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Experiences and Reported Outcomes of Patients and Caregivers Enrolled in an Integrated Care Program for Thoracic Surgery: A Qualitative Evaluation Cover

Experiences and Reported Outcomes of Patients and Caregivers Enrolled in an Integrated Care Program for Thoracic Surgery: A Qualitative Evaluation

Open Access
|May 2023

References

  1. 1Viktoria Stein K, Barbazza ES, Tello J, Kluge H. Towards people-centred health services delivery: a Framework for Action for the World Health Organisation (WHO) European Region. Int J Integr Care. 2013; 13: e058. DOI: 10.5334/ijic.1514
  2. 2Burton R. Improving care transitions. RWJ Health Policy Brief; 2012.
  3. 3Coleman EA. Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs. Journal of the American Geriatrics Society. 2003; 51(4): 54955. DOI: 10.1046/j.1532-5415.2003.51185.x
  4. 4Donner G, Fooks C, McReynolds J, Sinha S, Smith K, Thomson D. Bringing care home. Report of the expert group on home and community care; 2015.
  5. 5van Walraven C, Taljaard M, Bell CM, Etchells E, Stiell IG, Zarnke K, et al. A prospective cohort study found that provider and information continuity was low after patient discharge from hospital. Journal of clinical epidemiology. 2010; 63(9): 100010. DOI: 10.1016/j.jclinepi.2010.01.023
  6. 6Health Quality Ontario. Health Care in Canada, 2012: A Focus on Wait Times Ottawa: Canadian Institute for Health Information; 2012. Available from: https://www.hqontario.ca/Portals/0/documents/pr/report-experiencing-integrated-care-1504-en.pdf.
  7. 7Pereira Gray DJ, Sidaway-Lee K, White E, Thorne A, Evans PH. Continuity of care with doctors-a matter of life and death? A systematic review of continuity of care and mortality. BMJ Open. 2018; 8(6): e021161. DOI: 10.1136/bmjopen-2017-021161
  8. 8van Walraven C, Oake N, Jennings A, Forster AJ. The association between continuity of care and outcomes: a systematic and critical review. Journal of evaluation in clinical practice. 2010; 16(5): 94756. DOI: 10.1111/j.1365-2753.2009.01235.x
  9. 9Saultz JW, Lochner J. Interpersonal continuity of care and care outcomes: a critical review. Annals of family medicine. 2005; 3(2): 15966. DOI: 10.1370/afm.285
  10. 10Steele Gray C, Zonneveld N, Breton M, Wankah P, Shaw J, Anderson GM, et al. Comparing International Models of Integrated Care: How Can We Learn Across Borders? Int J Integr Care. 2020; 20(1): 14. DOI: 10.5334/ijic.5413
  11. 11Health Quality Ontario. Advancing Integrated Care: Cross-sector perspectives from Ontario’s health system; 2015. Available from: http://www.hqontario.ca/Portals/0/documents/qi/advancingintegratedcare-qip-eng.pdf.
  12. 12Valentijn PP, Schepman SM, Opheij W, Bruijnzeels MA. Understanding integrated care: a comprehensive conceptual framework based on the integrative functions of primary care. Int J Integr Care. 2013; 13: e010. DOI: 10.5334/ijic.886
  13. 13National Voices. A narrative for person-centred coordinated care; 2013. Available from: https://www.nationalvoices.org.uk/publications/our-publications/narrative-person-centred-coordinated-care.
  14. 14Asif M, Cadel L, Kuluski K, Everall AC, Guilcher SJT. Patient and caregiver experiences on care transitions for adults with a hip fracture: a scoping review. Disability and Rehabilitation. 2020; 42(24): 354958. DOI: 10.1080/09638288.2019.1595181
  15. 15Davidson L, Scott J, Forster N. Patient experiences of integrated care within the United Kingdom: A systematic review. International Journal of Care Coordination. 2021; 24(2): 3956. DOI: 10.1177/20534345211004503
  16. 16Health Quality Ontario. The reality of caring: distress among the caregivers of home care patients. Toronto: Queen’s Printer for Ontario; 2016 [Available from: https://www.hqontario.ca/Portals/0/documents/system-performance/reality-caring-report-en.pdf.
