Have a personal or library account? Click to login
Achieving Prudent Dementia Care (Palliare): An International Policy and Practice Imperative Cover

Achieving Prudent Dementia Care (Palliare): An International Policy and Practice Imperative

Open Access
|Dec 2016

References

  1. 1
    Prince M Bryce R Albanese E Wimo A Ribeiro W Ferri C P The global prevalence of dementia: a systematic review and metaanalysis Alzheimer’s & Dementia 2013 9 1 63 75 10.1016/j.jalz.2012.1.9.007
  2. 2
    Wortmann M Dementia: a global health priority-highlights from an ADI and World Health Organization report Alzheimers Research Therapy 2012 4 5 40 43
  3. 3
    The European Parliament Report on a European initiative on Alzheimer’s disease and other dementias (2010/2084(INI)) 2010 [cited 2016 21st March]. Available from: http://www.europarl.europa.eu/sides/getDoc.do?pubRef=-//EP//NONSGML+REPORT+A7-2010-0366+0+DOC+PDF+V0//EN
  4. 4
    Department of Health G8 dementia summit agreements 2013 [cited 2016 21st March]. Available from: https://www.gov.uk/government/publications/g8-dementia-summit-agreements
  5. 5
    Aylward M Phillips P Howson H Simply Prudent Healthcare – achieving better care and value for money in Wales – discussion paper 2014 Cardiff Bevan Commission [cited 2016 21st March]. Available from: http://www.bevancommission.org/document/226538
  6. 6
    Homerova I Waugh A MacRae R Sandvide A Hanson E Jackson G Watchman K Tolson D Dementia Palliare Best Practice Statement 2016 University of the West of Scotland [cited 2016 March 21]. Available from: http://dementia.uws.ac.uk/documents/2015/12/dementia-palliare-best-practice-statement-web.pdf
  7. 7
    Dementia palliare [webpage on the internet] [cited 2016 March 21] Available from: http://dementia.uws.ac.uk
  8. 8
    Cornwall A Engaging Citizens in Governance: Lessons from Brazil’s Democratic Experiments 2010 London Department for International Development
  9. 9
    Metzelthin SF Daniëls R van Rossum E Cox K Habets H de Witte LP Kempen GI A nurse-led interdisciplinary primary care approach to prevent disability among community-dwelling frail older people: a large-scale process evaluation International journal of nursing studies 2013 50 9 1184 1196 10.1016/j.ijnurstu.2012.12.016
  10. 10
    De Blok J [Presentation to The King’s Fund] Buurtzorg: better care for lower cost 2013 [cited 2016 6 Jun]. Available: http://www.kingsfund.org.uk/sites/files/kf/media/jos-de-blok-buurtzorg-home-healthcare-nov13.pdf
  11. 11
    Collins B Intentional whole health system redesign. Southcentral Foundation’s ‘Nuka’ system of care 2015 The King’s Fund
  12. 12
    Berwick D [Foreword In]: Collins, B Intentional whole health system redesign. Southcentral Foundation’s ‘Nuka’ system of care 2015 The King’s Fund
  13. 13
    Loeffler D Taylor-Gooby T Bovaird F Co-production of health and well-being in Scotland 2013 Governance International
  14. 14
    Bogdan-Lovis E Holmes-Rovner M Prudent evidence-fettered shared decision making Journal of Evaluation in Clinical Practice 2010 16 376 381 10.1111/j.1365-2753.2010.01403.x
  15. 15
    Glimmerveen L Nies H Integrated community-based dementia care: the Geriant model International Journal of Integrated Care 2015 15 23 1 13 10.5334/ijic.2248
  16. 16
    Rubinstein E Duggan C Van Landingham B Thompson D Warburton W A call to action. The global response to dementia through policy innovation 2015 World Innovation Summit for Health
  17. 17
    Alzheimers Disease Chinese The Dementia Quality Care Online Training Programme 2014 World Innovation Summit for Health Cited in: Rubinstein, E, Duggan, C, Van Landingham, B, Thompson, D, Warburton, W, (2015). A call to action. The global response to dementia through policy innovation
  18. 18
    Connor SR Bermedo MCS Global atlas of palliative care at the end of life 2014 World Health Organisation and World Palliative Care Association
  19. 19
    van der Steen JT van Soest-Poortvliet MC Hallie-Heierman M Onwuteaka-Philipsen BD Deliens L de Boer ME Van den Block L van Uden N Hertogh CM de Vet HC Factors associated with initiation of advance care planning in dementia: a systematic review Journal of Alzheimer’s Disease 2014 40 3 743 757
