Pain self-management experiences in haemophilia patients: a qualitative study
References
- Riley RR, Witkop M, Hellman E, Akins S. Assessment and management of pain in haemophilia patients. Haemophilia 2011; 17(6): 839-45.
- Royal S, Schramm W, Berntorp E, et al. Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002; 8(1): 44-50.
- Sherry DD. Avoiding the impact of musculoskeletal pain on quality of life in children with hemophilia. Orthop Nurs 2008; 27(2): 103-8; quiz 109-10.
- Holstein K, Klamroth R, Richards, et al. Pain management in patients with haemophilia: a European survey. Haemophilia 2012; 18(5): 743-52.
- Humphries TJ, Kessler CM. Managing chronic pain in adults with haemophilia: current status and call to action. Haemophilia 2015; 21(1): 41-51.
- Young G, Tachdjian R, Baumann K, Panopoulos G. Comprehensive management of chronic pain in haemophilia. Haemophilia 2014; 20(2): e113-20.
- Witkop M, Lambing A, Kachalsky E, et al. Assessment of acute and persistent pain management in patients with haemophilia. Haemophilia 2011; 17(4): 612-9.
- Auerswald G, Dolan G, Duffy A, Hermans C, Jimenez-Yuste V, Ljung R, et al. Pain and pain managent in haemophilia. Blood Coagul Fibrinolysis 2016; 27(8):845-854.
- Witkop M, Lambing A, Divine G, et al. A national study of pain in the bleeding disorders community: a description of haemophilia pain. Haemophilia 2012; 18(3): e115-9.
- Rambod M, Forsyth K, Sharif F, Khair K. Assessment and management of pain in children and adolescents with bleeding disorders: a cross-sectional study from three haemophilia centres. Haemophilia 2016; 22(1): 65-71.
- Rustøen T, Gaardsrud T, Leegaard M, Wahl AK. Nursing pain management – a qualitative interview study of patients with pain, hospitalized for cancer treatment. Pain Manag Nurs 2009; 10(1):48-55.
- Merlin JS, Walcott M, Kerns R, et al. Pain self-management in HIV-infected individuals with chronic pain: a qualitative study. Pain Med 2015; 16(4): 706-14.
- Caiata Zufferey M, Schulz PJ. Self-management of chronic low back pain: an exploration of the impact of a patient-centered website. Patient Educ Couns 2009; 77(1): 27-32.
- Crowe M, Whitehead L, Jo Gagan M, Baxter D, Panckhurst A. Self-management and chronic low back pain: a qualitative study. J Adv Nurs 2010; 66(7): 1478-86.
- Kawi J. Chronic low back pain patients’ perceptions on self-management, self-management support, and functional ability. Pain Manag Nurs 2014; 15(1): 258-64.
- Khair K, Meerabeau L, Gibson F. Self-management and skills acquisition in boys with haemophilia. Health Expect 2015; 18(5): 1105-13.
- Tanabe P, Porter J, Creary M, et al. A qualitative analysis of best self-management practices: sickle cell disease. J Natl Med Assoc 2010; 102(11): 1033-41.
- Janevic MR, Ellis KR, Sanders GM, Nelson BW, Clark NM. Self-management of multiple chronic conditions among African American women with asthma: a qualitative study. J Asthma 2014; 51(3): 243-52.
- Mathew R, Gucciardi E, De Melo M, Barata P. Self-management experiences among men and women with type 2 diabetes mellitus: a qualitative analysis. BMC Fam Pract 2012; 13: 122.
- Polit DF, Beck CT. Nursing research: Generating and assessing evidence for nursing practice Tenth ed. New York, Baltimore, Philadelphia: Lippincott William & Wilkins; 2017.
- van Manen M. Phenomenology of practice: Meaning-giving methods in phenomenological research and writing Walnut Creek, California: Left Coast Press, Inc; 2014.
- van Manen. Researching lived experience Albany, NY: State University of New York Press; 1997.
- Heijnen L. The role of rehabilitation and sports in haemophilia patients with inhibitors. Haemophilia 2008;14(6):45-51.
- Mazloum V, Rahnama N, Khayambashi K. Effects of therapeutic exercise and hydrotherapy on pain severity and knee range of motion in patients with hemophilia: a randomized controlled trial. Int J Prev Med 2014; 5(1): 83–88.
- Jenerette CM, Brewer CA, Ataga KI. Care seeking for pain in young adults with sickle cell disease. Pain Manag Nurs 2014; 15(1): 324-30.
- van Genderen FR, Fischer K, Heijnen L, et al. Pain and functional limitations in patients with severe haemophilia. Haemophilia 2006; 12(2): 147-53.
- Fisher GS, Emerson L, Firpo C, et al. Chronic pain and occupation: an exploration of the lived experience. Am J Occup Ther 2007; 61(3): 290-302.
- Ojala T, Hakkinen A, Karppinen J, et al. Revising the negative meaning of chronic pain – a phenomenological study. Chronic Illn 2015; 11(2): 156-67.
DOI: https://doi.org/10.17225/jhp00107 | Journal eISSN: 2055-3390
Language: English
Page range: 76 - 82
Published on: Oct 18, 2018
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 times per year
Keywords:
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© 2018 Masoume Rambod, Farkondeh Sharif, Zahra Molazem, Kate Khair, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.