  17. 17Methodological standards and patient-centeredness in comparative effectiveness research: the PCORI perspective. Jama. 2012; 307(15): 163640. DOI: 10.1001/jama.2012.466
  18. 18Ahmadi N, Mbuagbaw L, Finley C, Agzarian J, Hanna WC, Shargall Y. Impact of the integrated comprehensive care program post-thoracic surgery: A propensity score-matched study. J Thorac Cardiovasc Surg; 2020. DOI: 10.1016/j.jtcvs.2020.05.095
  19. 19Shargall Y, Hanna WC, Schneider L, Schieman C, Finley CJ, Tran A, et al. The Integrated Comprehensive Care Program: A Novel Home Care Initiative After Major Thoracic Surgery. Seminars in thoracic and cardiovascular surgery. 2016; 28(2): 57482. DOI: 10.1053/j.semtcvs.2015.12.003
  20. 20Moore GF, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions: Medical Research Council guidance. BMJ (Clinical research ed). 2015; 350: h1258. DOI: 10.1136/bmj.h1258
  21. 21Wholey, JS, Hatry, H, Newcomer, KE. Handbook of practical program evaluation. 2nd ed. San Francisco CA: Jossey-Bass; 2004.
  22. 22Creswell JW, Poth C. Qualitative inquiry and research design: choosing among five traditions. SAGE Publications, Inc.; 2018.
  23. 23Kornas K, O’Neill M, Liang CY, Diemert L, Ayanian T, Chang M, et al. Health care providers’ experiences with delivering person centred care in an Integrated Care Program for thoracic surgery patients in Ontario, Canada. Journal of Integrated Care. 2021; 29(3): 34656. DOI: 10.1108/JICA-10-2020-0068
  24. 24World Health Organization. Framework on integrated people-centred health services. Geneva: Switzerland; 2016. Available from: https://www.who.int/servicedeliverysafety/areas/people-centred-care/framework/en/.
  25. 25Canadian Institute for Health Information. Canadian Patient Experiences Survey – Inpatient Care; 2019. Available from: https://www.cihi.ca/en/patient-experience/about-the-canadian-patient-experiences-survey-on-inpatient-care.
  26. 26Health Quality Ontario. Quality Standards. Transitions Between Hospital and Home Measurement Guide; 2020. Available from: https://www.hqontario.ca/evidence-to-improve-care/quality-standards/view-all-quality-standards/transitions-between-hospital-and-home.
  27. 27Hays RD, Schalet BD, Spritzer KL, Cella D. Two-item PROMIS® global physical and mental health scales. Journal of patient-reported outcomes. 2017; 1(1): 2. DOI: 10.1186/s41687-017-0003-8
  28. 28Gruber-Baldini AL, Velozo C, Romero S, Shulman LM. Validation of the PROMIS® measures of self-efficacy for managing chronic conditions. Quality of Life Research. 2017; 26(7): 191524. DOI: 10.1007/s11136-017-1527-3
  29. 29Yap P. Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Ann Acad Med Singap. 2010; 39: 75863. DOI: 10.47102/annals-acadmedsg.V39N10p758
  30. 30Statistics Canada. General Social Survey – Cycle 26 – Caregiving and Care Receiving; 2013. Available from: https://www23.statcan.gc.ca/imdb/p2SV.pl?Function=getSurvey&Id=123735.
  31. 31Archbold PG, Stewart BJ, Greenlick MR, Harvath T. Mutuality and preparedness as predictors of caregiver role strain. Research in nursing & health. 1990; 13(6): 37584. DOI: 10.1002/nur.4770130605
  32. 32Patton M. Qualitative evaluation and research methods. Beverly Hills, CA: Sage; 1990.
  33. 33Miles, MB, Huberman AM, Huberman, MA, Huberman, M. Qualitative data analysis: An expanded sourcebook. Sage; 1994.
  34. 34Crabtree BF, Miller, WL. Doing qualitative research. Sage publications; 1999.
  35. 35Harry B, Sturges K, Klingner J. Qualitative data analysis: Mapping the process. Educational Researcher. 2005; 34(2): 313. DOI: 10.3102/0013189X034002003
  36. 36Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6): 34957. DOI: 10.1093/intqhc/mzm042
  37. 37Houghton C, Casey D, Shaw D, Murphy K. Rigour in qualitative case-study research. Nurse Res. 2013; 20(4): 127. DOI: 10.7748/nr2013.03.20.4.12.e326
  38. 38Walker K, Hall R, Wodchis W. Integrated Funding Models Patient Experience Survey Final Report; 2018. Available from: https://hspn.ca/wp-content/uploads/2019/10/2.-a-Patient-Experience-Report.pdf.
