis. BMJ: British Medical Journal. 2015; 350: h2750. DOI: 10.1136/bmj.h2750
- 14Damschroder L, Hall C, Gillon L, Reardon C, Kelley C, Sparks J, et al. The Consolidated Framework for Implementation Research (CFIR): progress to date, tools and resources, and plans for the future. Implementation Science. 2015; 10(1): A12. DOI: 10.1186/1748-5908-10-S1-A12
- 15Proctor E, Silmere H, Raghavan R, Hovmand P, Aarons G, Bunger A, et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Administration and policy in mental health and mental health services research. 2011; 38(2): 65–76. DOI: 10.1007/s10488-010-0319-7
- 16Ponizovsky-Bergelson Y, Dayan Y, Wahle N, Roer-Strier D. A Qualitative Interview With Young Children: What Encourages or Inhibits Young Children’s Participation? International Journal of Qualitative Methods. 2019; 18: 1609406919840516. DOI: 10.1177/1609406919840516
- 17Finch TL, Girling M, May CR, Mair FS, Murray E, Treweek S, et al. Improving the normalization of complex interventions: part 2 – validation of the NoMAD instrument for assessing implementation work based on normalization process theory (NPT). BMC Medical Research Methodology. 2018; 18(1): 135. DOI: 10.1186/s12874-018-0591-x
- 18Slaghuis SS, Strating MMH, Bal RA, Nieboer AP. A framework and a measurement instrument for sustainability of work practices in long-term care. BMC Health Services Research. 2011; 11(1): 314. DOI: 10.1186/1472-6963-11-314
- 19Saldaña J.
The coding manual for qualitative researchers : sage; 2021. - 20Campbell JL, Quincy C, Osserman J, Pedersen OK. Coding in-depth semistructured interviews: Problems of unitization and intercoder reliability and agreement. Sociological methods & research. 2013; 42(3): 294–320. DOI: 10.1177/0049124113500475
- 21Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care. 2007; 19(6): 349–57. DOI: 10.1093/intqhc/mzm042
- 22Turner SF, Cardinal LB, Burton RM. Research Design for Mixed Methods: A Triangulation-based Framework and Roadmap. Organizational Research Methods. 2015; 20(2): 243–67. DOI: 10.1177/1094428115610808
- 23QSR International Pty Ltd. NVivo qualitative data analysis software. 12 ed; 2018.
- 24Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International journal of qualitative methods. 2006; 5(1): 80–92. DOI: 10.1177/160940690600500107
- 25Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implementation science: IS. 2009; 4(1): 50. DOI: 10.1186/1748-5908-4-50
- 26McCartney M. Margaret McCartney: Breaking down the silo walls. BMJ. 2016; 354: i5199. DOI: 10.1136/bmj.i5199
- 27Perrin JM, Kuhlthau K, Walker DK, Stein RE, Newacheck PW, Gortmaker SL. Monitoring health care for children with chronic conditions in a managed care environment. Matern Child Health J. 1997; 1(1): 15–23. DOI: 10.1023/A:1026220201804
- 28Altman L, Breen C, Ging J, Burrett S, Hoffmann T, Dickins E, et al. “Dealing with the Hospital has Become too Difficult for Us to Do Alone” – Developing an Integrated Care Program for Children with Medical Complexity (CMC). Int J Integr Care. 2018; 18(3): 14. DOI: 10.5334/ijic.3953
- 29Eastwood JG, Woolfenden S, Miller E, Shaw M, Garg P, Liu H, et al. Implementation, Mechanisms of Effect and Context of an Integrated Care Intervention for Vulnerable Families in Central Sydney Australia: A Research and Evaluation Protocol. Int J Integr Care. 2019; 19(3): 11. DOI: 10.5334/ijic.4217
- 30NSW Ministry of Health. Strategic Framework for Integrating Care North Sydney NSW Ministry of Health; 2018.
https://www.health.nsw.gov.au/integratedcare/Publications/strategic-framework-for-integrating-care.PDF . - 31Australian Government. National Healthcare Agreement Australian Institute of Health and Welfare; 2021.
https://meteor.aihw.gov.au/content/725844 . - 32Nicholson C, Jackson CL, Marley JE. Best-practice integrated health care governance – applying evidence to Australia’s health reform agenda. Med J Aust. 2014; 201(3 Suppl): S64–6. DOI: 10.5694/mja14.00310