  20. 20
    Whittlemore R Knafl K The Integrative review: updated methodology Journal of Advanced Nursing 2005 52 5 546 553 10.1111/j.1365-2648.2005.03621.x
  21. 21
    Hanson L Hellstrom A Sandvide A Jackson G MacRae R Waugh A Abreu W Tolson D The extended palliative phase of dementia – an integrative literature review Dementia: the international journal of social research and practice 2016 July 26 10.1177/1471301216659797
  22. 22
    Alzheimer Europe National policies covering the care and support of people with dementia and their carers- Sweden, Dementia in Europe Yearbook as part of Alzheimer Europe’s 2013 Work Plan 2014 [Cited on 2016 June 6]. Available: http://www.alzheimer-europe.org/Policy-in-Practice2/Country-comparisons/National-policies-covering-the-care-and-support-of-people-with-dementia-and-their-carers/Sweden
  23. 23
    Pot AM Petrea I Improving dementia care worldwide: ideas and advice on developing and implementing a national dementia plan 2013 London Bupa/ADI
  24. 24
    Dementia Palliare Project Case Studies [cited 2016 March 21] Available from: http://dementia.uws.ac.uk/documents
  25. 25
    Dementia Palliare Educational Gap Analysis [webpage on the internet]. [cited 2016 March 21] Available from: http://dementia.uws.ac.uk/documents
  26. 26
    Piers R Pautex S Curale V Pfisterer M Van Nes MC Rexach L Ribbe M Van Den Noortgate N Palliative care for the geriatric patient in Europe Zeitschrift für Gerontologie und Geriatrie 2010 43 6 381 385 10.1007/s00391-010-0149-y
  27. 27
    Martin-Moreno J Harris M Gorgojo L Clark D Normand C Palliative Care in the European Union 2008 Study Report by the Policy Department Economic and Scientific Policy
  28. 28
    Národní akční plán pro Alzheimerovu nemoc a další obdobná onemocnění na léta [National Action Plan for Alzheimer’s disease and similar diseases. 2016–2019] [In Czech]
  29. 29
    Source: Strategija obvladovanja demence v Sloveniji do leta 2020 (National Dementia Strategy) – Document in public discussion. [Cited 2016 6 Jun]. Available from: http://www.mz.gov.si/fileadmin/mz.gov.si/pageuploads/Demenca/Strategija_obvladovanja_demence_v_Sloveniji_do_leta_2020.docx [In Slovenian]
  30. 30
    Portugal, Ministry of Health Action Plan to the Integrated Continuous Care National Network (2016–2019)
  31. 31
    Holmerová I Baláčková N Baumanová M Hájková L Hradcová D Hýblová P Janečková H Jarolímová E Kabelka L Mátlová M Nováková H Suchá J Sůsová M Vaňková H Veleta P Wija P Strategie České alzheimerovské společnosti P-PA-IA Geriatire a gerontologe 2013 2 3 158 164
  32. 32
    Official Gazette of the Republic of Slovenia, No. 39/2013 Resolution on the National Social Protection Programme 2013 – 2020 (Resolucija o nacionalnem programu socialnega varstva za obdobje 2013–2020 (ReNPSV13–20) [Cited 2016 6 Jun] Available: http://www.epaac.eu/from_heidi_wiki/SloveneNCCP_eng.pdf
  33. 33
    Grupo de trabajo de la Guía de Práctica Clínica sobre la atención integral a las personas con enfermedad de Alzheimer y otras demencias. Guía de Práctica Clínica sobre la atención integral a las personas con enfermedad de Alzheimer y otras demencias. [Clinical Practice Guide for the care of people with Alzheimers and other dementias.] Plan de Calidad para el Sistema Nacional de Salud del Ministerio de Sanidad Política Social e Igualdad 2010 [Cited 2016 6 Jun] Available: http://www.guiasalud.es/GPC/GPC_484_Alzheimer_AIAQS_compl.pdf [In Spanish]
  34. 34
    Alzheimer Scotland Advanced Dementia Practice Model of Care 2015 [cited 2016 March 21]. Available from: http://www.alzscot.org/campaigning/advanced_dementia_model
  35. 35
    Walshe C The evaluation of complex interventions in palliative care: an exploration of the potential of case study research strategies Palliative Medicine 2011 25 8 774 81 10.1177/0269216311419883
  36. 36
    Gandesha A Souza R Chaplin R Hood C Adequacy of training in dementia care for acute hospital staff Nursing Older People 2012 24 4 26 31 10.7748/nop2012.05.24.4.26.c9070.