  39. 39Arber A, Hutson N, de Vries K, Guerrero D. Finding the right kind of support: a study of carers of those with a primary malignant brain tumour. Eur J Oncol Nurs. 2013; 17(1): 528. DOI: 10.1016/j.ejon.2012.01.008
  40. 40Valaitis RK, Markle-Reid M, Ploeg J, Butt ML, Ganann R, Murray N, et al. An evaluation study of caregiver perceptions of the Ontario’s Health Links program. PLoS One. 2020; 15(2): e0229579. DOI: 10.1371/journal.pone.0229579
  41. 41Alzhimer Society of Canada. Caregiver support framework: a planning tool for healthcare providers; 2018 [Available from: https://alzheimer.ca/york/sites/york/files/documents/caregiver_support_framework_may_2018.pdf.
  42. 42Bragstad LK, Kirkevold M, Foss C. The indispensable intermediaries: a qualitative study of informal caregivers’ struggle to achieve influence at and after hospital discharge. BMC health services research. 2014; 14: 331. DOI: 10.1186/1472-6963-14-331
  43. 43Shyu YI, Chen MC, Chen ST, Wang HP, Shao JH. A family caregiver-oriented discharge planning program for older stroke patients and their family caregivers. Journal of clinical nursing. 2008; 17(18): 2497508. DOI: 10.1111/j.1365-2702.2008.02450.x
  44. 44Fiest KM, McIntosh CJ, Demiantschuk D, Leigh JP, Stelfox HT. Translating evidence to patient care through caregivers: a systematic review of caregiver-mediated interventions. BMC medicine. 2018; 16(1): 105. DOI: 10.1186/s12916-018-1097-4
  45. 45Shearkhani S, Walker K, Awil F, Nessa N, Wodchis W. Measuring Integrated Care’s Reliance on Caregiver Support: A Caregiver Experience Survey. International Journal of Integrated Care. 2018; 18(s2). DOI: 10.5334/ijic.s2011
  46. 46Considine J, Berry D, Sprogis SK, Newnham E, Fox K, Darzins P, et al. Understanding the patient experience of early unplanned hospital readmission following acute care discharge: a qualitative descriptive study. BMJ Open. 2020; 10(5): e034728. DOI: 10.1136/bmjopen-2019-034728
  47. 47Nabagiez JP, Shariff MA, Khan MA, Molloy WJ, McGinn JT, Jr. Physician assistant home visit program to reduce hospital readmissions. J Thorac Cardiovasc Surg. 2013; 145(1): 22531, 33. discussion 32-3. DOI: 10.1016/j.jtcvs.2012.09.047
  48. 48Antonoff MB, Ragalie W, Correa AM, Spicer JD, Sepesi B, Roth JA, et al. Results of Postdischarge Nursing Telephone Assessments: Persistent Symptoms Common Among Pulmonary Resection Patients. Ann Thorac Surg. 2016; 102(1): 27681. DOI: 10.1016/j.athoracsur.2016.01.062
  49. 49Hansen LO, Young RS, Hinami K, Leung A, Williams MV. Interventions to reduce 30-day rehospitalization: a systematic review. Annals of internal medicine. 2011; 155(8): 5208. DOI: 10.7326/0003-4819-155-8-201110180-00008
  50. 50Leppin AL, Gionfriddo MR, Kessler M, Brito JP, Mair FS, Gallacher K, et al. Preventing 30-day hospital readmissions: a systematic review and meta-analysis of randomized trials. JAMA internal medicine. 2014; 174(7): 1095107. DOI: 10.1001/jamainternmed.2014.1608
  51. 51Braet A, Weltens C, Sermeus W. Effectiveness of discharge interventions from hospital to home on hospital readmissions: a systematic review. JBI Evidence Synthesis. 2016; 14(2): 10673. DOI: 10.11124/jbisrir-2016-2381
  52. 52Hahn-Goldberg S, Jeffs L, Troup A, Kubba R, Okrainec K. “We are doing it together”; The integral role of caregivers in a patients’ transition home from the medicine unit. PLoS One. 2018; 13(5): e0197831. DOI: 10.1371/journal.pone.0197831
  53. 53Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018; 52(4): 1893907. DOI: 10.1007/s11135-017-0574-8
DOI: https://doi.org/10.5334/ijic.6540 | Journal eISSN: 1568-4156
Language: English
Submitted on: Mar 4, 2022
Accepted on: Apr 19, 2023
Published on: May 4, 2023
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2023 Meghan O’Neill, Kathy Kornas, Catherine Liang, Lori Diemert, Tsoleen Ayanian, Melissa Chang, Laura C. Rosella, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.