The impact of home therapy interventions on treatment adherence and patient independence in haemophilia management in Assam, India
By:
References
- Ghosh K Ghosh K. Overcoming the challenges of treating hemophilia in resource-limited nations: a focus on medication access and adherence. Expert Rev Hematol 2021; 8: 721–730. doi: 10.10.1080/17474086.2021.1957826.
- Ndoumba-Mintya A, Diallo YL, Tayou TC, Mbanya D. Optimizing haemophilia care in resource-limited countries: current challenges and future prospects. J Blood Med 2023; 14: 141–146. doi: 10.2147/JBM.S291536.
- Mahlangu J, Diop S, Lavin M. Diagnosis and treatment challenges in lower resource countries: State-of-the-art. Haemophilia 2024; 30(S3): 78–85. doi: 10.1111/hae.14956.
- Srivastava A, Santagostino E, Dougall A, et al.; WFH Guidelines for the Management of Haemophilia panelists and co-authors. WFH Guidelines for the Management of Haemophilia, 3rd edition. Haemophilia 2020;26 Suppl 6:1–158. doi: 10.1111/hae.14046. Erratum in: Haemophilia 2021;27(4):699. doi: 10.1111/hae.14308.
- Singh P, Mukherjee K. Cost-benefit analysis and assessment of quality of care in patients with haemophilia undergoing treatment at National Rural Health Mission in Maharashtra, India. Value Health Reg Issues 2017; 12: 101–106. doi: 10.1016/j.vhri.2016.11.003.
- Qian W, Lam TT, Lam HHW, Li CK, Cheung YT. Telehealth Interventions for Improving Self-Management in Patients With Haemophilia: Scoping Review of Clinical Studies. J Med Internet Res 2019; 21(7): e12340. doi: 10.2196/12340.
- Lam JCM, John MJ, Street A; Asia Pacific Haemophilia Working Group (APHWG). A survey of characteristics and current educational needs of haemophilia treatment centers within Asia Pacific. Res Pract Thromb Haemost 2018; 2(3): 508–517. doi: 10.1002/rth2.12108.
- Lock J, Raat H, Peters M, et al. Optimization of home treatment in haemophilia: effects of transmural support by a haemophilia nurse on adherence and quality of life. Haemophilia 2016; 22(6): 841–851. doi: 10.1111/hae.13043.
- García-Dasí M, Aznar JA, Jiménez-Yuste V, et al. Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A. Haemophilia 2015; 21(4): 458–64. doi: 10.1111/hae.12618.
- Khair K. Haemophilia: diagnosis, management and nursing care of patients. Nursing Times [online] 2021; 117: 10, 34–38.
https://www.nursingtimes.net/haematology/haemophiliadiagnosis-management-and-nursing-care-of-patients-13-09-2021/ . - Evatt BL. The natural evolution of haemophilia care: developing and sustaining comprehensive care globally. Haemophilia 2006;12 Suppl 3: 13–21. doi: 10.1111/j.1365-2516.2006.01256.x.
- Khair K. The changing role of the specialist haemophilia nurse. Nursing Times [online]. 9 August 2021.
https://www.nursingtimes.net/haematology/the-changing-role-of-the-specialist-haemophilia-nurse-09-08-2021/ . - Mulders G, Uitslager N, Kavanagh M, et al. The role of the specialist nurse in comprehensive care for bleeding disorders in Europe: an integrative review. Haemophilia 2024; 30(3): 598–608. doi: 10/1111.hae.14974.
- Pollard D, Harrison C, Dodgson S, et al. The UK haemophilia specialist nurse: Competencies fit for practice in the 21st century. Haemophilia 2020; 26(4): 622–630. doi: 10.1111/hae.14002.
- Manco-Johnson MJ, Abshire TC, Shapiro AD, et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe haemophilia. N Engl J Med 2007; 357(6): 535–544. doi: 10.1056/NEJMoa067659.
- Stonebraker JS, Brooker M, Farrugia A, Srivastava A. A study of reported factor concentrate use around the world. Haemophilia 2010; 16(1): 33–46. doi: 10.1111/j.1365-2516.2009.02131.x.
- Van Camp YP, Van Rompaey B, Elseviers MM. Nurse-led interventions to enhance adherence to chronic medication: systematic review and meta-analysis of randomised controlled trials. Eur J Clin Pharmacol 2013; 69(4): 761–70. doi: 10.1007/s00228-012-1419-y.
- Makris M. Prophylaxis in haemophilia should be life-long. Blood Transfus 2012; 10(2): 165–168. doi: 10.2450/2012.0147-11.
- Miners AH, Sabin CA, Tolley KH, Lee CA. Assessing health-related quality of life in individuals with haemophilia. Haemophilia 1999; 5(6): 378–385. doi: 10.1046/j.1365-2516.1999.00347.x.
- Santaella ME, Bloomberg M, Anglade D. Home infusion teaching practices at federally funded hemophilia treatment centers in the United States of America. Res Pract Thromb Haemost 2017; 1(1): 81–89. doi: 10.1002/rth2.12020.
- Hansson H, Castor C, Larsen H, Topperzer M, Olesen M. Development of an eHealth intervention in pediatric home infusion therapy: Interview study of needs and preferences of parents and health care professionals. JMIR Pediatr Parent 2025; 8:e63260. doi: 10.2196/63260.
DOI: https://doi.org/10.2478/jhp-2025-0010 | Journal eISSN: 2055-3390
Language: English
Page range: 71 - 81
Published on: Jul 21, 2025
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 times per year
Keywords:
Related subjects:
© 2025 Anupam Dutta, Ajun Ngongpa, Papari Gogoi, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.