  37. 37
    Staples WH Killian CB Education affects attitudes of physical therapy providers toward people with dementia Educational Gerontology 2012 38 5 350 361 10.1080/03601277.2010.544605
  38. 38
    Galvin JE Kuntemeier B Al-Hammadi N Germino J Murphy-White M McGillick J ‘Dementia-friendly hospitals: Care not crisis.’ An educational program designed to improve the care of the hospitalized patient with dementia Alzheimer Disease and Associated Disorders 2010 24 4 372 379 10.1097/wad.0b013e3181e9f829
  39. 39
    Pulsford D Hope K Thompson R Higher education provision for professionals working with people with dementia: A scoping exercise Nurse Education Today 2007 27 1 5 13 10.1016/j.nedt.2006.02.003
  40. 40
    Adler G Lawrence BM Ounpraseuth ST Asghar-Ali AA A survey on dementia training needs among staff at community-based outpatient clinics Educational Gerontology 2015 41 12 903 915 10.1080/03601277.2015.1071549
  41. 41
    Mustafa N Tsaroucha A Le Mesurier N Benbow SM Kingston P Educating and training the workforce to work with people with dementia: Two projects from the United Kingdom Educational Gerontology 2013 39 6 398 412 10.1080/03601277.2012.701102 [cited 2016 6 Jun] Available: http://www.tandfonline.com/doi/abs/10.1080/03601277.2012.701102
  42. 42
    Scottish Government Promoting Excellence: A framework for all health and social services staff working with people with dementia, their families and carers 2011 Edinburgh Scottish Government [cited on 2016, May 25]. Available: http://www.gov.scot/Resource/Doc/350174/0117211.pdf
  43. 43
    Davies N Maio L Vedavanam K Manthorpe J Vernooij-Dassen M Iliffe S Barriers to the provision of high-quality palliative care for people with dementia in England: a qualitative study of professionals’ experiences Health & social care in the community 2014 22 4 386 394 10.1111/hsc.12094.
  44. 44
    Merel SE DeMers S Vig E Palliative care in advanced dementia Clinics in Geriatric Medicine 2014 30 3 469 492 10.1016/j.cger.2014.04.004
  45. 45
    Raymond M Warner A Davies N Iliffe S Manthorpe J Ahmedzhai S Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers Dementia 2014 13 1 96 110 10.1177/1471301212450538
  46. 46
    Mitchell SL Morris JN Park PS Fries BE Terminal care for persons with advanced dementia in the nursing home and home care settings Journal of Palliative Medicine 2004 7 6 808 816 10.1089/jpm.2004.7.808
  47. 47
    Rexach L Palliative care in dementia European Geriatric Medicine 2012 3 2 131 140 10.1016/j.eurger.2012.01.015
  48. 48
    Rowlands C Rowlands J Challenges in delivering effective palliative care to people with dementia: Catherine Rowlands and Julie Rowlands explore the literature to discover whether patients with dementia receive appropriate and effective end of life care Mental Health Practice 2012 16 4 33 36 10.7748/mhp2012.12.16.4.33.c9471
  49. 49
    Lynch T Connor S Clark D Mapping levels of palliative care development: a global update Journal of pain and symptom management 2013 45 6 1094 1106 10.1016/j.jpainsymman.2012.05.011
  50. 50
    Ryan T Gardiner C Bellamy G Gott M Ingleton C Barriers and facilitators to the receipt of palliative care for people with dementia: the views of medical and nursing staff Palliative medicine 2012 26 7 879 886 10.1177/0269216311423443
  51. 51
    Shanley C Whitmore E Conforti D Masso J Jayasinghe S Griffiths R Decisions about transferring nursing home residents to hospital: highlighting the roles of advance care planning support from local hospital community health services Journal of Clinical Nursing 2011 20 19–20 2897 2906 10.1111/j.1365-2702.2010.03635.x
  52. 52
    Thuné-Boyle IC Sampson EL Jones L King M Lee DR Blanchard MR Challenges to improving end of life care of people with advanced dementia in the UK Dementia 2010 9 2 259 284 10.1177/1471301209354026
  53. 53
    Public Bodies (Joint Working) (Scotland) Act 2014 2014 Edinburgh Scottish Government [Online]. Available: http://www.scotland.gov.uk/Topics/Health/Policy/Adult-Health-SocialCare-Integration
  54. 54
    Health & Medical Services Act 1982 [Cited 2016 6 Jun]. Available: http://www.riksdagen.se/sv/Dokument-Lagar/Lagar/Svenskforfattningssamling/Halso--och-sjukvardslag-1982_sfs-1982-763/HSL [In Swedish]
  55. 55
    Health Care Act 2012 [Online]. Available: http://www.finlex.fi/en/laki/kaannokset/2012/en20120980
  56. 56
    Ministry of Social Affairs and Health: National Memory Programme 2012–2020 Creating a memory friendly Finland 2013 [Cited 2016 6 Jun]. Available: https://www.julkari.fi/handle/10024/126202 [In Finnish]
  57. 57
    Decree-Law Nº 101/2006 of 6 June (National Network of Integrated Continuous Care (RNCCI) (REDE) [Cited 2016 6 Jun] Available: http://pt.slideshare.net/uccarcozelo/ecci-decreto-lei-101-de-2006-de-6-de-junho-de-2006 [In Portuguese]
  58. 58
    The Portuguese National Mental Health Plan 2007–2016 [Cited 2016 6 Jun] Available: http://www.legislacao.org/primeira-serie/resolucao-da-assembleia-da-republica-n-o-133-2010-doentes-social-demencia-demencias-186923 [In Portuguese]
  59. 59
    Dementia Palliare Policy Review Available from: http://dementia.uws.ac.uk/documents
  60. 60
    Bradley P Wilson A Achieving Prudent Healthcare in NHS Wales (revised) 2014 Cardiff Public Health Wales
  61. 61
    Van Der Steen JT Radbruch L Hertogh CM De Boer ME Hughes JC Larkin P Francke AL Junger S Gove D Firth P Koopmans RT Volicer L White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care Palliative Medicine 2014 28 3 197 209 10.1177/0269216313493685
  62. 62
    Alzheimer Europe Glasgow Declaration 2014 http://www.alzheimer-europe.org/Policy-in-Practice2/Glasgow-Declaration-2014
  63. 63
    Nolan MR Brown J Davies S Nolan J Keady J The Senses Framework: improving care for older people through a relationship-centred approach Getting Research into Practice 2006 GRiP Report No 2. http://shura.shu.ac.uk/280/
  64. 64
    World Alzheimer Report Improving healthcare for people living with dementia: coverage, quality and costs now and in the future 2016 https://www.alz.co.uk/research/world-report-2016
  65. 65
    Siouta N van Beek K Preston N Hasselaar J Hughes S Payne S Garralda E Centeno C van der Eerden M Groot M Hodiamont F Radbruch L Busa C Csikos A Menten J Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways BMC Palliat Care 2016 Feb 13 15 18 10.1186/s12904-016-0089-4
  66. 66
    Wasylynuk BA Davison SN Palliative care in patients with advanced chronic kidney disease CANNT J 2015 Jul–Sep 25 3 28 32
  67. 67
    Oliver DJ Borasio GD Caraceni A de Visser M Grisold W Lorenzl S Veronese S Voltz R A consensus review on the development of palliative care for patients with chronic and progressive neurological disease Eur J Neurol 2016 Jan 23 1 30 8 10.1111/ene.12889
  68. 68
    Fox S Cashell A Kernohan WG Lynch M McGlade C O’Brien T O’Sullivan SS Timmons S Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing BMC Palliat Care 2016 Feb 9 15 15 10.1186/s12904-016-0087-6
  69. 69
    Cleary AS Integrating palliative care into primary care for patients with chronic, life-limiting conditions Nurse Pract 2016 Mar 15 41 3 42 8 10.1097/01.NPR.0000480588.01667.58 quiz 49
  70. 70
    Fendler TJ Swetz KM Allen LA Team-based Palliative and End-of-life Care for Heart Failure Heart Fail Clin 2015 Jul 11 3 479 98 10.1016/j.hfc.2015.03.010
  71. 71
    Rocker GM Simpson AC Horton R Palliative Care in Advanced Lung Disease: The Challenge of Integrating Palliation Into Everyday Care Chest 2015 Sep 148 3 801 9 10.1378/chest.14-2593
  72. 72
    Brännström M Boman K Effects of person-centred and integrated chronic heart failure and palliative home care. PREFER: a randomized controlled study Eur J Heart Fail 2014 Oct 16 10 1142 51 10.1002/ejhf.151
  73. 73
    Gavazzi A De Maria R Manzoli L Bocconcelli P Di Leonardo A Frigerio M Gasparini S Humar F Perna G Pozzi R Svanoni F Ugolini M Deales A Palliative needs for heart failure or chronic obstructive pulmonary disease: Results of a multicenter observational registry International Journal of Cardiology 2015 April 1 184 552 8 10.1016/j.ijcard.2015.03.056
  74. 74
    Hynes G Kavanagh F Hogan C Ryan K Rogers L Brosnan J Coghlan D Understanding the challenges of palliative care in everyday clinical practice: an example from a COPD action research project Nurs Inq 2015 Sep 22 3 249 60 10.1111/nin.12089
  75. 75
    Arris SM Fitzsimmons DA Mawson S Moving towards an enhanced community palliative support service (EnComPaSS): protocol for a mixed method study BMC Palliat Care 2015 Apr 30 14 17 10.1186/s12904-015-0012-4
DOI: https://doi.org/10.5334/ijic.2497 | Journal eISSN: 1568-4156
Language: English
Submitted on: Jun 17, 2016
Accepted on: Nov 22, 2016
Published on: Dec 31, 2016
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2016 Debbie Tolson, Anne Fleming, Elizabeth Hanson, Wilson Abreu, Manuel Lillo Crespo, Rhoda MacRae, Graham Jackson, Simona Hvalič Touzery, Pirkko Routasalo, Iva Holmerová, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.